Jed Ian Taxel Foundation for Rare Cancer Research

Understanding Types of Rare Cancers: Glioblastoma 🧠 This is the second post in our series on rare cancers, where we explore different types of uncommon but devastating cancers. In our last post, we shed light on blood cancers. Today, we focus on brain cancers, specifically Glioblastoma—an aggressive form of brain tumor. Glioblastoma can lead to a range of symptoms, including persistent headaches, nausea, and memory loss. It develops rapidly, making early diagnosis and treatment crucial. While Glioblastoma is rare, it accounts for the majority of malignant brain tumors, making it particularly challenging for patients and their families. At the Jedi Rare Cancer Foundation, we're committed to raising awareness and supporting those affected by rare cancers like Glioblastoma. Stay tuned as we continue our journey of education and empowerment. #BrainCancerAwareness #Glioblastoma #RareCancerAwareness #JEDIRareCancerFoundation #UnderstandingRareCancers

Rare cancer is not as rare as you think. 1 in 4 cancer patients are diagnosed with a form of rare cancer. These rare cancer patients and their families need our help. The JEDI Rare Cancer Foundation exists to advance groundbreaking research that leads to lifesaving treatments. We are committed to accelerating discovery, supporting clinical trials, and driving collaboration that translates into real hope for rare cancer patients. But we can't do it without YOU. Your donation helps fuel the breakthroughs that change lives and save families from the heartbreak of rare cancer. More healthy survivors, more hope for the future. 🌟Join the JEDI community today and bring hope to rare cancer patients and their families. Together, we can change the outcome for those who need it most. Donate now and help us bring an end to rare cancer as we know it: https://lnkd.in/gQyr7xJt #EndRareCancer #JEDIRareCancerFoundation #RareCancerResearch #RareCancerAwareness

Time is running out! This is your final opportunity to secure your spot at one of JEDI’s most anticipated events of the year—Wine for Life! 🍷 On Friday, October 18th, join us at The Madison for an evening of rare fine wines, global culinary experiences, and the chance to make a difference. The event kicks off with an exclusive VIP Rare Fine Wine Tasting featuring extraordinary wines from private collectors, followed by our Food and Wines of the World experience—enjoy 20+ wines from across the globe, perfectly paired with gourmet dishes and decadent desserts. All proceeds support groundbreaking rare cancer research through CURE: The Rare Cancer Initiative at Case Comprehensive Cancer Center. Spaces are almost gone! Don’t miss out—RSVP now to be part of this incredible event. Secure your spot today: https://lnkd.in/g2Ky6ttA #WineForLife #JEDIrareCancer #SupportResearch #LastChance

Did you know that all childhood cancers are considered rare? Despite this, there is a major need for more funding, as only 8% of federal cancer research funding is dedicated to pediatric cancer. For families facing these devastating diagnoses, the journey is filled with limited treatment options and heartbreaking outcomes. Now is the time to raise awareness, fund research, and support the families affected by these rare diseases. Every child deserves a fighting chance—let’s unite and make a difference! 💛 Donate today: https://lnkd.in/gQyr7xJt #FightRareCancers #EveryChildMatters #HopeForRare #JediCancerFoundation

Today marks seven years since Jed's passing, and we pause to remember his bravery, creativity, and the deep friendships he cherished. Jed faced his battle with rare cancer with courage, but beyond the fight, he was a remarkable person—full of joy, creativity, and an infectious spirit. As we continue our work at the JEDI Rare Cancer Foundation, we hold Jed’s memory close, striving to honor his legacy through every step we take. We know he would be proud of the work being done in his name. The contributions and support we receive today will make a lasting impact, saving lives for those like Jed in the years ahead. We miss you, Jed. We feel your presence every day, guiding us, and we hope our efforts make a difference worthy of your incredible spirit. Your light inspires us to keep fighting for a better future. Thank you to everyone who supports our mission—you make all the difference. 💙 #FightRareCancer #JEDIRareCancerFoundation #RareCancerResearch #RareCancerAwareness

Join us for an unforgettable evening in support of rare cancer research at the Wine for Life event! There’s only a few days left to RSVP—make sure to secure your spot by October 11th! Enjoy a night of fine wine, great company, and the opportunity to make a meaningful difference in the fight against rare cancers. Every sip, every donation, and every moment helps us fund life-saving research and support those battling rare cancers. 🗓️ Event Date: Friday, October 18th 📍 Location: The Madison in Cleveland, OH Together, we can help fund lifesaving treatments for even the rarest of cancers! Don’t miss your chance to be part of this incredible evening. Reserve your tickets now and help make an impact: https://lnkd.in/g2Ky6ttA #WineForLife #SupportRareCancer #JEDIRareCancerFoundation #RSVPNow

Join Us for a special celebration of progress in the fight against rare cancer! 📅 Sunday, October 27th | 4 PM 📍 Il Cantinori, NYC We invite you to join us on Sunday, October 27th, for our annual event celebrating the Years of Progress we’ve made together and sharing our vision for the future. This gathering is not just a reflection of the incredible strides we’ve made, but a moment to honor what’s next. You’ll hear from leaders like Dr. Gary Schwartz, Director of the Case Comprehensive Cancer Center, Jane Wilkinson, President of CANCollaborate, and Barbara Van Hare, President of the Rare Cancer Research Foundation, who are partnering with us to transform rare cancer research and patient support at an unprecedented scale. Rare cancers account for 1 in 4 cancers diagnosed annually, yet they remain underfunded and underserved. By supporting the Jedi Rare Cancer Foundation, you are investing in life—helping to bring hope and better treatment options to rare cancer patients everywhere. If you are unable to attend, we ask that you please consider a donation in Jed’s memory. Your generosity will fuel the breakthroughs we need to defeat rare cancer. We look forward to seeing you in New York City! RSVP Today: https://lnkd.in/edcUXAQB #YearsOfProgress #EndRareCancer #JediRareCancerFoundation #InvestInLife

Today is Rare Cancer Day! Did you know that rare cancers account for 25% of all cancer deaths? On this day, we stand in solidarity with those affected by rare cancers and work to raise awareness about the unique challenges they face. Rare Cancer Day, spearheaded by the National Organization for Rare Disorders, brings together 27 rare cancer-specific organizations to shine a light on these often-overlooked cancers. Together, we work toward earlier diagnoses, better treatments, and more research to improve the lives of those battling rare cancers. How can you help? Join us in making a difference by donating to support rare cancer research. Every donation helps fund critical research and supports those affected by rare cancers. Together, we can work toward better treatments and a brighter future. Donate today: https://lnkd.in/e-Wnf4qP Help us spread the word and raise awareness! Share this post and join the conversation using #RareCancerDay to stand with the rare cancer community.

Can you believe summer’s almost over? Fall is just around the corner, and so is one of the most anticipated events of the year! Join the JEDI Rare Cancer Foundation on Friday, October 18th, for an unforgettable evening of fine wines and culinary delights at The Madison in Cleveland, OH. The event begins with an exclusive VIP Rare Fine Wine Tasting, featuring rare and hard-to-find wines from private collectors, followed by the Food and Wines of the World experience, where you can savor over 20+ wines from around the globe, paired with gourmet hors d'oeuvres and desserts. Proceeds support transformative rare cancer research through CURE: The Rare Cancer Initiative at Case Comprehensive Cancer Center. Spaces are filling up fast, so don’t miss your chance! RSVP by October 11th to be part of this special event. Sign up here: https://lnkd.in/g2Ky6ttA #WineForLife #JEDIrareCancer #SupportResearch

At the JEDI Rare Cancer Foundation, we’re on a mission to bring hope and life-saving research to those battling rare cancers. But we can’t do it alone—we need your support. Rare cancers like esophageal cancer and chronic myeloid leukemia often go underfunded and overlooked, leaving patients and their families with limited options. Your donation can change that. By contributing to the JEDI Rare Cancer Foundation, you're helping to fund critical research, provide support to patients, and drive awareness for these devastating diseases. Every dollar makes a difference. Whether it’s a one-time gift or a monthly contribution, your generosity fuels our fight for a future where rare cancers are no longer rare and where every patient has a chance to thrive. Join us in making a lasting impact. Donate today: https://lnkd.in/gQyr7xJt #DonateNow #JEDICancerFoundation #FightRareCancers #RareCancerResearch