Les Turner ALS Foundation

Les Turner ALS Foundation

Non-profit Organizations

Skokie, IL 1,686 followers

We provide care for those affected by ALS, support their loved ones, and provide hope through research and advocacy.

About us

Founded in 1977, the Les Turner ALS Foundation is the leader in comprehensive ALS care in Chicagoland. Although we're one of the largest independent ALS groups in the country, we treat each person like family and we're committed to supporting them every step of the way. Our individualized approach ensures each person living with the disease receives the best quality of care, and our local community of support provides their loved ones with answers and encouragement. Our Les Turner ALS Center at Northwestern Medicine is led by the most well-respected and successful clinicians and researchers in the field, advancing vital care and research in pursuit of life-enhancing treatments and a cure. About ALS: Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease or motor neuron disease (MND), is a progressive disease that causes muscle weakness, difficulty speaking and swallowing and generally, complete paralysis. In most cases, while the body continues to deteriorate, the mind remains unaffected. The disease does not discriminate, striking any age, gender and race. In the US, someone is diagnosed every 90 minutes, and approximately 35,000 people are living with ALS at any given time. There is no known cure for ALS and once diagnosed, patients typically live only three to five years.

Industry
Non-profit Organizations
Company size
11-50 employees
Headquarters
Skokie, IL
Type
Nonprofit
Founded
1977
Specialties
ALS, Amyotrophic Lateral Sclerosis, and Lou Gehrig's disease

Locations

  • Primary

    5550 W. Touhy Avenue

    Suite 302

    Skokie, IL 60077, US

    Get directions
  • 259 E. Erie St.

    Lavin Family Pavilion, Floor 19

    Chicago, IL 60611, US

    Get directions

Employees at Les Turner ALS Foundation

Updates

  • We can't wait to see our founders and team About Les' Spirit at the ALS Walk For Life this year! Listen to Bonny's incredible story of how she and her family stepped up to help her brother-in-law. It is not too late to sign up your team and help support everything we do for those affected by ALS.

  • Together with the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital, the Les Turner ALS Center at Northwestern Medicine is thrilled to announce the launch of the Acceleration Centers of Enrollment (ACE) initiative. “We are thrilled to partner with the Healey & AMG Center for ALS to launch this exciting and important new initiative,” said Laura Freveletti, CEO of the Les Turner ALS Foundation. “Clinical trial participants deserve our utmost gratitude, and this program will pave the way for better treatments and longer, richer lives for those living with ALS.” Learn more: https://buff.ly/3WTrYQs

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  • This past weekend one of our support services coordinators, Karen, attended a picnic that brought together families from her Navigating ALS Together Support Group. This event was organized by one of the long-time members Rob. The picnic provided an opportunity for members to bond outside of their regular support meetings. Click to learn more about our virtual support groups. https://buff.ly/4fS5sjt

  • You don't want to miss out on our August ALS Learning Series Learn how to effectively advocate for yourself and communicate with your ALS care team in this special session led by Dr. Ambereen Mehta and Dr. Suzana Makowski, experts in ALS palliative care. Designed for people living with ALS, their families, and caregivers. This session will offer practical tips to ensure your voice is heard and your needs are met, promoting a team-based approach to care. https://buff.ly/3WFWtta

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  • On Friday, July 19th, there wasn’t a dry eye in sight as retired deputy chief firefighter Hugh Stott, diagnosed with ALS in 2020, was honored at his home in Winfield, IL. The street was lined with fire trucks and a large crowd gathered to show their love and support for Hugh. Hugh and his family received a $5,000 grant from Fire Department Coffee, which they used to purchase a new customized manual reclining wheelchair. This generous donation allowed them to return his previous wheelchair to the Les Turner ALS Foundation’s loan closet, benefiting another person in need. To learn more about our equipment loans, as well as our many grant programs available to people living with ALS and their families, click the link below: https://buff.ly/3AmJGnX

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  • And just like that, our August matching challenge is complete.The funds were matched in record time! Thank you to everyone who donated and thank you to the Haarlow Family Charitable Foundation for generously matching those donations. All donations made between 08/07/2024 and 08/13/2024 at 10:00am will be matched. You will see the match reflected in your participant center by Friday 08/16/2024. If you have any questions, contact Riley Kelly at rkelly@lesturnerals.org. Let's keep this momentum going!

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  • We have a winner! We are excited to share our 2024 ALS Walk For Life T- Shirt design. Make sure you sign up to join us on September 14th at Soldier Field to get your shirt. Reminder: To be eligible to receive the 2024 ALS Walk for Life t-shirt you must raise a minimum of $100 to your personal fundraising page. Team fundraising totals are not eligible for the t-shirt or other fundraising prizes. Please contact Riley Kelly at rkelly@lesturnerals.org with questions or concerns. Sign up today! https://buff.ly/4cqvG9V

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