Mended Little Hearts National Organization

#CHDAware: Do you know what Ebstein's Anomaly is❓ Ebstein's Anomaly is a condition that occurs when a malformed heart valve does not properly close to keep the blood flowing in the right direction. This can cause blood to leak from the lower to the upper chambers on the right side of the heart. Ebstein's Anomaly is most commonly seen with Atrial Septal Defect (ASD)🫀 Swipe through our graphic and visit the link below to learn more👇 https://lnkd.in/eMup3Sge #CHD #EbsteinsAnomaly #1in110

It's back to school season and this #SelfCareSunday we wanted to offer you and your #CHDWarriors some words of encouragement❗️ Good luck heart warriors and heart parents! We hope you have a wonderful school year❤️

#SaturdaySpotlight: This week we are highlighting MLH of DC and the Natraj Indian School of Dance🔦 Every year the dance school chooses an organization to give some of their proceeds from their annual dance recital to, and this year MLH of DC was chosen as a young girl, Deeya, lost her life in November to congenital heart disease due to falling out of care. She was a dancer at the school for most of her life🤍 We thank the Natraj Indian School of Dance for letting us share the important resources MLH has to offer, their donation, and for bringing two different organizations together to highlight the commonality of heart disease in all communities🫀

Join us on September 17th at 6 PM ET for our webinar, In the Thick of It: Patient and Physician Perspectives on Hypertrophic Cardiomyopathy❗️ MHI advocate Gigi Imeson and cardiologist Dr. Anjali Owens will help us learn more about hypertrophic cardiomyopathy or HCM, including diagnostic testing options, best practices for living with and managing HCM, and tips for communicating with your doctors. 🫀 Visit the link below to register today👇 https://lnkd.in/ezzGcQc3

The countdown is on, World of Support is 10 days away❗️ Our annual virtual charity event and registration for the walk/race starts on September 1st! World of Support is raising money to help us keep the international resource center/operations going strong so that our chapters and members get the services and support they need to thrive and support their or their loved ones #HeartJourney🫀 Make sure to mark your calendars and look out for more information on donating and joining the race🗓️

#CHDAware: Today, we add a new term to our #CHD glossary. Have you heard the term Aorta when discussing your little one's heart condition? Check out the definition and share it with others who may need it! 🫀Aorta: The main artery that supplies blood and oxygen to the body. It usually originates in the left ventricle (the main pumping chamber) of the heart. #CHD #CHDAwareness #CongenitalHeartDefects

#DYK that CHD can have lifelong neurodevelopmental effects❓ There is growing evidence showing that there are changes in blood flow in babies with some forms of #CHD before the baby is born that affect the brain and therefore brain development. Also, some children born with CHD have genetic factors that impact brain development. Finally, heart surgeries and other medical procedures can affect blood flow and may lead to changes in the way the brain develops🧠 To learn more about this and access free downloadable resources to navigate your child's neurodevelopmental growth visit the link below👇 https://lnkd.in/gF4sbc7Q

Self-care for children is very important to help them establish routines and prioritize their well-being❗️ You may be thinking, self-care for my 3 year old is very different than self-care for a 10 year old, and you're right! Self-care for children can look different depending on their age👶👧👦 This #SelfCareSunday we are highlighting Calm self-care tips tailored specifically for young children (3-5), school-aged children (6-9), and pre-teens (10-12). Visit the link below to learn more🔗 https://lnkd.in/eP9sDD86 Do you have tips or self-care activities you practice with your #CHDWarrior? Comment them down below⬇️

Today is #WorldMyocarditisDay🌎 Myocarditis is a rare condition causing inflammation in the middle muscle of the heart. When this happens, the inflammation can weaken the heart muscle and its electrical system causing a decline in the heart's ability to pump blood🫀 Myocarditis is the 3rd leading cause of sudden death among young adults in the developed world. Myocarditis can go undiagnosed due to the diversity of symptoms individuals can display but recent research is proving Myocarditis is much more prominent than once believed❗️ If left untreated Myocarditis can increase your risk for heart attack, stroke, heart failure, or death. Join us in spreading awareness, honoring those we have lost to myocarditis and celebrating those who have made full recoveries🤍 Learn more about #Myocarditis at the link below👇 https://lnkd.in/eckAN97Y

The Mended Hearts, Inc. and Mended Little Hearts® support the passage of Rep. Morgan McGarvey’s Supporting Premature Infant Nutrition Act to provide access to lifesaving nutrition in every NICU❗️ We want to know what questions you have about 👶Infant feeding with medically fragile children 🍼Human milk-derived human milk fortifier and the barriers to patients receiving it 📝Details of the Supporting Premature Infant Nutrition Act Leave your questions in the comments below⬇️