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Honored to have held an interactive session on the work of www.mitoworld.org at the CELL: Multifaceted Mitochondria Symposium in Sitges, Spain. Three members of the MitoWorld scientific advisory board (Gerry Shadel, Salk Institute for Biological Studies, Mike Murphy, University of Cambridge Mitochondrial Biology Unit, and Heidi McBride, McGill University) and I spoke about the mitoworld.org efforts to "mainstream" mitochondria for the public and the medical sector, pushing toward a more encompassing mitochondria science, and beginning a mitochondrial informatics effort. Audience members participated in how to widen the conversation globally and the panel invited comments on MitoWorld's interest in building task forces in various arenas of mitochondrial research mapped to better-known medical practice areas and well-known research subjects. The sense of the session was that the subject of mitochondrial research across the lifespan needs to be expanded to benefit general health and to translate findings to combat the many diseases and conditions with mitochondrial involvement that are without cures or therapies. The subject of education, starting in school and college and in medical training, came up several times as a way to anchor mitochondria in culture and eventually in practice. It should be noted that MitoWorld is a project of the NATIONAL LABORATORY FOR EDUCATION TRANSFORMATION (www.NLET.org). We hope the momentum from the Symposium will help spread the word. Gordon Freedman Organizer, www.MitoWorld.org President, www.NLET.org 

Michael Duchen Awarded the Keilin Memorial Lecture by Biochemical Society The mitoworld.org team would like to share and congratulate Professor Michael Duchen of UCL on being awarded the prestigious 2024 Keilin Memorial Lecture by the Biochemical Society, honored for his seminal contributions to the research into mitochondria in disease. You can read more about Professor Duchen's career and work in our interview below: https://lnkd.in/ercaEU_8

⏰ Not long to go until our interactive session at Cell Symposia: Multifaceted Mitochondria 2024! Join our key scientific advisory board members (17:00 on Sunday 27th October) as we discuss efforts to formalize an alliance that elevates mitochondrial research and clinical practice - from targeted investigations and therapies. We will also be talking about the formation of specific task forces in areas such as inflammation, mtDNA editing, neurodegenerative diseases, metabolism, cancer, and diabetes. Learn more at the link below: https://lnkd.in/ea6fQtnT

Big News! mitoworld.org has had the privilege of collaborating with the brilliant Sophia Zilber 🌺 of Cure Mito Foundation, and we are thrilled to congratulate them on receiving a prestigious Chan Zuckerberg Initiative grant and being selected for the Rare As One Network! Cure Mito has worked tirelessly, raising critical funds for research, developing the Leigh’s Syndrome registry, and organizing a highly successful annual conference, which showcases cutting-edge research and builds trusted partnerships - all while making a real difference in the lives of those affected by Leigh Syndrome. As Cure Mito shared in their email announcement: "We would like to thank everyone who stood by us, believed in us, and encouraged us to keep going" These five-year, $800,000 capacity-building CZI grants will empower Cure Mito to provide invaluable support through training, mentoring, research advancement, and network development. We’re incredibly proud of MitoWorld’s Alexander Sercel, PhD, who contributed his expertise to the successful grant submission! At MitoWorld, we're committed to fostering collaborations like this to push forward research on mitochondrial function and disease. Together, we can make strides in transforming lives through innovation and partnership. #MitoWorld #CureMito #RareAsOneNetwork #CZIGrant #LeighSyndrome

🚨 Breaking News! The House just passed a 5-year renewal of the Rare Pediatric Priority Review Voucher (PRV) Program as part of the Give Kids a Chance Act. Thank you to Rep. Gus Bilirakis, Rep. Anna Eshoo, Rep. Lori Trahan, Rep. Michael McCaul, Rep. Nanette Diaz Barragán and Rep. Michael C. Burgess for your steadfast leadership and commitment to this life-saving legislation. 👉 Next Step - The Creating Hope Reauthorization Act will be marked up by the Senate HELP Committee this Thursday, September 26. Please take action and urge your senators to support this critical legislation. #Cures4RareKids Take Action Here! https://lnkd.in/eaCTT86h

The UCL portico has been green for mito all this week to raise awareness for this under-diagnosed group of diseases #worldmitoweek2024 #lightupformito The Lily Foundation

Stealth BioTherapeutics Announces FDA Advisory Committee Meeting to Review Elamipretide for Barth Syndrome Treatment The FDA Cardiovascular and Renal Drugs Advisory Committee will review the New Drug Application for elamipretide on October 10, 2024. If approved, elamipretide would be the first therapy for Barth syndrome - a rare and life-threatening genetic disorder affecting around 150 individuals in the U.S. but is also in trials for other conditions involving mitochondrial dysfunction. The drug has been granted priority review with a decision expected by January 29, 2025. https://lnkd.in/eWfTV48r

Watch our exclusive interview with mitcohondrial medicine pioneer, Professor Douglas Wallace: https://lnkd.in/e9WHUGBp

mitoworld.org is pleased to be collaborating with leading mitochondrial researchers at the MRC Mitochondrial Biology Unit, University of Cambridge. The strategic mission of the MBU is to understand mitochondrial biology in health and disease, and to exploit this understanding to develop new therapies and improve human health. Featuring 11 research groups, many talented scientists work to deliver multi-disciplinary, ground-breaking advances with a direct impact on improving human health. The Cambridge Biomedical Campus is now the largest Biomedical campus in Europe and situated in a prime location for interactions with research scientists, clinicians in the School of Clinical Medicine and other nearby world-renowned institutes. Learn more about their work - https://lnkd.in/eZ5Z6hZp Michal Minczuk Patrick Chinnery Edmund Kunji Kasparas Petkevicius Julien Prudent Dylan Ryan Jelle Van Den Ameele John Walker Alex Whitworth #mitoweek #mitoweek24 #worldmitochondrialdiseaseweek #mitochondria #mitoresearch #mitoawareness #mitochondrialresearch #mitochondrialdysfunction #mitochondrialdisorder

Congress has less than two weeks to extend the FDA's rare pediatric disease Priority Review Voucher (PRV) program... Read our article written by Stephanie Tomlinson at mitoworld.org