My Hemophilia Life

Hemophilia Breakthrough: New Gene Therapies Could Offer a Cure Researchers are developing new gene therapies for hemophilia A and B that are more efficient and less expensive than current therapies: A new hope for a cure Hemophilia A and B are genetic bleeding disorders that affect males. They are caused by mutations in the genes that code for factor VIII and factor IX, respectively, […] #MyHemophiliaLife #Hemophilia #HemophiliaNews #HemophiliaDisease #HemophiliaTreatment #HemophiliaSymptoms #HemophiliaHistory #HemophiliaResearch #HemophiliaHelp

Researchers create novel hemophilia B gene treatment Researchers create novel hemophilia B gene treatment, offering a fresh prospect for recovery. Males are affected by an uncommon inherited bleeding condition called hemophilia B. A mutation in the gene that codes for factor IX, a clotting factor necessary for healthy blood coagulation, is the cause of it. Those who have hemophilia B are susceptible […] #MyHemophiliaLife #Hemophilia #HemophiliaNews #HemophiliaDisease #HemophiliaTreatment #HemophiliaSymptoms #HemophiliaHistory #HemophiliaResearch #HemophiliaHelp

FDA grants orphan drug status to TI-168 for hemophilia A inhibitors Baudax Bio‘s investigational regulatory T-cell therapy, TI-168, has received orphan drug designation from the U.S. Food and Drug Administration (FDA) for the treatment of hemophilia A with inhibitors. Orphan drug status is granted to therapies addressing rare conditions affecting fewer than 200,000 people in the U.S. This designation offers various benefits, including tax credits, clinical […] #MyHemophiliaLife #Hemophilia #HemophiliaNews #HemophiliaDisease #HemophiliaTreatment #HemophiliaSymptoms #HemophiliaHistory #HemophiliaResearch #HemophiliaHelp

The FDA approves the use of a plasma product to track FVIII activity The FDA in the United States has approved CRYOcheck Factor VIII Deficient Plasma with VWF, a produced plasma product from Precision BioLogic, for use in laboratories. Utilizing blood samples, this product can be used to identify factor VIII (FVIII) insufficiency. Normal blood coagulation requires the clotting factor FVIII. Due to an FVIII deficiency, hemophilia A […] #MyHemophiliaLife #Hemophilia #HemophiliaNews #HemophiliaDisease #HemophiliaTreatment #HemophiliaSymptoms #HemophiliaHistory #HemophiliaResearch #HemophiliaHelp

Can you live a normal life with hemophilia? A bleeding ailment known as hemophilia affects more than 400,000 people globally. It is brought on by a lack of one of the proteins called clotting factors, which aid in blood clotting. People who have hemophilia are therefore susceptible to severe bleeding, which may be fatal. More than half of hemophiliac patients conceal their symptoms, […] #MyHemophiliaLife #Hemophilia #HemophiliaNews #HemophiliaDisease #HemophiliaTreatment #HemophiliaSymptoms #HemophiliaHistory #HemophiliaResearch #HemophiliaHelp

Socio-economic problems of hemophilia Hemophilia is a rare congenital bleeding disease caused by an X chromosome-linked deficiency in coagulation factors 8 in hemophilia A or factors 9 in hemophilia B. This is a rare disorder and is characterized by spontaneous and potentially life-threatening bleeding episodes. It is a life disorder associated with physical, emotional, economic, and social problems for […] #MyHemophiliaLife #Hemophilia #HemophiliaNews #HemophiliaDisease #HemophiliaTreatment #HemophiliaSymptoms #HemophiliaHistory #HemophiliaResearch #HemophiliaHelp

The Impact of Factor 8 Deficiency on Your Daily Life: Coping Strategies and Support Welcome to our blog on “The Impact of Factor 8 Deficiency on Your Daily Life: Coping Strategies and Support.” Living with factor 8 deficiency can be challenging, but this condition doesn’t define you. In this empowering article, we will explore practical coping strategies and highlight the importance of finding support from others facing similar challenges. […] #MyHemophiliaLife #Hemophilia #HemophiliaNews #HemophiliaDisease #HemophiliaTreatment #HemophiliaSymptoms #HemophiliaHistory #HemophiliaResearch #HemophiliaHelp