Myositis Support and Understanding Association, Inc. (MSU)

JOIN US for the second session of "Shifting your Mindset" with Suzy Jeppesen This month's topic: FEELINGS Happening Wednesday, October 23rd at 3pm PT/4pm MT/5pm CT/6pm ET This is a safe space for the myositis community to connect, share and empower one another. Please register for this FREE event, on zoom, by clicking the following link: https://linktr.ee/myositis #mindset #myositis #MyositisPatients #MyositisCommunity #MyositisAndMindset #MentalHealth #ShiftingYourMindset

🌟 Myositis Patients: Your Contribution Matters!** 🌟 We invite you to be a part of making a significant difference in the lives of individuals living with myositis. Your donations are vital to fulfilling the mission of Myositis Support and Understanding (MSU), and we truly appreciate your generosity. A key way your support helps is through our **Financial Assistance Program**. This important initiative provides myositis patients with the financial relief they need to navigate their daily challenges, offering assistance for rent, medical bills, and essential medical equipment. Picture the positive impact this support can have—enabling patients to prioritize their health without the added stress of financial worries. We are also excited to announce our **Empower Walk Campaign**, happening virtually on **October 19th at 4 PM ET**. This event serves not only to raise funds but also to foster community, raise awareness, and walk together in solidarity for those affected by myositis. By joining the Empower Walk and donating, you are playing a crucial role in improving the quality of life for our fellow patients. Every dollar you contribute helps us continue to provide essential support to the myositis community. 👉 **Make your donation today:** 🔗https://lnkd.in/egKy6srt Thank you for your steadfast support and for being an essential part of our mission. Together, we can uplift one another and create a lasting impact in the lives of those living with myositis! 💙 #DonateNow #EmpowerWalk #MyositisSupport #MakeADifference #MSU

Sharing your myositis story with the community is a powerful way to connect, educate, and inspire others. By opening up about your experiences, you raise awareness about this often misunderstood condition, helping others who may feel isolated. Your story can offer comfort, validation, and hope to those on a similar journey, showing them they’re not alone. It also creates opportunities for advocacy, leading to better understanding, research, and support for myositis patients. Every voice matters, and sharing your personal journey can make a lasting impact on the entire myositis community. Please share a bit of your myositis journey with us at MSU and be a part of our "To Be Honest Tuesday" series where each week we feature a personal video OR written testimony with our community Ready to share? Click the link below to record, or write, what you want to be honest about! https://lnkd.in/e_VmgYmZ #ShareYourStory #myositis #MyositisSupport #ToBeHonestTuesday #YourStoryMatters #MSU #SupportStartsHere #MyositisCommunity

🌟 Ready for a Myositis Empower Walk Game Night!** 🌟 Join us for a fun and engaging Game Night on Zoom sponsored by Priovant! This exciting event will take place on October 17th at 6 PM ET, hosted by our very own Jessica Taylor, Director of Operations for MSU, alongside Taryn Smith from Priovant. Get ready for a night filled with trivia, laughter, and connection as we enjoy a break from our myositis concerns and come together in a social setting. This game night is a fantastic lead-up to our 6th Annual Virtual Myositis Empower Walk on October 19th, starting at 4 PM, streaming online. Don’t miss this opportunity to have some fun and connect with fellow myositis warriors before the walk! 📅 Event Date: October 17th 🕕 Time: 6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT 🌐 Zoom Link: https://lnkd.in/ejrqrKUS Mark your calendars, and get ready for an unforgettable evening! We can’t wait to see you there! 🎉💜 #MyositisEmpowerWalk #GameNight #MyositisSupport #Priovant #CommunityFun

Myositis Support Gets Moving on Clubhouse! TODAY and every Thursday at 1 PM ET / 12 PM CT / 11 AM MT / 10 AM PT. 💙We welcome all impacted by myositis and their care partners who are interested in muscle preservation by movement and protein intake. This group is for all stages of myositis progression. We will learn, grow and progress together. It is not about competition. IMPOSSIBLE TO FAIL in this group. This weekly Clubhouse Room IS: A space for encouragement and support as we get moving together A space to talk about and create your movement plan A space to talk about your protein intake plan A space to talk about your successes, struggles, and barriers A space to find a support partner A space where NO ONE FAILS! This weekly Clubhouse Room is NOT: An exercise class A set program Medical or mental health advice ⏰ See details at https: https://lnkd.in/eyXSRxkU We know from research that movement with myositis is beneficial. As part of Get Moving, we encourage the use of support partners. This is someone we may choose to engage with for encouragement and support. We can share Our problems, joys and successes with our support partner. Choosing someone from the myositis group means a person who truly understands your situation. Clubhouse is an audio-only app; please click the link provided for more details. #MyositisMovement #myositissupport #myositis #inflammatorymyopathy #muscledisease #proteinintake #movement #exercise

🌟 We Want to Get to Know You Better! 🌟 As a valued supporter of the Myositis Empower Walk (MEW), your impact has been incredible! But we know there's so much more to your story than just your involvement with MEW. What do you enjoy doing outside of MEW? What hobbies or passions do you pursue? We’d love to hear about the people in your life who inspire or motivate you. Whether it’s a hidden talent, a fun tradition, or an exciting journey, don’t hold back—share it all with us! Feel free to send in any special memories, stories, or snapshots of your favorite moments. Plus, when you share your photos, you might just see them featured during our livestream at the Myositis Empower Walk! 🔗https://ow.ly/ljCK50TL8oS 🔗https://lnkd.in/eAQ6Gyxh 🔗https://lnkd.in/egKy6srt Thank you for being such an integral part of our community. We can’t wait to learn more about the amazing person behind your support! 💙✨ #MyositisEmpowerWalk #CommunityConnection #ShareYourStory #MSU #DonateNow

🌟 Introducing Myositis Cancer Support Our New Quarterly Support Group! 🌟 We are excited to announce a special support group dedicated to myositis patients who are currently battling cancer or are survivors. This new initiative aims to create a safe and nurturing space where individuals can share their experiences, find comfort in community, and share resources that empower their journey. Starting on October 16th, we invite you to join us on Zoom for our inaugural session. This support group will not only focus on the challenges faced by those navigating life with both myositis and cancer, but also foster connections that uplift and inspire. Your journey matters, and we believe that together we can cultivate resilience, strength, and hope. Whether you're seeking advice, encouragement, or simply a listening ear, this group is here for you. Please mark your calendars and join us in building a supportive community where every voice is valued. Together, we can embrace the path ahead with courage and compassion. 💙 Details: 📅 Start Date: Wednesday, October 16th ⏲️Time: 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT 🔗 Zoom: https://lnkd.in/enBbPjqY Thank you for being a part of our community, and we look forward to supporting one another in this journey. #Myositis #CancerSupport #Community #Empowerment #MSU #SupportStartsHere

🌟 Ready for a Myositis Empower Walk Game Night!** 🌟 Join us for a fun and engaging Game Night on Zoom sponsored by Priovant! This exciting event will take place on October 17th at 6 PM ET, hosted by our very own Jessica Taylor, Director of Operations for MSU, alongside Taryn Smith from Priovant. Get ready for a night filled with trivia, laughter, and connection as we enjoy a break from our myositis concerns and come together in a social setting. This game night is a fantastic lead-up to our 6th Annual Virtual Myositis Empower Walk on October 19th, starting at 4 PM, streaming online. Don’t miss this opportunity to have some fun and connect with fellow myositis warriors before the walk! 📅 Event Date: October 17th 🕕 Time: 6 PM ET / 5 PM CT / 4 PM MT / 3 PM PT 🌐 Zoom Link: https://lnkd.in/ejrqrKUS Mark your calendars, and get ready for an unforgettable evening! We can’t wait to see you there! 🎉💜 #MyositisEmpowerWalk #GameNight #MyositisSupport #Priovant #CommunityFun

🌟To Be Honest Tuesday! 🌟 MSU is dedicated to giving the Myositis community a platform to share and discuss the tough issues we face. Sometimes, living with myositis can be incredibly challenging, and we created To Be Honest Tuesday to address those hard and uncomfortable truths. At MSU, support comes from the heart. This segment offers an opportunity for myositis patients and care partners to openly express their feelings and experiences. Each week, we’ll feature a new member and their honest moment, fostering connection and understanding within our community. We believe in creating a safe and welcoming space where you can feel heard. Join us at our next support group—your story matters to us, and together we can create a powerful environment for growth and healing. Ready to share? Click the link below to record or write what you want to be honest about! 👉https://lnkd.in/e_VmgYmZ Let’s create a space where we support one another through the challenges we face. Together, we can strengthen our community! 💙 #ToBeHonestTuesday #MyositisSupport #Community #YourStoryMatters #MSU #SupportStartsHere

🌟 2024 Myositis Empower Walk!** 🌟 This year, we're excited to announce that the Myositis Empower Walk will be entirely virtual! Get ready to bring the Olympic spirit to your own neighborhood with a gold-medal experience! Although we won’t be gathering in person like in previous years, we’re igniting the torch of celebration in a fun and innovative way—right from your own community. Expect plenty of exciting opportunities to engage with our sponsors and connect with the Landmans! Stay tuned for more details on how you can participate and embrace the spirit of unity and strength. Together, we can make this event a wonderful celebration of our myositis community! 💪✨ #MyositisEmpowerWalk #VirtualEvent #CommunityStrength #DonateNow