NEALS Consortium

Excited to welcome colleagues from across the ALS research and drug development community to the NEALS Workshop on Advancing ALS Clinical Trials as we dive into key topics shaping the future of ALS clinical trials: preclinical research, biomarkers, trial design, statistics, and outcome measures. This workshop is all about collaboration—fostering open dialogue between industry leaders, researchers, and clinicians. These discussions are key pieces in accelerating meaningful treatments for people living with ALS. Looking forward to the insights and momentum that come from today’s conversations! #ALSResearch #ClinicalTrials #NEALS

🚴♂️ NEALS' very own Communications & Outreach Coordinator Christina Smith, is taking on the NEALS 30th Anniversary Ride! 🗣 In Her Own Words: "ALS is a devastating disease with no cure—but research is our best hope. I’m cycling from Pittsburgh, PA, to Washington, D.C. in 5 days to raise funds for NEALS & ALS research. If you’d like to support my ride, please donate! It’s my goal to raise as much as I can for this incredible cause, and any contribution is so appreciated—thoughts, prayers & general biking tips also welcome!" --- 🔗 Support Christina by spreading the word, or contributing to her fundraising efforts here: https://lnkd.in/eVfiJMCn 🔗 Learn more about the ride here: https://lnkd.in/e3tqEA9T

If you’re attending the MDA Clinical & Scientific Conference, be sure to check out NEALS Abstract P286! Stop by to connect with us and learn more our consortium. #NEALS #MDAconference #ALSResearch #ClinicalTrials

🚴♂️ NEALS Co-Founder and former Co-Chair, Jeremy Shefner is taking on the NEALS 30th Anniversary Ride! 🗣 In His Own Words: "As a NEALS cofounder and former co-chair, I'm incredibly excited to celebrate the 30th anniversary of this amazing organization. What better way to celebrate than with a bike ride! Money raised from this ride will go to NEALS to benefit education programs as well as support the NEALS clinical trials infrastructure. Will you join with me by making a tax-deductible donation? It’s fast and easy to do, and many will benefit from your generosity." --- 🔗 Support Jeremy by spreading the word, or contributing to his fundraising efforts here: https://lnkd.in/eUJ-4xC2 🔗 Learn more about the ride here: https://lnkd.in/e3tqEA9T

⏳ Don't miss out – registration is open through this Friday March 14! The NEALS Workshop on Advancing ALS Clinical Trials is next week! https://lnkd.in/e5Xkzvfs Led by NEALS Co-Chairs Jinsy Andrews, MD, MSc, FAAN, and James Berry, MD, MPH, this workshop will bring together 100 participants, including industry representatives from 33 companies, along with leading researchers and clinicians in a collaborative setting. Together, we’ll dive into biomarkers, trial design, and the path to human trials. 🎤 Featured Speakers: - Jinsy Andrews, MD, MSc, FAAN (NEALS Co-Chair) - James Berry, MD, MPH (NEALS Co-Chair) - Asa Abeliovich (Leal Therapeutics) - Senda Ajroud-Driss (Northwestern University) - Lauren E. Black (Charles River Laboratories) - Robert P. Bowser, Ph.D. (Barrow Neurological Institute) - Sheena Chew (Biogen) - Lori Chibnik (Mass General Biostatistics) - Joshua Cohen (Amylyx Pharmaceuticals) - Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Department of Neurology) - Erin Fleming (ProJenX) - Stephanie Melillo Fradette (Biogen) - Lauren Kett (Amylyx Pharmaceuticals) - Clotilde Lagier Tourenne (Mass General Hospital) - Eric Macklin (Mass General Biostatistics) - Nicholas Maragakis (The Johns Hopkins University School of Medicine) - Ram Miller MD MBA FRCPC (Novartis) - Piera Pasinelli (Thomas Jefferson University) - Melanie Quintana (Berry Consultants, LLC) - Bernard Ravina (Atlas Venture) - Jeffrey Rothstein (The Johns Hopkins University School of Medicine) - Jeremy Shefner (Barrow Neurological Institute) - Zachary Simmons (Penn State Health) - Peng Sun (Biogen) - Jianing Jenny W. (Mass General Biostatistics) Join us for this opportunity to connect and contribute to the future of ALS clinical research! #ALSResearch #ClinicalTrials #NEALS #Biopharma

Our co-chair, Jinsy Andrews, MD, MSc, FAAN, shared insights at the 25th Packard Symposium on the ALS pipeline, funding, advocacy, and the impact of #NEALS in #ClinicalTrials. Grateful to the Robert Packard Center for ALS Research at Johns Hopkins for the opportunity to be part of these important conversations shaping the future of #ALSResearch!

ALS Clinical Research Learning Institute (CRLI) The ALS Hope Foundation will be offering a special educational opportunity, the ALS Clinical Research Learning Institute (CRLI®), on May 2-3, 2025. The CRLI is an intensive 2 day program dedicated to educating attendees on the clinical research process, therapy development, the treatment landscape and advocacy in order to empower this group to be advocates for ALS clinical research. This program was conceived by Dr. Richard Bedlack through collaboration with the Northeast ALS (NEALS) Consortium including 5 previous Philadelphia programs through the ALS Hope Foundation. People living with ALS along with their caregivers are invited to participate in this program and graduate as "Research Ambassadors" and ALS advocates. People living with ALS (PALS), Caregivers of people with ALS (CALS), and surviving family members are encouraged to apply. All PALS are invited to attend with one caregiver. If interested, contact: Jamey Piggott jamey@alshopefoundation.org. https://lnkd.in/gKXxtZF8

We are thrilled to welcome Dr. Kelly Gwathmey, Dr Shafeeq Ladha, and Dr. Björn Oskarsson, MD, FAAN to the NEALS Executive Committee as Investigator Members! Their expertise and leadership will be invaluable as we continue our mission to advance ALS research and foster innovation. We would like to thank the following outgoing Executive Committee members for their service: Dr. Matt Harms, Dr. Sabrina Paganoni, and Dr. Zachary Simmons. We have been fortunate to have such a dedicated and skilled group of members as a part of our Leadership team, and we look forward to their ongoing collaboration. #NEALS #ALSResearch #ClinicalTrials

The HEALEY ALS Platform Trial, a NEALS-affiliated trial, is revolutionizing ALS research by testing multiple treatments efficiently under a shared infrastructure. This innovative approach accelerates progress and optimizes resources to advance potential therapies. #ALSResearch #ClinicalTrials #HealeyHope #NEALS

NEALS is marking 30 years of growth! Over the past three decades, we’ve strengthened collaborations to further ALS research. As we reflect on this journey, we’re excited to share a special teaser video that highlights who we are today and how we’ve grown with the help of researchers, clinicians, patients, caregivers, advocates, industry, and foundation partners. Stay tuned for the full version, which will be unveiled later this year and at the Annual NEALS Meeting! #ClinicalTrials #NEALS #NEALSMtg #ALSResearch