Propionic Acidemia Foundation

Feel free to reach out with questions, comments, stories, etc... Don't forget to update your contact information if you have moved. #stayinformed #propionicacidemia #raredisease #organicacidemia

Please share with anyone that may be interested. Carolina Galaretta and Jennifer Myles from NIH will be presenting on Propionic Acidemia in Spanish. Email paf@pafoundation.com to register.

Metabolic Supply Update Due To Tornado Damage To Reckitt / Mead Johnson Nutrition Warehouse. Please check out the link to the letter from Mead Johnson. https://lnkd.in/ghKxYDFU

"We sincerely thank the support from PAF. Without the grant, our research on PA would not have been possible." - Guofang PAF is grateful to all of our donors for making this and all of the research we fund possible in our efforts to find better treatments and a cure for PA. The article can be found on https://lnkd.in/gKMBZad7 We are incredibly grateful to our researchers for helping move research forward. Our next grant deadline is October 1, 2024. Feel free to reach out with questions. #makingadifference #propionicacidemia #propionicacidemiafoundation #searching4acure #organicacidemia #raredisease

#NARDS kicks off strong with the session 'Thriving Through Diagnostic Uncertainty: Collaborations to Overcome Isolation and Stress in Rare Disease Journeys,' featuring invaluable insights from key stakeholders involved in this important topic: 👉 Frank Rivera, President, Sarcoidosis of Long Island 👉Barbara Van Hare, President, Pattern.org & Board Member, Rare Cancer Research Foundation 👉Jill Chertow, President, Propionic Acidemia Foundation 👉Megan Nolan, CEO, Editor-in-Chief & Rare Mom, Rare Parenting Couldn't make it to Chicago? Stay tuned for insights and updates! Ultragenyx | Thrivewell Infusion, LLC | Novartis | Sanofi. #bamberghealth #RDSseries #raredisease #rds #rareconditions

Looking forward to presenting this morning on “Thriving through diagnostic uncertainty: Collaborations to overcome isolation and Stress in rare disease journeys.” Thrilled that PAF is an institutional partner at the North America Rare Disease Summit 2024. #raredisease #propionicacidemia #OrganicAcidemia #NARDS

Wishing everyone a Happy 4th of July.

Check out the recent research update from Pawel Swietach, University of Oxford. Thank you to all of our researchers and donors that help move finding better treatments and a cure for propionic acidemia forward. https://lnkd.in/gk-Ck2NJ #propionicacidemia #bettertreatments #organicacidemia #research #raredisease

Happy Father's Day to all the amazing dads in the PA community and dads everywhere! You are truly inspiring. Thank you for everything you do. #propionicacidemia #organicacidemia #raredisease #fathersday #superhero

An easy way to remember offending amino acids for those with propionic acidemia.