Schizophrenia & Psychosis Action Alliance

We’re thrilled to announce that the HealthWell Foundation, a charitable organization that provides financial assistance to underinsured people in the U.S., has launched a new fund to help people with #schizophrenia who are enrolled in Medicare. The fund will provide up to $4K to help with medication copayments or insurance premiums to eligible people with household incomes up to 500 percent of the federal poverty level. We applaud HealthWell for recognizing the obstacles our community faces and offering this support to ease their recovery journey. Learn more here: https://lnkd.in/gZ_ZVe77

We’re thrilled to announce that the HealthWell Foundation, a charitable organization that provides financial assistance to underinsured people in the U.S., has launched a new fund to help people with schizophrenia who are enrolled in Medicare. The fund will provide up to $4K to help with medication copayments or insurance premiums to eligible people with household incomes up to 500 percent of the federal poverty level. We applaud HealthWell for recognizing the obstacles our community faces and offering this support to ease their recovery journey. Learn more here: https://lnkd.in/gZ_ZVe77

To our wonderful caregiver community: Have you submitted your story yet for our “In the Name of Love” campaign? The deadline is this Friday, Oct. 25. It’s easy and only takes a few minutes – just click here: https://bit.ly/47pbTqD. What challenges you most? What gets you through the tough days? What warms your heart? Your story may be just what a fellow caregiver needs to hear. ❤️

📣📣📣Caregivers: The deadline to submit your stories for our "In the Name of Love" campaign is next Friday, Oct. 25! If you haven’t submitted your thoughts yet, it’s easy and only takes a few minutes – just click here: https://bit.ly/47pbTqD. What drives you as you begin each day, knowing it will involve a lot of juggling and more than a little patience? What challenges you most as you support and advocate for your loved one with schizophrenia? What brings you moments of happiness – those moments when you remember how much your support means to your loved one? Starting Nov. 1 and throughout National Family Caregivers Month, we’ll feature your stories of challenge, love and hope -- In the Name of Love. Thank you to those who have already submitted your beautiful narratives! We can’t wait to hear from you.

About 1 in 4 people who take antipsychotic medicine may develop tardive dyskinesia (TD) – yet only 15% of people with TD are formally diagnosed. TD impairs people’s ability to perform daily activities and can lead to added physical and psychological issues for people with schizophrenia and related diseases. The good news is that it can be treated. If you or someone you love takes antipsychotic medicine, you may be eligible for an educational study about TD. Learn more: https://bit.ly/4gRnTFy

Caregivers: What drives you as you begin each day, knowing it will involve a lot of juggling and more than a little patience? What challenges you most as you support and advocate for your loved one with #schizophrenia? What brings you moments of happiness – those moments when you remember how much your support means to your loved one?   Please share these stories with us! Starting Nov. 1 and throughout National Family Caregivers Month, we’ll feature your stories of challenge, love and hope -- In the Name of Love. Thank you to those who have already submitted your beautiful narratives! If you haven’t submitted your thoughts yet, it’s easy and only takes a few minutes – just click here: https://bit.ly/47pbTqD.   All stories must be submitted by Friday, Oct. 25 to be included on our special In the Name of Love website page. We can’t wait to hear from you!

Being diagnosed with schizophrenia can be overwhelming, and make us feel unequipped to deal with this complex brain disease. But today we launch I’m Diagnosed. Now What? – a new toolkit for those diagnosed with schizophrenia. It’s designed to be a helping hand, covering everything from what schizophrenia is (and is not) to how it’s treated, what support services are available and where to turn for guidance as you map out a path to reclaim your life and someday, recover. Caregivers: Please share with your loved ones! Even those living with schizophrenia for years will find something useful. Download it here: https://bit.ly/4ez19ZD. This resource has been a labor of love, and was created with a deep understanding of the needs of our community. After downloading it, please consider a donation to help us continue to provide resources to help those on the pathway to recovery – one filled with hope, purpose and connection: https://lnkd.in/e6byUNF

📣📣📣Attention caregivers! This November we are celebrating YOU – In the Name of Love. Our new campaign will tell your stories of caregiving and share them with the world throughout National Family Caregivers Month. Please SHARE YOUR STORY with us – we want to hear about what you hope for and what sustains you on you and your loved one’s journey. Click here to submit your story: https://bit.ly/47pbTqD.   In November, we’ll feature your stories on our website and social media channels and encourage everyone to share them far and wide. Because you and your loved ones are the reason we work to shatter the barriers to treatment, recovery and survival for all who live with schizophrenia. 

Do you know about tardive dyskinesia (also known as TD)? About 1 in 4 people who take antipsychotic medicine may develop TD, which can cause a range of repetitive unwanted, uncontrollable body movements in the face, hands, feet or upper body. But many people don’t know about it and don’t realize it can be treated. If you or someone you love takes antipsychotic medicine, you may be eligible for an educational study about TD. Learn more: https://bit.ly/4gRnTFy

Please watch and share this video of our CEO, Gordon Lavigne, as he discusses the significance of yesterday’s FDA approval of the first truly new schizophrenia drug in decades – and the need for continued innovation in treatments for this severe brain disease. We are proud of our leadership role in amplifying the voice of the schizophrenia community for drug developers and regulators, working to ensure they understand what people living with schizophrenia consider to be meaningful treatment benefits and how we want to be involved in the drug development process. Today, we celebrate with all of you as we work together to shatter the barriers to treatment, survival and recovery for people with schizophrenia!