Sjögren’s Foundation

According to our 2021 Living with Sjögren's Patient Survey, 94% of Sjögren's patients have been diagnosed by a health care provider with Dry Eye and 78% of Sjögren’s patients say Dry Eye has had a Major/Moderate impact on their life. The Sjögren's Foundation would like to invite you to attend our 2024 Virtual Fall Focus Conference: Looking Deeper into Ocular Manifestations of Sjögren’s Disease. Sjögren’s patients know all too well about that dry, gritty, sand-in-your-eyes feeling. Dry eye is stated to be one of the greatest daily challenges of living with this disease. . Without healthy tear production and lubrication, eye damage can occur, affecting comfort and sight. Whether your dry eye symptoms are mild or severe, understanding proper care and management is critical. This virtual conference will give you the information you need to care for your eyes at every stage. Each conference session will be delivered live in a virtual format by Sjögren’s experts in ocular medicine, who are committed to researching and understanding the complexities of Ocular Surface Disease in Sjögren’s patients. After each clinical presentation, you will be able to present your questions at a live Q&A! Click the link below for more information and to register: https://buff.ly/3UvMQxw #Sjögrens #Sjogrens #SjögrensDisease #SjogrensDisease #SjögrensSyndrome #SjogrensSyndrome

New Blog Alert: The Glymphatic System and its Potential Role in Sjögren's In honor of Dysautonomia Awareness Month, we are highlighting a new and trending area of research that could potentially explain some cognitive and fatigue symptoms in relation to dysautonomia in Sjögren's. In this blog, Dr. Brent Goodman describes the Glymphatic System and its role in nervous system diseases. Click the link below to read more: https://buff.ly/4eO8XX4 #Sjögrens #Sjogrens #SjögrensDisease #SjogrensDisease #SjögrensSyndrome #SjogrensSyndrome #Dysautonomia

Registration is OPEN for the 2024 Virtual Fall Focus Conference: Looking Deeper into Ocular Manifestations of Sjögren’s Disease Sjögren’s patients know all too well about that dry, gritty, sand-in-your-eyes feeling. Dry eyes affect 95% of Sjögren’s patients and is stated to be one of the greatest daily challenges of living with this disease. Without healthy tear production and lubrication, eye damage can occur, affecting comfort and sight. Whether your dry eye symptoms are mild or severe, understanding proper care and management is critical. This virtual conference will give you the information you need to care for your eyes at every stage. Each conference session will be delivered live in a virtual format by Sjögren’s experts in ocular medicine, who are committed to researching and understanding the complexities of Ocular Surface Disease in Sjögren’s patients. After each clinical presentation, you will be able to present your questions at a live Q&A! Topics to be covered include: - Foundational Overview of Sjögren’s Effect on the Eye - What to Expect in a Comprehensive Eye Examination - An Explanation of Medications Available for Dry Eyes in Sjögren’s - Understanding how Sjögren’s patients may experience eye pain differently - Ocular Interventions available for Sjögren’s Patients - Surgical Considerations for Sjögren’s Eyes - Exciting Research Currently Happening for Sjögren’s Dry Eye! Click the link below for more information and to register: https://buff.ly/4eYX1lr #Sjögrens #Sjogrens #SjögrensDisease #SjogrensDisease #SjögrensSyndrome #SjogrensSyndrome #DryEye

NEWS ALERT: Research links Xylitol and Cardiovascular issues – What Sjögren’s Patients should understand! You might be aware of a recent study in the media on xylitol and cardiovascular (CV) risks that have you questioning your use of the many oral health products containing xylitol and that you’re using to treat your dry mouth due to Sjögren’s. As soon as this study was released, the Sjögren’s Foundation started talking to our top experts to obtain their input, and we are and will stay on top of this issue! Click the link below to read more: https://buff.ly/3LAzzOu #Sjögrens #Sjogrens #SjögrensDisease #SjogrensDisease #SjögrensSyndrome #SjogrensSyndrome #Xylitol

Today is World Sjögren's Day! This day gives everyone touched by Sjögren's an opportunity to use thier voice to reach out and educate those close to them. It is also a chance to further Sjögren's research, education, and advocacy by making a donation. In honor of our 40th anniversary, Amgen has pledged a dollar-for-dollar match this year up to $40,000! Thanks to their generosity, your gift will have DOUBLE the impact. This World Sjögren's Day, use your voice to tell your story, make a donation, and help us conquer Sjögren's together! Click the link below to donate: https://buff.ly/4fh5hhp #WorldSjögrensDay #WorldSjogrensDay #Sjögrens #Sjogrens #SjögrensDisease #SjogrensDisease #SjögrensSyndrome #SjogrensSyndrome

Celebrate World Sjögren's Day July 23rd. World Sjögren's Day was created by the Sjögren's Foundation to raise much needed awareness and funds for Sjögren's. It is marked every year on July 23rd, the birthday of Dr. Henrik Sjögren, the Swedish ophthalmologist who discovered Sjögren's. The Foundation is joined by organizations around the world to draw attention to Sjögren's and the disease's impact on millions of patients. Funds raised are used to help further critical Sjögren's research, adocacy, and awareness. In honor of our 40th Anniversary, Amgen will match all donations up to $40,000. World Sjögren's Day is meant to put a face on the millions of people who live with this disease or suffer from symptoms and have yet to be diagnosed. It gives everyone touched by Sjögren's a vehicle to reach out and educate those close to them - family, friends, co-workers, neighbors, etc. - about the disease. It is the ideal opportunity for you to have your voice heard and to spread awareness about this life-altering disease. Leading up to World Sjögren's Day and especially on the day itself, talk about Sjögren’s with the people in your life. Share your story and educate others! By doing so, you are helping spread the message that Sjögren's is a serious disease that deserves to be recognized. You may also be helping someone who is looking for answers to their own questions. For more information click the link below: https://buff.ly/3XNEQtq

This week, the Sjögren’s Foundation will attend the 16th annual International Symposium for Sjögren’s Disease (ISSjD) in Amsterdam, Holland. ISSjD will host world renowned experts and is themed “Looking Forward”, which will focus on new research, diagnostic tools, and cross-disciplinary collaboration. For more information click the link below: https://buff.ly/3Jxkpsx #Sjögrens #Sjogrens #SjögrensSyndrome #SjogrensSyndrome #ISSjD2024 #ISSjD

New Session Alert! Join us for a special live chat session on Friday, April 5th at 3:40-4:50pm (ET)! In this special session, individuals attending the live conference will have an opportunity to join our Chat With a Doc session and ask Rheumatologist Dr. Donald Thomas questions about Sjögren’s. This is not a personal medical session, and no private medical advice will be given. However, we know so many patients don’t have access to Sjögren’s experts and Dr. Thomas has graciously agreed to join us for this Q & A opportunity! Dr. Thomas will be selecting questions he knows may not be covered by other speakers, so we encourage you to read through all presentations before crafting your question, as they may be covered by presenters in our conference sessions. This is your opportunity to ask Dr. Thomas about Sjögren’s and how the disease may present differently in patients. Join us live on Friday, April 5th to chat with Dr. Thomas! Click the link below to register: https://buff.ly/3UvMQxw #Sjögrens #Sjogrens #SjögrensSyndrome #SjogrensSyndrome

View the Foundation's most recent blog: Action Alert! Oral Health Initiatives in Sjögren's (2024) Click Here to Read: https://buff.ly/3IM6D4O #Sjögrens #Sjogrens #SjögrensSyndrome #SjogrensSyndrome

Thank you Representative Morelle for presenting the Resolution designating April as Sjögren’s Awareness Month and helping us correct the misinformation about this serious and systemic autoimmune disease! You support is incredibly meaningful to the 4 million US citizens affected by Sjögren’s! #Sjögrens #Sjogrens #SjögrensSyndrome #SjogrensSyndrome