TANGO2 Research Foundation

🎃✨ Meet TANGO2 Warrior, Katie! ✨🎃 Check out Katie rocking her Nightmare Before Christmas-inspired costume, posing next to a giant Jack Skellington! 🎃👻 Katie embodies the spirit of living life to the fullest, and her joy is contagious! She loves bowling, playing basketball, DJ-ing, and so much more. 🎳🏀🎶 Her parents shared, “We still don’t really know what this diagnosis means for us and for Katie, but we’ve found hope in knowing that we’re not alone.” 💙 This journey can be overwhelming, but the strength and support of the TANGO2 community bring light to even the most uncertain moments. Katie’s story is a reminder that, despite the challenges of TANGO2 Deficiency Disorder, there’s always room for fun, laughter, and hope. 💫 Want to be inspired? Read more about Katie and other incredible TANGO2 Warriors by clicking the link in our bio. Together, we’re building a community of resilience and support, and we’ll keep pushing forward—one step at a time. 💪 #TANGO2ResearchFoundation #TANGO2Warrior #TANGO2Community #RareDiseases

Did you know that TANGO2 is actually a gene? It is responsible for performing a very specific job in the body. The acronym that it stands for - Transport And Golgi Organization. Find out more by visiting our website. #TANGO2researchfoundation #TANGO2disease #RareDiseases

🎉 Support the TANGO2 Research Foundation and Raise Awareness! 🎉 Looking for a way to make a difference and look great doing it? Shop our exclusive TANGO2 campaign shirts and mugs on Bonfire! Each purchase not only helps raise awareness for TANGO2 Deficiency Disorder, but a portion of every sale also goes directly back to the Foundation to support our vital research efforts. 💪💙 👉 Ready to shop? Head to our website to browse our collection and show your support in style: https://bit.ly/4dHC8dx But that’s not all! Want to fundraise for the TANGO2 Research Foundation yourself? You can even create and sell your own custom shirts for your personal TANGO2 fundraiser on Bonfire! Get creative and make an even bigger impact for our community. 🌟 Every purchase and fundraiser helps move us closer to finding better treatments and, one day, a cure. Thank you for being part of the TANGO2 community—together, we are making a difference! #TANGO2ResearchFoundation #TANGO2Merch #TANGO2Community #ShopForACause

Monoclonal antibodies are a special type of antibody made in a laboratory. The word “monoclonal” refers to the fact that the antibodies created in the laboratory are clones. They are exact copies of one antibody. These antibodies can be used for diagnosis and disease treatments for a wide range of conditions, such as autoimmune disorders, nervous system disorders, infections, and cancer. Monoclonal antibodies can also be used for research purposes in a variety of ways. They allow researchers to study where a protein is found in a cell and what other proteins it may interact with. 👉Read more on our blog! https://bit.ly/3QMtrpo #TANGO2researchfoundation

Thanks to our generous donors, we are funding more research in 2025! The TANGO2 Research Foundation is excited to announce the opening of Grant Cycle Five, offering funding for seed or pilot research projects. These grants support initial research phases, enabling researchers to explore innovative ideas and refine methodologies. We seek to fund rigorous, high-quality research studies in efforts to fulfill our foundation’s mission enthusiastically. Clinical, basic, or community researcher with a terminal degree (MD, DO, Ph.D., NP, or international equivalent) working in an academic medical institution or nonprofit/research institution U.S. and international researchers are welcome to apply. LOI due on November 8th. To learn more, visit: https://bit.ly/3NbQk3E #TANGO2ResearchFoundation #TANGO2community

🎉 A huge Happy Birthday to the incredible Tyler, our TANGO2 Warrior from Endicott, New York! 🎉 Today, Tyler is celebrating his 25th birthday—a quarter-century of courage, strength, and positivity! 🥳🎂 Tyler, your resilience, determination, and warm heart inspire everyone around you, and we are so lucky to have you as part of our TANGO2 family. 💪💙 Let’s make Tyler’s day extra special! Join us in showering him with love and birthday wishes by leaving a message in the comments below! 👇🎈 Tyler, we hope your day is filled with joy, laughter, and everything that brings you happiness! Here’s to an amazing year ahead and all the adventures waiting for you! 🎁🎉 #BirthdayClub #TANGO2ResearchFoundation #TANGO2Warrior

📅 Save the Date: November 22nd! 📅 We’re excited to invite you to Part 3 of our four-part virtual workshop series, focusing on key strategies for meaningful engagement in TANGO2 research. This is your chance to be part of a powerful conversation that puts patients at the heart of future research for TANGO2 Deficiency Disorder (TDD). In this workshop, we’ll continue refining the research priorities that were established in Workshop 1, drawing on examples of patient-centered research from other rare diseases. Our goal? To ensure that TDD research truly reflects the needs and experiences of our TANGO2 warriors and their families. Don’t miss this incredible opportunity to engage with clinicians, researchers, stakeholders, and fellow family members—all working together to make a lasting impact on the lives of those affected by TDD. 📲 Register now to join the conversation and help shape the future of TANGO2 research: https://bit.ly/3YbcwB6 Let’s ensure that our community’s voice is heard loud and clear in the development of research that matters most. We need YOU to help us build a brighter future for our TANGO2 warriors. 💪✨ #TANGO2ResearchFoundation #TANGO2Community #RareDisease #PatientCenteredResearch #TANGO2Warriors

🌍✨ Ready to be part of something groundbreaking? The global TANGO2 community is calling, and you don’t want to miss out! 🌟 Our TANGO2 Deficiency Disorder Research Learning Network is your exclusive portal to connect with researchers, clinicians, and families from across the globe—all working together to push TANGO2 research forward. With support from the Patient-Centered Outcomes Research Institute (PCORI), this isn’t just another online forum. It’s a dynamic hub for collaboration, game-changing ideas, and cutting-edge discoveries. Dive into discussions about the latest TANGO2 treatments, learn about optimal B Vitamin dosages, and explore symptom management strategies that could make all the difference. Whether you're passionate about contributing your unique insights, eager to learn from top experts, or simply want to stay on the front lines of TANGO2 advancements, this Learning Network is your ultimate resource. 💡 The best part? It’s free, and YOU can be part of it! Don’t let this opportunity pass you by—join the community shaping the future of TANGO2 care and research. 🌟 FOMO is real! Start connecting, collaborating, and contributing to the future of TANGO2 research today. Sign up for your free account now and help drive the breakthroughs that matter most. 🔗 Join the conversation now: https://bit.ly/3SLMp0G #TANGO2ResearchFoundation #TANGO2Community #RareDisease #TANGO2Disease #JoinTheMovement

🎃✨ Meet 20-year-old Anna, a brave TANGO2 Warrior from Sydney, Australia, all dressed up as Princess Peach for Halloween! 👑🍑 Anna’s journey with TANGO2 Deficiency Disorder began with her diagnosis in 2019—and shortly after, her brother Giuseppe was diagnosed with the same rare disease. Their father, Frank, shares the deep emotional reality of raising two children impacted by TANGO2: "Even though they both presented so differently from birth and have continued to be different throughout their lives, they share the same mutation. Neither can shed light on the other, and yet they are siblings. We do the same for both, and they react differently. They lead different paths but face the same battle. It is so confusing how this disease works. As painful as it is to witness the impact it has had on my kids and family, I know I have no choice but to learn more about it. We all need to learn more about it." Frank’s words remind us all how complex and unpredictable TANGO2 can be, but also how vital it is that we come together as a community to learn, support, and push forward. 💙 Anna’s strength and her family’s resilience fuel our fight for a better understanding of this rare disease. Together, we can make a difference—and together, we will continue to raise awareness, fund research, and support families like Anna’s who are living this battle every day. 👉 Tap the link in our bio to read more stories from TANGO2 families and learn how you can help make an impact. #TANGO2researchfoundation #TANGO2warrior #TANGO2Community #RareDiseaseAwareness

Don't forget! 🤞 Stay informed and never miss any of the important updates from the TANGO2 Research Foundation by joining our email list! 📨 Join now here: https://bit.ly/3XnR6ya #TANGO2researchfoundation #TANGO2 #RareDisease