What a great opportunity to share the good news about how the Wilson Disease Association helps people with this rare #liverdisease! As a former CNN medical correspondent I appreciate the excellent scripting and production value of Behind the Mystery and The Balancing Act. Talking with co-hosts @Montel Williams and Olga Villaverde makes it easy! Thank you Orphalan for making it all possible and for its commitment to helping #Wilsondisease patients live their best quality of life possible.
Dr. Naseem Amin, CEO of Orphalan, recognized the need for investment and research in Wilson disease treatment. This led to the development of CUVRIOR (R) (trientine tetrahydrochloride), the only FDA-approved therapy in Wilson Disease in nearly 30 years.
This treatment offers twice-daily dosing and a non-refrigerated option for long-term maintenance.
Watch the full story on TheBalancingAct.com/rare
INDICATION
CUVRIOR is a copper chelator indicated for the treatment of adult patients with stable Wilson Disease who are de-coppered and tolerant to penicillamine.
IMPORTANT SAFETY INFORMATION
· Do not use CUVRIOR if you are allergic to trientine or to any of the ingredients in CUVRIOR.
· Your Wilson’s Disease symptoms could get worse when you start treatment. This could happen because too much copper is removed from the body in a short period of time. Your doctor may need to reduce your dose or stop CUVRIOR treatment.
· Copper deficiency may develop following treatment with CUVRIOR. Your doctor will do tests to monitor your urine and blood for copper.
· Iron deficiency may develop while taking CUVRIOR. If this happens, your doctor may tell you to take iron supplements for a limited time.
· Allergic reactions, such as a rash, have been reported with trientine, the active ingredient in CUVRIOR. If a rash or other allergic reaction occurs, stop taking CUVRIOR and get emergency medical help.
· The most common side effects are pain in the abdomen, change in bowel habits, rash, hair loss (alopecia), and mood swings.
Take CUVRIOR at least 1 hour apart from any other oral medicine. Tell your doctor about all the medicines you're taking, including over-the-counter medicines, vitamins, and herbal supplements. Avoid taking supplements when taking CUVRIOR. Taking CUVRIOR with mineral supplements (e.g., iron, zinc, calcium, magnesium) can reduce the effectiveness of CUVRIOR. If iron supplementation is necessary, take CUVRIOR at least 2 hours before or 2 hours after taking iron; for other mineral supplements (e.g., zinc, calcium, magnesium), take CUVRIOR at least 1 hour before or 2 hours after. Do not start or stop any medicines while taking CUVRIOR without talking to your doctor.
These are not all the possible side effects of CUVRIOR. You are encouraged to report negative side effects of prescription drugs. Contact Orphalan at 1-800-961-8320 or AdverseEventReporting@orphalan.com or FDA at 1-800-FDA-1088 or www.fda.gov/medwatch.
Please see full Prescribing Information at https://bit.ly/3LV8FRQ
*Sponsored by Orphalan*
#TheBalancingAct#BehindTheMystery#WilsonDisease#WilsonDiseaseAwareness#RareDisease#Orphalan#RareDiseaseAwareness
Tune in to go #BehindTheMystery of Wilson disease, a rare genetic disorder caused by a malfunctioning ATP7B gene that hinders copper elimination.
Hear from Mandy, a Wilson disease patient, as she shares her journey and how she found an effective medication and treatment plan.
Hepatologist, Dr. Cheung breaks down the complexities of Wilson disease, covering its genetic roots, symptoms, and the crucial need for early diagnosis, proper management, and consistent treatment.
Join us in the studio with Rhonda Rowland Wilson disease warrior and VP of Wilson Disease Association, and Dr. Nasseem Amin, CEO of Orphalan, to discuss advancements in Wilson disease treatment.
Join us tomorrow at 7:30 AM ET/PT on Lifetime TV.🧬
*Sponsored by Orphalan*
#TheBalancingAct#BehindTheMystery#WilsonDisease#WilsonDiseaseAwareness#RareDisease#Orphalan#RareDiseaseAwareness
🍎The world’s first deliciously sweet and crisp apple that’s naturally grown to be miniature. Rockit™ is packed with flavor, energy and nutrients, perfect for everything from lunchboxes to charcuterie boards.
Watch the full story on TheBalncingAct.com.
#TheBalancingAct#RockitApple#RockitEveryDay#ReadySetRockit
On this episode of The Balancing Act, we discuss proactive care in spinal cord stimulation as a treatment for the estimated 100 million adults in the US suffering from chronic pain.
The Prospera(TM) Spinal Cord Stimulation System from BIOTRONIK Neuro is the only system with automatic, daily, remote monitoring uniquely designed to relieve your chronic pain—and support you in embracing life again. With Embrace One, your therapy is monitored 7 days a week to ensure it’s working the best for you, allowing you to focus more on life.
Watch the full story on TheBalancingAct.com and learn more at EmbraceLifeAgain.com#TheBalancingAct#ChronicPain#SpinalCordStimulation#BIOTRONIKNeuro#EmbraceLifeAgain
Say hello to Montel Williams!💙 As we turn the page to a new chapter, we're excited to reintroduce the dynamic Montel Williams as one of our esteemed hosts.
Montel's charisma, expertise, and genuine connection with our audience make every episode a must-watch. Stay tuned for inspiring conversations, expert advice, and all that you need to balance your life!
✨ Meet Olga Villaverde!💕 As we embark on this exciting new chapter, we are thrilled to reintroduce our wonderful host, Olga! With her vibrant personality and passion for life, Olga brings warmth and wisdom to every episode.
Get ready for more heartwarming stories, insightful tips, and a whole lot of fun! Join Olga and Montel as we dive into new beginnings together. 🎉