United Mitochondrial Disease Foundation

Not having a diagnosis can be scary -- We're here to help. Talk to you doctor about our No-Cost Genetic Testing Program. Available tests are limited. Don't delay! Visit umdf.org/genetictesting

For our past, present, and future — DATA is so much MORE than facts and figures. It's the building blocks of patient-focused drug development. Add your voice to the worldwide patient registry for #mitochondrialdisease. Be a part of MORE. Join at umdf.org/mitoshare

Our dedicated group of accelerator donors -- who have given at least $500 in a year -- get to vote during our Big Pitch event every June for the postdoc #mito research project of their choice. Signing up for Hope Flies monthly gifts is a great way to achieve accelerator benefits. Starting now at $65 per month, you can be an accelerator by June 2025! Claim your vote for the best in #mitochondrialdisease research at umdf.org/hopeflies

51% of surveyed registrants in our patient registry mitoSHARE have reported abnormal eye movements related to their #mitochondrialdisease progression. Data like this makes all the difference to the #mito community. Share for #mitoawareness and #blindawareness on Blindness Awareness Month and always. Learn more about mitoSHARE here: https://lnkd.in/ggBFiJHu

In this month's Advocacy Update -- the FDA AdComm brings good news, plus the end of year legislation for the #mito community that we're watching. Read it all at https://lnkd.in/gjeEryQD

The easiest way to make a big difference for the #mito community -- fundraising from your social media! For your birthday or any milestone, choose the United Mitochondrial Disease Foundation from the list of charities to support on Instagram or Facebook. Show love, spread awareness, and #Give4Cures for #mitochondrialdisease. Choose UMDF Get started: https://lnkd.in/gjBY5pb9

A little teaser on who you can expect as our October Powerhouse Podcast feature -- a college athlete at the University of Northern Iowa, she has faced many challenges due to multiple mtDNA deletions, which have primarily impacted her eyesight. We're super excited to announce that Olivia Chambers, 2024 Gold and Silver Paralympic medalist, joins us to talk about her passion for swimming, her #mito diagnosis and life with #visionloss. Don't miss this POWERHOUSE -- the Episode drops next Wednesday, Oct 30! Stay tuned! [Visual description of video clip: Olivia Chambers is swimming in the final 20-meter stretch of the 400-meter Women’s Freestyle race at the 2024 Paralympics in Paris. In the pool, Olivia is outpacing her closest opponent, Carlotta Gilli, by an entire body length. She touches the wall first and clinches the gold medal. She yells “YES!," gives an excited fist punch into the air and comes back down for a signature slap to the water. Olivia blows a kiss and waves to her family watching in the stands. The camera moves in for a closeup.]

#EnergyForLife is coming to San Antonio this Saturday, Oct 26! There's still time to join us at TMI Episcopal and walk, roll, stroll, run and rucksack walk toward cures for the #mito community. We have #MoreEnergyTogether! Sign up today: https://lnkd.in/gzyp32Qq

If you haven't explored the wonderful exhibitors in our #NORDSummit Patient Advocacy Pavilion, go check them out! Thank you to these nonprofits and NORD #RareDisease Centers of Excellence for the work they do: Children's National Hospital Adrenal Insufficiency United Facial Pain Association Foundation for the National Institutes of Health Foundation to Fight H-abc HypoPARAthyroidism Association International Waldenstrom's Macroglobulinemia Foundation (IWMF) KBG Foundation Maternal Alloimmunization Foundation MitoAction National Cancer Institute (NCI) PALS SkyHope Platelet Disorder Support Association - PDSA Rosenau Family Research Foundation Triage Cancer United Leukodystrophy Foundation United Mitochondrial Disease Foundation Uplifting Athletes

Don't Forget! Join us for Ask the Mito Doc webinar this Wednesday, Oct 23 at 7pm ET -- "Connecting the Dots between #MitochondrialDiseases and other Ultra #Rare Diseases" with Andrea Gropman, MD and Bharatendu Chandra, MD. FREE but please Register: https://lnkd.in/ges__x_m