Tigerlily Foundation

Be sure to join us today at 12 PM ET for our Virtual Hill Day Series to discuss some of the unintended patient impacts of the Inflation Reduction Act (IRA) and ways we can address them to ensure equitable treatment and access to treatment for patients. Tigerlily Foundation, advocates, policy-makers and patient and provider stakeholder groups will come together to learn about the landscape of the Inflation Reduction Act (IRA), unintended policies that threaten access to lifesaving medicines, The Ensuring Pathways to Innovative Cures (EPIC) Act, the ORPHAN Cures Act and how YOU can raise your voice in the discussion. Register here: https://lnkd.in/drPjzqzb #CuresCantWait #HEALPolicy4Change

Join Tigerlily for our virtual Hill Day Series on November 7th where we will be discussing the Inflation Reduction Act and unintended consequences for patients, with a special message from Rep. Don Davis (NC-01). Learn about how YOU can help ensure timely access to treatments for patients and join us as we let congress know #CuresCantWait #HEALPolicy4Change Register here: https://lnkd.in/drPjzqzb

Don't forget to keep up with Tigerlily through our monthly newsletters! View our newsletters and sign up here: https://lnkd.in/dsUCMFvU

A recent survey from the PAN Foundation highlights significant interest in clinical trials among historically underrepresented groups, with 61% expressing a desire to participate. However, many people of color and members of the LGBTQIA+ population have never been approached by their healthcare providers about clinical trials. This gap between interest and invitation can prevent patients from making informed decisions about their healthcare. To address this gap, our friends at PAN have launched a new clinical trial education initiative, empowering patients with clear, unbiased information about clinical trials. Visit the site to find easy-to-understand resources, and tools to locate trials near you, and a clinical trial help line offering one on one support: https://lnkd.in/d5-Dd3hN.

Thank you to Maimah Karmo 🌸 and her amazing team at Tigerlily Foundation for hosting such an elegant affair at the Waldorf Astoria Washington DC 🎀 #breastcancereducation #breastcanceradvocacy

What an incredible night at the Empower ball on Saturday. A huge congratulations to our inspiring winners who embody strength, resilience, and hope! None of this would be possible without the visionary leadership of Maimah Karmo, whose dedication to patient advocacy through Tigerlily Foundation is truly transforming lives. To all the survivors and thrivers out there, know this: 𝒘𝒆 𝒔𝒆𝒆 𝒚𝒐𝒖, 𝒘𝒆 𝒄𝒆𝒍𝒆𝒃𝒓𝒂𝒕𝒆 𝒚𝒐𝒖, 𝒂𝒏𝒅 𝒘𝒆 𝒔𝒕𝒂𝒏𝒅 𝒘𝒊𝒕𝒉 𝒚𝒐𝒖 𝒆𝒗𝒆𝒓𝒚 𝒔𝒕𝒆𝒑 𝒐𝒇 𝒕𝒉𝒆 𝒘𝒂𝒚! By collaborating early with grassroots organizations like Tigerlily Foundation Diversity, Equity and Inclusion we can 𝐥𝐢𝐬𝐭𝐞𝐧 𝐜𝐥𝐨𝐬𝐞𝐫, 𝐚𝐜𝐭 𝐛𝐨𝐥𝐝𝐞𝐫, 𝐚𝐧𝐝 𝐥𝐞𝐚𝐫𝐧 𝐡𝐨𝐰 𝐭𝐨 𝐭𝐡𝐢𝐧𝐤 𝐝𝐢𝐟𝐟𝐞𝐫𝐞𝐧𝐭𝐥𝐲 to truly transform cancer care. Only together can we break down barriers and build a future where EVERY patient—no matter who they are or where they come from—has a fighting chance. 💥 Phylicia L Woods, Esq. Dr. Kim Felder Rhoads, MD, MS, MPH, FACS Gary Puckrein Sigourney Bonner Nadine Barrett, PhD, MA, MS Mandi Pratt-Chapman Pamela L. Barnes Rachael E. Liz Mahar Megan Wanzo, D., MS., HEC-C #patientdrivenscience #healthequity #equitablecare #BMSemployee

NEW DATE FOR OUR VIRTUAL HILL DAY SERIES! Tigerlily’s Women’s Health Day on the Hill is going virtual! Join us on November 7th, 2024 | 12 PM EST at the Virtual Hill Day Series to discuss some of the unintended patient impacts of the Inflation Reduction Act (IRA) and ways we can address them to ensure equitable treatment and access to treatment for patients. Tigerlily Foundation, advocates, policy-makers and patient and provider stakeholder groups will come together to learn about the landscape of the Inflation Reduction Act (IRA), unintended policies that threaten access to lifesaving medicines, The Ensuring Pathways to Innovative Cures (EPIC) Act, the ORPHAN Cures Act and how YOU can raise your voice in the discussion. Register here: https://lnkd.in/drPjzqzb #HEALPolicy4Change #CuresCantWait #BreastCancerAwarenessMonth #BCAM

What an HONOR it was to spend my day with the patient advocacy organization Tigerlily Foundation 2nd Annual BEACON Symposium where I spoke on the morning panel “Accelerating Access to Diverse #ClinicalTrials” with my fellow panelists + fierce leader of Tigerlily & moderator for the Symposium and rockstar Maimah Karmo! It was highly energetic and with heart-filled efforts! Following the Symposium was the Tigerlily Foundation’ Empower Gala which honored #breastcancer survivors, thrivers, and warriors, advocates + policy leaders. Thank you for all that you do for the patient community! #breastcancerawareness #clinicaltrials #diversityinclinicaltrials #policy #drugdevelopment #biomedicalresearch #healthequity Maimah Karmo Lizzie Cordova Wittig Christina Raia, MBA Irene Dankwa-Mullan MD MPH Gary Puckrein, Fmr U.S. Surgeon General @Dr. Regina Benjamin Kalahn Taylor-Clark, PhD, MPH Andrea Jenkins, MPH, LSSWB Jeanne M. Regnante

Thank you Jennifer Bires for sharing about our recent BEACON Symposium. We were honored to have you join us to discuss the critical role of Health Literacy in equitable healthcare access. Health literacy is about making information understandable for all. Together, we can create a more equitable healthcare system for everyone! https://lnkd.in/ddtB6d9F

Thank you to Bayer | Pharmaceuticals for supporting Tigerlily's #MYLIFEIsMyLgeacy video series and for their continued support this #BreastCancerAwarenessMonth!