We know that role clarity is vitally important when partnering with patients in research for two reasons. It improves the experience for everyone involved if they know up front what the expectations are, and it sets the groundwork for achieving better outcomes from the engagement. But how do you start working this out? This research paper provides a really interesting framework for having these conversations so everyone is on the same page. “Applying the Involvement Matrix before and during different phases of a project, has the potential to help researchers and patients to make clear agreements about research involvement and engagement of patients. The tool can be used prospectively, to discuss about possible roles of patients in different phases of projects, and retrospectively to discuss whether roles were carried out satisfactorily.” We recommend taking a read (and didn’t want to wait until the next CCReW newsletter to share it with you). Note, we have no affiliation with this paper. https://lnkd.in/eJq76Br #patientengagement #consumerinvolvement #research #clinicaltrials #CCReW #settingexpectations
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Consultant | Advocate | Clinical Trials | Patient Engagement in Research & Therapeutics Industry | Health Consumer Voice | Social Enterprise
An interesting tool for patient engagement in research projects.
We know that role clarity is vitally important when partnering with patients in research for two reasons. It improves the experience for everyone involved if they know up front what the expectations are, and it sets the groundwork for achieving better outcomes from the engagement. But how do you start working this out? This research paper provides a really interesting framework for having these conversations so everyone is on the same page. “Applying the Involvement Matrix before and during different phases of a project, has the potential to help researchers and patients to make clear agreements about research involvement and engagement of patients. The tool can be used prospectively, to discuss about possible roles of patients in different phases of projects, and retrospectively to discuss whether roles were carried out satisfactorily.” We recommend taking a read (and didn’t want to wait until the next CCReW newsletter to share it with you). Note, we have no affiliation with this paper. https://lnkd.in/eJq76Br #patientengagement #consumerinvolvement #research #clinicaltrials #CCReW #settingexpectations
Designing a tool to support patient and public involvement in research projects: the Involvement Matrix - Research Involvement and Engagement
researchinvolvement.biomedcentral.com
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This insights article explores the effectiveness of digital tools in clinical research and after the adoption of digital tools was accelerated by the COVID-19 pandemic. Read more: https://lnkd.in/exdXFVyt Mark Elliott, Sophie Clohessy PhD, Carla Toro, Theodoros Arvanitis #ClinicalResearch #DigitalTools #WMGinsights
The rapid adoption of using digital tools in clinical research: investigating the best practices and barriers in the post-COVID era
warwick.ac.uk
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🌟 Learn from Studypages’ experts Uzoma Ibe MD, and Koen De Lombaert MD MBA, how technology is personalizing participant interactions and enhancing diverse recruitment and retention in clinical trials, fostering more inclusive and engaging research experiences. Read more here: https://buff.ly/4e2FNmT #ClinicalTrials #ClinicalTrialDiversity #PatientEngagement #HealthEquity
Technology for Diverse Enrollment - Clinical Edge Issue 3
clinicaledge.xtalks.com
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🚀 Advancing Clinical Research Through Patient-Centric Approaches 🚀 In the evolving landscape of clinical research, patient-centric approaches have become paramount. Emphasizing the needs, preferences, and experiences of patients not only enhances their engagement and retention but also significantly improves the quality and relevance of research outcomes. ✨ Experience ✨ With 25 years of experience working with large healthcare organizations, Medovation Clinical Research’s Co-Founder & President, Kirstan Cecil, has deep knowledge of patient engagement and retention strategies. Her innovative approach to patient communication and unwavering passion for bringing the patient voice to the forefront have set a new standard in clinical research. Our partners experience firsthand the transformative impact of prioritizing patients. 📣 Strong Communications 📣 Effective communication is the cornerstone of any patient-centric approach. By ensuring transparent, empathetic, and consistent communication, we build trust and foster a collaborative environment where patients feel valued and informed throughout the research process. This all starts with engaging the full team and empowering them with the information to talk to patients in a way that creates excitement and interest in clinical research. 📊 Regular Surveys 📊 Implementing regular surveys is another crucial element. These surveys provide invaluable insights into patient experiences, preferences, and feedback, allowing us to make data-driven adjustments that enhance our processes, leading to higher patient satisfaction. By integrating these patient-centric strategies, we not only advance scientific knowledge but also ensure that the journey of every participant is respected and valued. Let's continue to innovate and put patients at the heart of our research efforts! #ClinicalResearch #PatientCentric #Innovation #Healthcare #ResearchExperience
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Principal Engineer : (the opinions expressed here are my own and I do not represent them to be those of any particular government agency, group, or organization.)
while much has been learned over the previous decades, we still do not understand well how the power dynamics of knowledge production inform evidence use, which forms of interaction between evidence users and producers are most productive, or the impact of evidence use on policy or patient outcomes. We argue that key dimensions for future enquiry include: understanding what evidence is and is not produced, who produces evidence, how evidence is framed, how evidence is incorporated into decision-making processes, and how all of these dimensions may be influenced by the types of problems policymakers and clinicians seek to solve. These are the outstanding questions for the field.
Three lessons from evidence-based medicine and policy: increase transparency, balance inputs and understand power - Humanities and Social Sciences Communications
nature.com
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The success of clinical trials depends on various factors beyond traditional clinical care—including SDOH like housing, health literacy, transportation, and social support. How can you use non-clinical data to improve recruitment, retention and evidence generation in clinical trials? Ryan Moog, Head of Life Sciences at Datavant, Thad Wolfram, President at EmVenio Research and Trenor Williams, CEO at Socially Determined, will be discussing this as well as: · Strategies to improve patient engagement throughout the trial lifecycle · Tools to connect disparate data assets for enhanced understanding of trial populations · A competitive edge in designing patient-centric clinical trials 📅 Wednesday, October 2nd 🕐 1pm ET Register here: https://lnkd.in/efi2_FSj #SDOH #ClinicalTrials #LifeSciences
Beyond clinical: Boosting recruitment and retention with SDOH data
pharmaphorum.com
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Developing a community-responsive research model in the healthcare system: a mixed-method study https://lnkd.in/dc6itg5Q Responsiveness to the population’s non-clinical needs encompasses various dimensions, including responsive research and an educational outreach plan at the community level. This study aims to develop a communi...
Developing a community-responsive research model in the healthcare system: a mixed-method study - BMC Medical Research Methodology
bmcmedresmethodol.biomedcentral.com
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🌍 Social Determinants of Health (SDOH) data is becoming a game-changer in transforming how we understand and design clinical trial cohorts. By incorporating factors like socioeconomic status, environment, access to healthcare, and education, we move beyond traditional clinical metrics to gain a more holistic view of participants. 🔍 SDOH data helps us: • Ensure diverse representation in trials, • Identify barriers to participation and adherence, • Uncover hidden health disparities, and • Improve predictive insights for treatment outcomes. Leveraging SDOH data will lead to more equitable, targeted, and effective clinical research—ultimately accelerating innovation in patient care. Looking forward to this discussion early next month! Datavant #ClinicalTrials #SDOH #HealthcareInnovation #DiversityInResearch
The success of clinical trials depends on various factors beyond traditional clinical care—including SDOH like housing, health literacy, transportation, and social support. How can you use non-clinical data to improve recruitment, retention and evidence generation in clinical trials? Ryan Moog, Head of Life Sciences at Datavant, Thad Wolfram, President at EmVenio Research and Trenor Williams, CEO at Socially Determined, will be discussing this as well as: · Strategies to improve patient engagement throughout the trial lifecycle · Tools to connect disparate data assets for enhanced understanding of trial populations · A competitive edge in designing patient-centric clinical trials 📅 Wednesday, October 2nd 🕐 1pm ET Register here: https://lnkd.in/efi2_FSj #SDOH #ClinicalTrials #LifeSciences
Beyond clinical: Boosting recruitment and retention with SDOH data
pharmaphorum.com
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In the ever-evolving landscape of healthcare, the role of translational research has never been more crucial. This field serves as a vital link between the laboratory and the clinic, ensuring that innovative scientific discoveries are not just theoretical but are translated into practical applications that improve patient care. As a passionate advocate for bridging this gap, I am dedicated to ensuring that groundbreaking research translates into tangible benefits for patients, ultimately enhancing their quality of life. Throughout my career, I have had the privilege of working at the intersection of research and clinical application. This unique position has allowed me to witness firsthand how scientific advancements can revolutionize treatment protocols and patient management strategies. Translational research is more than just conducting studies; it's a multifaceted process that bridges the gap between scientific discovery and clinical application. It demands a deep understanding of human biology, disease mechanisms, and the intricacies of patient care. Collaboration is at the heart of successful translational research. By fostering strong relationships among researchers, clinicians, industry stakeholders, and patients, we can create an ecosystem that accelerates innovation while prioritizing patient-centric care. This collaborative approach not only enhances the speed at which new treatments are developed but also ensures that they are designed with the patient’s needs in mind. #ClinicalResearch #Collaboration #HealthCare #MedicalCare #MedicalResearch #TranslationalMedicine #TranslationalResearch #PatientCare
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