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We know that role clarity is vitally important when partnering with patients in research for two reasons. It improves the experience for everyone involved if they know up front what the expectations are, and it sets the groundwork for achieving better outcomes from the engagement. But how do you start working this out? This research paper provides a really interesting framework for having these conversations so everyone is on the same page. “Applying the Involvement Matrix before and during different phases of a project, has the potential to help researchers and patients to make clear agreements about research involvement and engagement of patients. The tool can be used prospectively, to discuss about possible roles of patients in different phases of projects, and retrospectively to discuss whether roles were carried out satisfactorily.” We recommend taking a read (and didn’t want to wait until the next CCReW newsletter to share it with you). Note, we have no affiliation with this paper. https://lnkd.in/eJq76Br #patientengagement #consumerinvolvement #research #clinicaltrials #CCReW #settingexpectations

Designing a tool to support patient and public involvement in research projects: the Involvement Matrix - Research Involvement and Engagement

Designing a tool to support patient and public involvement in research projects: the Involvement Matrix - Research Involvement and Engagement

researchinvolvement.biomedcentral.com

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