Association for Children with a Disability’s Post

#Epistemic #Injustice in #Healthcare: Understanding the #Challenges Faced by #Patients This informative infographic sheds light on the unique challenges faced by individual patients within the healthcare system. It explores the concept of epistemic injustice, highlighting how these individuals often struggle to be believed and understood due to societal stigma and the nature of their symptoms. The infographic also discusses the impact of this injustice on mental health, quality of life, and the importance of addressing it to provide more equitable and supportive care. #philosophy #teacher #life #doctors #providers #caregivers https://lnkd.in/gGkSBMnc

Courage to Caregivers is hosting its fifth annual Caring for the Caregivers Virtual Summit on Tuesday, November 12, Wednesday, November 13, and Thursday, November 14 from 11 am to 2:30 pm ET daily in honor of National Family Caregivers Month. Register via Zoom - link in bio! This year’s theme is Navigating the Journey of Caring with presentations and workshops focused on education, support, and empowerment for those who care. The Virtual Summit is free for unpaid family caregivers and professional caregivers. You are welcome to attend one or both days. 9 free CEUs are available for social workers, counselors, behavioral health professionals, and certified peer supporters (3 CEU credits available per day). Caring for the Caregivers Virtual Summit on Tuesday, November 12, Wednesday, November 13, and Thursday, November 14 from 11 am to 2:30 pm ET daily in honor of National Family Caregivers Month. Register via Zoom - link in bio!We're highlighting our presenters as we lead up to the Summit! Tuesday, November 12 from 11 am to 12 pm ET: “Using Art Therapy to Cope and Manage Stress and Grief During Caregiving” with Misty Ramos-Saviano, ATR, LPCC-S, CIT, ACTP @palsforhealing In this experiential presentation, you will engage in ways to cope and manage stress with art therapy. These practical therapeutic art activities will be quick, so you can fit them into your caregiving schedules and not require expensive art materials or previous art experience. #NFCMonth #NationalFamilyCaregiversMonth #Caregivers #Caregiving #FamilyCaregiving #caregiver #caregiversupport #mentalwellbeing #mentalwellness #courage #hope #support #empowerment #selfcare #breathe #breathingmeditation #stressrelief #stressmanagement #burnoutprevention #personalgrowth #personalgrowthjourney #tenacity #learntosayno #noisacompletesentence @followers

🔍 Have you wondered how advance care planning (ACP) interventions impact caregiver outcomes? Let us share some insights with you! 📊 We conducted a systematic review and meta-analysis to understand the impact of ACP interventions on caregiver outcomes. Meta-analysis of 17 randomized controlled trials (RCTs) showed that ACP significantly improved congruence in end-of-life care preferences between caregivers and patients. 💡 Results also showed improved bereavement outcomes, satisfaction with care quality/communication, reduced decisional conflict and burden among caregivers. No study showed that mental health of caregivers was adversely affected. Overall, this review suggests that ACP interventions have some benefit on caregiver outcomes. Authors: Chetna Malhotra, Huynh Vinh Anh, Mahham Shafiq MBBS, MSc and Ada Portia M. Batcagan-Abueg #AdvanceCarePlanning #ACP #CaregiverSupport #EndOfLifeCare #SeriousIllnessConversations #HealthcareResearch #PalliativeCare #Caregiving #Research #MetaAnalysis #DukeNUS

𝐔𝐧𝐝𝐞𝐫𝐬𝐭𝐚𝐧𝐝𝐢𝐧𝐠 𝐂𝐨𝐦𝐩𝐚𝐬𝐬𝐢𝐨𝐧 𝐅𝐚𝐭𝐢𝐠𝐮𝐞 𝐚𝐧𝐝 𝐇𝐨𝐰 𝐈𝐭 𝐈𝐦𝐩𝐚𝐜𝐭𝐬 𝐎𝐮𝐫 𝐀𝐛𝐢𝐥𝐢𝐭𝐲 𝐭𝐨 𝐂𝐚𝐫𝐞 𝐟𝐨𝐫 𝐎𝐭𝐡𝐞𝐫𝐬 Compassion fatigue is sometimes referred to as “the cost of caring.” Compassion fatigue is common among individuals who regularly provide care and support to others, such as those in the helping profession and informal or family caregivers. Continuous exposure to suffering and trauma can take a toll on a person’s emotional and mental well-being. Compassion fatigue not only affects the caregivers themselves but also the quality of care they can provide. Read about our new Education Article here: https://lnkd.in/gRFYVrY2 #dementiacareacademy #dementiasolutions #alzheimersdisease #educationarticles #dementiacare #dementiasupport #seniorcare #caregiversupport #familycaregivers #dementiabehaviours #compassionfatigue

The Investigation in Health, Psychology and Education. The study examines how a predisposition for perfection might adversely impact the ability to manage injuries, pain and particularly the aging process which ultimately can create obstacles that hinder the recovery process as hopes of achieving unrealistic outcomes fall short based on perceived expectations. Embracing a spectrum of recovery, acknowledging incremental progress, and focusing on continuous improvement rather than immediate improvement can lead to better outcomes and more effective results from injury and pain. To foster resilience in recovery, it is beneficial to focus on continuous improvement. This approach encourages working towards higher levels of recovery and well-being without the pressure of achieving an unrealistic standard. For example, my position at United Senior Association is to help facilitate and support adopting a mindset of continuous improvement as it can significantly benefit in developing more resilient strategies for advocating and supporting the elder population. The importance of recognizing that small, incremental steps contribute to larger goals is crucial because if we can’t appreciate how far we have come we are less inclined to believe in where we are headed. #unitedseniorassociation #USA #eldercare #FDA #seniorliving #ADA #community #patientcare #compliance #hospitals #OIG #healthcare #digitalhealth #assistedliving #HSS #CMS #nursinghomes #seniorcare #medicare #seniorcitizen #homehealthcare #caregiver #nurse #dementia #inhomecare #seniorhealth #HHSOIG #kloekorby #healthcarefraud #healthcarepolicy #HIPPA #alzheimers #mentalhealth

Bowlby proposed three key factors that influence attachment styles with caregivers. These factors underscore the importance of responsive caregiving in shaping a child's sense of security and future relationships. How have your early experiences with caregivers shaped your own expectations and behaviour in relationships? #attachmenttheory #attachmentstyles #connection #relationships #bravenewyou #annachandyandassociates #therapyhelps

Dementia caregivers who learned the DAWN Method had a 34.7% decrease in perceived caregiving burden and a 23.1% increase in positive attitudes. Read more about the University of Alabama study: https://buff.ly/3S4pY6H #dementia #dementiaCare #research #Alzheimers #AlzheimersCare #dementiaResearch #evidenceBased #dementiaSupport #theDAWNMethodhttps://buff.ly/3tAy6mb

One emotion family caregivers (and all others) can experience frequently is anger, which if ignored can raise havoc with your health and well-being. The anger I’m referring to is sustained anger. The type you encounter initially suppresses and stays with you and churns inside. Unfortunately, when this happens stress hormones are released and can create many health issues affecting cognition, memory, cardiovascular, etc. Two interventions to help address this are personal awareness and introducing interruptor behaviors to gradually but effectively diminish the grip of this anger. #caretakers #caretaker #caregiver  #familycaregiver #caregivers #caregiversupport  #meditation #bounceback  #boundaries #selfcare #reminders #health #advocate  #selfcare #pause #support

Coming to #ACRM2024 SPECIAL SYMPOSIUM: The Impact of #Caregiving on the #BrainHealth of Black Men A vital contribution to the understanding of how caregiving affects this underserved population. By highlighting the interplay between caregiving, racial disparities, and brain health, the research provides a foundation for developing targeted interventions that can significantly improve the well-being and brain health of Black male caregivers. This work not only fills a critical gap in caregiving research but also underscores the importance of addressing #healthequity and #culturalsensitivity in caregiving #research and #supportservices. To learn more and register: ACRM.org/s8 The George Washington University Marymount University University of Utah School of Medicine

Building on our latest blog post about caregiver stress, caregivers have been in the news today! James Janeiro, who is the director of Policy and Government Relations at the Canadian Centre for Caregiving Excellence was on Global News speaking about the need for a national strategy to support caregivers. As we highlighted on Monday, 1 in 4 Canadians are caregivers who account for nearly 97 billion dollars of economic value. Mental health and financial strain are making this endeavour nearly impossible and with an aging population, these concerns need attention. To read more about this, visit https://ow.ly/qUU950RuZjn #caregiver #homehealthcare #nationalcaregivingstrategy