On this episode of the Just Listen: Voices of PK Deficiency podcast, host Dr. Grace welcomes Dolores Dumas, a 73-year-old living with #PKdeficiency. Incorrectly diagnosed with non-spherocytic #hemolyticanemia as a teen, she received a definitive diagnosis of PK deficiency during a visit with a new hematologist. Join us for an episode on the importance of self-advocacy throughout the diagnostic journey. Tune in here: https://lnkd.in/gzzwHBvm Just Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by #PKdeficiency. Each episode of the Just Listen: Voices of PK Deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. Just Listen: Voices of PK Deficiency is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. This podcast is intended for informational and educational purposes only, and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Listen, rate, review, and subscribe wherever you get your podcasts! Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD.
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We had a blast kicking off autumn at our annual fall gathering! This event, hosted at our Cambridge HQ, included development sessions, a fun leadership panel, Cooley's Anemia Foundation Care Walk for thalessemia, and time for Agioi to mingle and connect. Check out some of our favorite moments below.
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We were excited to host a Care Walk at Agios as a part of our company fall gathering! Inspired by the work of the Cooley's Anemia Foundation, we were grateful for the opportunity to raise awareness and funds to support the #thalassemia community.
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September 15 - October 15 is #HispanicHeritageMonth. We are proud to celebrate the incredible contributions of the Hispanic community through our Latinx ERG, which is focused on enhancing understanding and knowledge of LatinX cultures among all Agioi. Hear from Cecilia Jones of our LatinX ERG on how diversity is a strength at Agios and what this month means to her.
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Our Vice President & Head Of Medical Affairs Eva Gallagher, Ph.D will be participating in a panel next week at the Hanson Wade Group Operationalize: Expanded Access Programs Summit in London to discuss access strategies for #raredisease treatments, including regulatory considerations, patient engagement, and specialized approaches for pediatrics. Learn more about the event here: https://lnkd.in/eD2Mu8ng
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We’ve enjoyed connecting with community, advocacy, and scientific leaders at the 2024 Annual Academy For Sickle Cell & Thalassaemia (ASCAT) Conference in London. We are hosting a symposium as well as giving an oral and poster presentation and are thrilled to continue to advance innovation for people with #hemolyticanemias. For more information on the conference, see here: https://lnkd.in/eYWTn-pY #ASCAT2024
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We are hiring a Hemolytic Anemia Specialist in Houston, TX! We’re looking for a candidate with a demonstrated track record of success in launching #RareDisease medicines, and who is passionate about helping patient communities. Our teams thrive in a supportive, fun, and flexible environment, full of people empowered to bring their whole selves to work. Does that sound like you? Check out the link below to read more about the role. #remotejobs #fieldjobs #hematologyjobs #biotechjobs https://lnkd.in/eiusMpiX
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Agioi Audra Boscoe and Eva Gallagher, Ph.D have reached the summit of Kilimanjaro and completed the Timmerman Report’s #TimmermanTraverse for Sickle Forward! The team was able to reach their goal of raising $1 million for Sickle Forward, an organization dedicated to the support of rapid diagnosis and essential treatment of #SickleCellDisease in Africa. Eva carried a polished stone heart to the top of the mountain to represent the heart of all #SickleCellWarriors who overcome mountains every single day. Congratulations to these adventurous Agioi and all who accompanied them on the journey.
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While #SickleCellAwarenessMonth comes to a close, the work and message continues. Earlier this year, we organized a live recording of the Cheat Codes podcast (hosted by Ahmar U. Zaidi, MD and Dr. Michael Callaghan) in Detroit featuring #sicklecell caregiver, Davinna Christian, Dr. Alexander Glaros and #sicklecellwarrior Clifton Kirkman II. In this clip, they share their hopes for the future for people living with #sicklecelldisease. We envision a world with better solutions for patients and their families and are proud to uplift SCD warriors and their stories to bring positive impact. Here’s to all we’ll achieve together!
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We had a great time sponsoring and participating in the Cayenne Wellness Center & Children´s Foundation’s 16th Annual Sickle Cell Disease Educational Summit, connecting with #sicklecellwarriors and learning more about their experiences with #sicklecelldisease. Here are some of our highlights! #SickleCellAwarenessMonth
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Hey Thal Pals, our latest episode is now live! Join NinaMaria Badalamenti and Dr. Kevin Kuo for an in-depth discussion on lab tests. Discover why hemoglobin and ferritin are crucial for those living with #thalassemia and get expert insights you won't find anywhere else. Tune in here: https://lnkd.in/eDt9fcAj Listen, rate, review, and subscribe wherever you get your podcasts! Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates and voices from the thalassemia community. Thal Pals is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment related questions.
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