What is a rare disease? It’s defined as a condition that affects a small population of people, but the definition can vary by region. Swipe to learn how the definition of “rare disease” differs in various countries across the globe.
Emmanuel JAMMES
1mo
Very informative ! But the particularities of health systems are even more important than epidemiological definitions. On one side or the other of a border, inequalities are strong for patients
Mary Polo
1mo
I agree with Dena Heath. I facilitate the Sacramento area support group, and that is what has happened to our group.
Ten years from now when they look at affected patient numbers, it will be interesting to see if there are types of amyloidosis that are no longer “rare.” Who wants to bet ATTR isn’t rare. Anyone?