Alira Health’s Post

⏳ Only a few hours remain till our final webinar! Register now if you haven't done so already: https://lnkd.in/epKv9knb⏳ The webinar will explore the skills required in implementing a step‑wise approach for patients with or at risk of developing #cardiovascular disease, recognising the risk and understanding the management of #hyperkalaemia, and discussing the latest recommendations for additional risk-based therapies in #CKD. #KidneyHealthforAll #ChronicKidneyDisease #CVD KDIGO

🌞 Kick off the start of summer with our new hyperinsulinism (HI) coloring sheets! 🖍️ HI mom Elizabeth Hoertz created these fun pages featuring various HI management tools. 💙The full set of coloring sheets as well as other HI activities for kids are available on our website at https://lnkd.in/e5qqyzyt #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

I'm heading to Washington, DC on May 18 - 21 for @Digestive Disease Week 2024. If you're pursuing a potential solution in differentiated MOAs with potential for gut barrier restoration, patient stratification for use in combination regimes, or orals for clinically validated targets, comment below & let's connect during the meeting. #DDW2024|

While facing a life-threatening hospital stay, Eric's family and friends started doing research. They found Dr. Trapnell, who suggested a noninvasive blood test to confirm Eric's diagnosis of aPAP. Armed with an accurate diagnosis, Eric was quickly able to begin working with his Pulmonologist on managing this rare disease. Watch the full story on TheBalancingAct.com/rare. Visit Savara Inc. to learn more. #BehindTheMystery #aPAP #AutoimmunePulmonaryAlveolarProteinosis #aPAPawareness #RareDisease #RareDiseaseAwareness

While facing a life-threatening hospital stay, Eric's family and friends started doing research. They found Dr. Trapnell, who suggested a noninvasive blood test to confirm Eric's diagnosis of aPAP. Armed with an accurate diagnosis, Eric was quickly able to begin working with his Pulmonologist on managing this rare disease. Watch the full story on TheBalancingAct.com/rare. Visit Savara Inc. to learn more. #BehindTheMystery #aPAP #AutoimmunePulmonaryAlveolarProteinosis #aPAPawareness #RareDisease #RareDiseaseAwareness

Standard of Care can oftentimes be the biggest competitor when it comes to country and site selection. This case study with Bioncle Emas highlights how #TrialHub’s Standard of Care module helped identify the right countries and sites for a Phase 4 rare disease study, and with our real-time insights at their fingertips, they were able to accomplish this 50% faster! Feasibility research is hard, we can help. #feasibility #raredisease #standardofcare https://lnkd.in/grkthsTZ

We are so proud YPrime’s eCOA has become a critical part for clinical trials in rare diseases like Pediatric Angelman Syndrome. YPrime’s ability to significantly enhance data quality, patient engagement, and trial efficiency by providing improved accuracy, reducing errors, and enabling remote data collection reinforces our promise of “Solving for Certainty” YPrime’s innovative eCOA solution lessens the burden on #patients and #caregivers while ensuring high-quality data collection—crucial in small patient populations. YPrime’s one of a kind comprehensive / flexibile technology is purpose built for the customization requirements specific to rare disease needs. Additionally, YPrime’s global reach facilitates consistent data collection across diverse sites, essential for all rare disease trials that often span multiple countries. These combined benefits make YPrime’s eCOA an invaluable tool in optimizing rare disease clinical trials, aimed at accelerating the development of new treatments for conditions like Pediatric Angelman Syndrome.

Interventions for valvular disease: Highlights of #EuroPCR 2024 Chris Cook hosts Nicolas Dumonteil and Bernard Prendergast as they discuss amongst others: 🟣 record-breaking abstracts and cases, demonstrating expertise in #TAVI, #mitral, and #tricuspid procedures 🟣 LIVE cases, especially in complex TAVI scenarios, reflecting everyday practice 🟣 the crucial role of #imaging in patient selection and procedure guidance 🟣 key studies like NOTION-II and LANDMARK, and the groundbreaking ShortCut trial addressing degenerated aortic bioprostheses, and much more! https://lnkd.in/duCEPVxm

Need help with your rare disease studies? See how YPrime supported this rare disease study by delivering our advanced, configurable #eCOA platform—transitioning from a previous vendor during the open-label extension (OLE) to drive clinical trial success. Read the case study here: https://hubs.ly/Q02L5XLn0 #RareDiseaseStudies, #YPrime, #eCOAPlatform

In part 2 of our Q&A, Okamura addresses the need for biopharma companies to leverage digital technologies in disease management. https://lnkd.in/gpWA8xre