AMERICAN ONCOLOGY INSTITUTE - Precision Cancer Care’s Post

📰 Published by Blood Advances, in short, this📰shows that HR-TA-TMA in children after allogeneic HCT, regardless of tx approach, is associated with significantly⬆️HCU. Strategies to prevent & pre-empt HR-TA-TMA are an urgent unmet need. READ➡️https://lnkd.in/ehU6Hzcv

Myth: People with hemophilia can't lead normal lives. Fact: With proper treatment and care, individuals with hemophilia can lead fulfilling lives. Let's bust myths and spread facts this #WorldHemophiliaDay. #HemophiliaAwareness #EducationIsPower #TechTaxiInc

In #IQVIA Hellas, we are proud of our fruitful collaboration with Panhellenic Association of Neurofibromatosis #Patients & Friends “Life with NF” and 95, Rare Alliance Greece on the first published research about the societal economic burden and health-related #qualityoflife (HRQoL) of families with #Neurofibromatosis type 1 (NF1) in Greece, which has been unknown so far. Main outcomes are staggering and demonstrate the magnitude and impact of #Neurofibromatosis in patients, society and economy: 1. Economic burden of NF1 was estimated at 21,5K€ per patient in 2022. 2. Extrapolating this outcome across all affected persons shoots up the average annual cost to 56M€! 3. Out-of-pocket expenses accounted for 10% of these amounts. 4. Significant burden on family members /caregivers of NF1 patients with a mean total score of 45 in HRQoL https://lnkd.in/dVxAfrqk #rarediseases #weareiqvia

CME Opportunity: This brief accredited quiz-based activity developed in collaboration with Med-IQ tests your knowledge on amyotrophic lateral sclerosis (ALS). Duke experts share educational takeaways via short video clips. Link: https://bit.ly/3IksLmy #MedEd #CME #ALS

In part 5 of the #BRADayRecap with Dr. Arishita, we explore the pros and cons of #DirectToImplant and #TissueExpanderReconstruction. Making informed choices for a brighter future! 💪🏼🌟 #BreastReconstruction #EmpowerYourself #MedicalInsights #RebuildingLives after #BreastCancer

Immunic Therapeutics (NASDAQ:IMUX) Chief Medical Officer Dr Andreas Muehler discusses the complexities of multiple sclerosis (MS) during an interview with Proactive's Stephen Gunnion to mark MS Awareness Month, highlighting the disease's impact, development, and the unmet medical needs of patients. MS, a lifelong autoimmune disease more prevalent in women than men, begins typically in early adulthood. It manifests in various forms, starting with relapsing-remitting MS, characterized by relapses and MRI lesions, affecting 80-85% of patients. #NASDAQ #IMUX Watch at #Proactive #ProactiveInvestors http://ow.ly/wjMZ105mny4

En route to a Duchenne conference this morning. If you want to find out more about Duchenne muscular dystrophy, check out some of my diary entries from Samson's diagnosis in my articles below. #duchenne #dmd #raredisease #Community #disabilityinclusion #rarediseaseday2024

What would you (or your child) do if you didn’t have to worry about lows? ⛄️ Learn more about HI clinical trials for a #FutureWithoutLows at the link in our bio💙🩵⁠ ⁠ ⁠ ⁠ #congentialhyperinsulinism #hyperinsulinism #hypoglycemia #raredisease

A mouse is not a human, and dialysis is not a kidney. Researchers from Sangeeta Bhatia, Christopher Chen, David Mooney, and Jennifer Lewis' labs are all part of the Wellcome Leap initiative. As part of the HOPE program, they worked to pioneer new solutions to the organ donor shortage and create better platforms to predict human immune responses to drugs. Take a glimpse into the stories of various researchers working as part of this effort. Together, we're challenging the notion of what's possible to achieve. https://lnkd.in/exesscfr #WellcomeLeap #Collaboration #OrganDonorShortage #KidneyDisease

What would you (or your child) do if you didn’t have to worry about lows? 💃 Learn more about HI clinical trials for a #FutureWithoutLows at the link in our bio💙🩵⁠ ⁠ ⁠ ⁠ #congentialhyperinsulinism #hyperinsulinism #hypoglycemia #raredisease