Batten Disease Family Association’s Post

The UK currently screens for 9 rare diseases with new-born ‘blood spot’ screening tests. Our aim is to push for Batten disease to be included in the list of rare diseases tested for at birth. More than 20 European countries screen for more conditions than the UK, with most of them screening for more than 20 conditions whilst the US screens for up to 50. #RareDiseaseDay #ShowYourRare #Awareness #Support #RareDiseaseAwareness #battendisease #battendiseaseawareness

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