The UK currently screens for 9 rare diseases with new-born ‘blood spot’ screening tests. Our aim is to push for Batten disease to be included in the list of rare diseases tested for at birth. More than 20 European countries screen for more conditions than the UK, with most of them screening for more than 20 conditions whilst the US screens for up to 50. #RareDiseaseDay #ShowYourRare #Awareness #Support #RareDiseaseAwareness #battendisease #battendiseaseawareness
Batten Disease Family Association’s Post
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Did you know that autoimmune diseases are often considered disabling by the SSA? Learn more about the conditions that may qualify you for SSDI benefits on our blog. Read more - https://lnkd.in/g5xHqHNw #RooseAndRessler #MoreThanANumber #SocialSecurityDisability #WoosterLawyers #ToledoLawyers #MansfieldLawyers #LorainLawyers #TopOhioLawFirms #OhioSocialSecurityDisabilityLawyers
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#RareFactFriday 95% of rare diseases lack an FDA-approved treatment. 400 million individuals are impacted by rare diseases, yet obtaining approval for treatment can be exceptionally challenging. Together as a #RareDiseaseCommunity we can make a difference! 💙 #BehindTheMystery #FDAapproval #RareDisease #RareDiseaseStatistics
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"☮️ Happy Gandhi Jayanti ☮️ On Gandhi Jayanti, let's resolve to be more compassionate and understanding towards others. Dr Ankita Baidya - Physician Infectious Diseases #GandhiJayanti #TruthNonViolence #PeaceCompassion #BeTheChange #StrengthLove #ServiceOthers #FutureDreamers #BeTheChangeNow #StrengthWill #SelflessService #IntegrityCompassion #LoveOverViolence #EqualityJustice #GandhianValues #GandhianDream #GandhianVision #GandhianLegacy #HumanityFirst #EqualityJustice"
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👋 Network: Did you know that half a million people in Switzerland are affected by a rare disease? A disease is considered rare if it affects no more than 5 in 10,000 people. However, this seemingly small number adds up due to the large number of rare diseases. There are currently 7,000 to 8,000 known rare diseases worldwide, affecting approximately 300 million people. This represents approximately 7% of the world's population. The diversity of these diseases and the lack of awareness about them make it difficult for those affected to get a diagnosis and targeted treatment. Let's bring awareness on Rare Disease Day! 🫶 #showYouCare 📷 Rare Disease Day
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At Obatala Sciences, we are working to make a difference in metabolic disease research through our #MPS models. #Diabetes is a growing problem in the US with over 37.1 million adults aged 18 years or older (14.7% of all US adults) suffering from the disease in 2019 as reported by the Centers for Disease Control and Prevention. Furthermore, the prevalence of diabetes is expected to rise exponentially in the next 20 years. #researchanddevelopment
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Did you know that autoimmune diseases are often considered disabling by the SSA? Learn more about the conditions that may qualify you for SSDI benefits on our blog. Read more - https://lnkd.in/gZy6z-UY #RooseAndRessler #MoreThanANumber #SocialSecurityDisability #WoosterLawyers #ToledoLawyers #MansfieldLawyers #LorainLawyers #TopOhioLawFirms #OhioSocialSecurityDisabilityLawyers
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Ulcerative Colitis & Crohn's Disease are the most common types of IBD. Both diseases have a wide range of overlapping symptoms, but there are some key differences between the two. Have questions about either one? Type your questions in the comments below! #IBDAwareness #UlcerativeColitis #Crohns #COCCI #HealthisWealth
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Trenal (Pentoxifylline) is not effective for treatment of claudication (peripheral arterial diseases) III: No Benefit --- Reference: UpToDate 2024, 2016 AHA/ACC Guideline on the Management of Patients With Lower Extremity Peripheral Artery Disease
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🫶🏼 As we commemorate Rare Disease Day, let’s shine a light on the challenges faced by those faced with rare diseases. Together, let’s advocate for better treatments, resources, and support for all affected. 💡Rare diseases are typically chronic, progressive, and life threatening. 💡Approximately 50% of rare diseases affect children. 💡 Due to their rarity, it can take YEARS for individuals with rare disease to receive an accurate diagnosis. 💡 Rare diseases can manifest in a wide variety of symptoms and affect multiple organ systems. 💡The vast majority of rare diseases still lack approved treatments. #RareDiseaseDay #RareDiseaseDay2024 #RareDiseaseAwareness #RareButNotAlone #RareDiseaseWarriors #StrongerTogether #HopeForRare #RareDiseaseCommunity #RareDiseaseResearch #RareDiseaseSupport #RaiseAwareness #RareDiseaseAdvocacy #FightForACure #RareDiseasePatients
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Today, we raise awareness for rare diseases, standing in solidarity with those affected. Let's shine a light on their journey and advocate for better understanding and support. Check out our blog for more information: https://lnkd.in/gdihz8kS #SLMCH #Savinglives #srilalithambigai #DRMGR #MGRERI #RareDiseases #RaiseAwareness #MedicalResearch #GeneticDisorders #HealthcareChallenges #PatientAdvocacy #PrecisionMedicine #RareDiseaseAwareness #SupportPatients #MedicalInnovation
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