Beyond Type 1’s Post

Here's more on Drew, the innovative youngster I just posted about:

Being diagnosed with diabetes as a teenager can be more than overwhelming. Crème de la crème in this timeframe, is having to dose your insulin based on what you eat, all day - everyday😵💫🔄. Drew has developed a free app #T1D1 that would do the calculation and get this burden off many shoulders💪. To clear his app with FDA, together with the brilliant team of Comerge AG, they need some crowd-funding. Learn more about this amazing project, spread the word and donate via this link to empower kids manage their diabetes🤩! https://lnkd.in/ea-w7BSy

Please consider donating today and any support you can provide, even if it's simply helping us to get the word out. Forward this to doctors, educators, nurses, organizations, clinics, friends, and families whom you think would be willing to support this effort. With your help, we can get the T1D1 (Type 1 Day 1) App back up in the App Stores and help make the lives of so many people just a little easier. Please read the story about how this critical app can be helping those with Type 1 Diabetes, get the help they need in controlling this terrible disease. However, additional funds are needed to get the necessary approvals to bring this app back for free to help people with this terrible disease. https://lnkd.in/eN6qqHjS

Sweet simplicity in action 🍓. Our diabetes prevention program teaches that a healthier life starts with small, delicious choices. Here's a peek at the change blossoming in our communities, one berry at a time. #MonitorMyHealthCT #TYPE2Diabetes #Type2 #NonProfit

It's Chantal's Second $5 Friday! 🌟 It's that time of the week again - Chantal's Second $5 Friday! We're back with another opportunity to make a difference, one small donation at a time. It's simple, it's impactful, and it's all about coming together for a cause we believe in. Can you give up your coffee for Chantal? (or more if you're feeling extra generous!) Donate and read full story💜 https://zurl.co/vYaF Your $5 can go a long way in supporting Chantal get an Insulin Pump. DANII's gift to Australian's living with T1 Diabetes is to provide technology to help manage diabetes long term. What are the benefits of insulin pump therapy? 🌟90% Fewer Injections 🌟 Kidney damage reduced up to 54% 🌟 Cardiovascular damage reduced up to 41% 🌟 Nerve damage reduced up to 60% 🌟 Eye damage reduced up to 63% 🌟 Lower HbA1c 🌟 Fewer hypoglycaemic events 🌟 Easier dosing, accurate dosing, no needles 🌟 Greater flexibility in when to eat and how to exercise Chantal seeks to regain control of her life with the help of an insulin pump. This device promises to alleviate her fears and allow her to embrace life more fully, enjoying precious moments with her loved ones without the constant dread of low blood sugar. Together, with the cost of our coffee, we can rally behind Chantal #DANIIFoundation #InsulinPump #5dollarfriday #T1diabetes

When you can’t breathe, nothing else matters. The American Lung Association is celebrating 120 years of making an impact as the trusted champion of lung health. By raising funds through the 2024 Fight For Air Climb Orlando, we are able to continue the critical work needed to save lives by improving lung health & preventing lung disease. A donation of any size will make an impact. Can I count on your support? Your support will get us all closer to a world free of lung disease. Today, we are more focused than ever on our four strategic imperatives: to defeat lung cancer, create a tobacco-free future, champion clean air for all, and improve the quality of life for those living with lung disease. Make your mark on the future of lung health here >> https://lnkd.in/epTxzFrV

I have never been someone to go for a walk or a run without a good reason. It’s not my happy place. So as I contemplated launching another run (hah!) at the HBF Run for a Reason I thought deeply about exactly why it is that the Type 1 Diabetes Family Centre organizes a team for the Run for a Reason. Yes, to raise funds to support families impacted by type 1 diabetes of course, but what it is that makes type 1 diabetes so challenging? Why should the community get behind people with type 1? What makes it worthy of support? Here are a few reasons to support us as we lace on the running shoes and ask for your support, for the community to stand behind us, for type 1 diabetes to be your reason: 1.     No one asks for type 1 diabetes, there is nothing they could have done to prevent it, nothing they did to bring it on - its arrival is unfair, unwelcome, and like a bolt from the blue. 2.     Its burden is real – Stanford estimated that living with type 1 diabetes adds around 180 extra health-related decisions to your life EVERY SINGLE DAY. 3.     Its burden is unrelenting – there is no off switch, no holiday from type 1 diabetes. No matter what is going on in your life it is there, demanding attention, punishing inattention. 4.     Its impacts ripple throughout a family – we always say it is the family gets type 1 diabetes when someone is diagnosed. Whether it is parents taking on the burden for their children, brothers and sisters missing out on quality time as type 1 takes up the space or partners being awoken by blaring alarms – it is ever-present. 5.     There isn’t a prescription to solve it – insulin is our magic potion, but it’s also a lethal drug with the potential to kill or harm every time it is administered. And there are no set doses – you need as much as you need at any one time, influenced by more than 42 factors we know so far. The good news is that there is almost nothing that someone with type 1 diabetes cannot do, cannot achieve. But to place that burden on the individual, to let them shoulder that massive, unrelenting, incurable weight on their shoulders is unfair. With the right support, we can lessen and share the burden. We can make type 1 smaller, we can let families thrive. Please, support our efforts in the HBF Run for a Reason and know that your donation is for a VERY good reason. https://lnkd.in/gNeKCQ_Q

These remarkable kids, with their unparalleled zest for life, remind us of the beauty in diversity and resilience. If you've had the pleasure of meeting Aidan, you'll know first-hand what I mean! ✨ Support KSF's ground-breaking research and help turn the possibility of therapeutic treatment into reality: https://bit.ly/3SXHkl4

Almost Half of Rare Disease Co-Pay Support Funds Closed or Restricted As a rare disease patient myself, I did not want to rain on the parade of “I Support Rare Disease Day” with this post. But, I looked yesterday at the status of 168 rare disease co-payment assistance funds. 81 one of them were closed or otherwise restricted. This means that those 81 funds were not providing assistance, at the very least, to new patients and, in many cases, ANY patient. That was true for 48.2% of the rare disease funds—basically half. But what I find scary about this is that this is the situation as of February 29, still early in the calendar year—and not long after donors have made their annual commitments. So, the very real risk is that we go from bad to worse as the year progresses. OIG, we need a meaningful set of changes to the advisory opinion pathway. Rare disease patients are suffering. It is not right. #charity #oig #rarediseaseday #raredisease #rarediseases #drugprices

Join the Fight Against Type 1 Diabetes: Support My 100-Mile Ride with Just a Few Minutes of Your Time I’m thrilled to embark on the Breakthrough T1D 100-mile ride again this December, and I need your help to make a real impact in the fight against Type 1 Diabetes (T1D). Last year, your incredible support helped me reach my goal, and this year, you can make an even bigger difference — without spending a dime. Here’s how: The Breakthrough T1D Northern Florida Chapter has teamed up with HundredX to turn your opinions into powerful donations. For every quick survey you complete about various products and services, $1.60 will be donated to my ride, up to $120 per person! It’s incredibly simple: 1.Text JDRF to 90412. 2.Follow the link in the reply. 3.Select JDRF Northern Florida. 4.Choose me, Clay Breznik, to support. Each survey takes just a minute or two. In the time it takes to watch an episode of your favorite show, you could help raise over $30 for T1D research. Imagine the impact we can make together if just a few of you take a moment to participate. Let’s ride towards a cure for T1D, one survey at a time. Thank you for your continued support. Your time and effort mean the world to me and to everyone fighting this disease. Let’s make this year’s ride a breakthrough!