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Hey Thal Pals! 🩺 Our latest episode is now live! Join NinaMaria and Dr. Kevin Kuo for an in-depth discussion on lab tests. Discover why hemoglobin and ferritin are crucial for those living with thalassemia and get expert insights you won't find anywhere else. #ThalPals #AlphaBetaRevolution #LabTests #Thalassemia Listen, rate, review, and subscribe wherever you get your podcasts! Or by clicking here: https://lnkd.in/g2AuENeb Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates and voices from the thalassemia community. Thal Pals is sponsored by Agios Pharmaceuticals Visit Agios.com to learn more. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment re­lated questions. #RedBloodCellDisorder #HereditaryDisease

What does it mean when a parent has pyruvate kinase deficiency? On today’s episode, we welcome back Nathan Thompson, a father with PK Deficiency. He has two daughters and today, he’s joined today by his daughter Zoe. Here, we learn about parenting with PKD and all of the challenges associated with it. .. Listen, rate, review, and subscribe wherever you get your podcasts! Or by clicking here: www.JustListenPod.com .. Just Listen: Voices of PK deficiency is a podcast about pyruvate kinase (PK) deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen: Voices of PK deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community.  .. Just Listen: Voices of PK deficiency is sponsored by Agios Pharmaceuticals. Visit Agios.com to learn more. .. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. .. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment-re­lated questions.  .. #RedBloodCellDisorder #HereditaryDisease

On this episode, Dr. Rachael Grace talks with the King family about the unique challenges of having multiple family members affected by PK deficiency. Jennifer and Jerry King are raising William and Lily, both have pyruvate kinase deficiency and Dr. Grace discusses how they’ve managed the disease with their two children. Listen, rate, review, and subscribe wherever you get your podcasts 👉 bit.ly/justlisten_podlink Just Listen: Voices of PK deficiency is a podcast about pyruvate kinase (PK) deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen: Voices of PK deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. Just Listen: Voices of PK deficiency is sponsored by Agios Pharmaceuticals Visit Agios.com to learn more. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment re­lated questions. #RedBloodCellDisorder #HereditaryDisease

A quick (10 min), solid overview of the very interesting TXNIP/TXNIP inhibition --> Verapamil --> and now, TIX100, story with Dr. Anath Shalev

NEW PODCAST EPISODE! In this episode of The FAST Archives, William Heuser brings his extensive experience as a clinical critical care pharmacist, clinical toxicologist, and certified Flight Paramedic to demystify the controversial world of resuscitative medicine. In his dynamic talk, "Do Any of These Medications Work in Cardiac Arrest? Demystifying the Controversies!", Will examines the debate surrounding the administration of certain medications during cardiac arrest. He discusses how these medications impact patient outcomes during resuscitation and offers a clear, evidence-based analysis of their risks and benefits. William’s unique blend of humor, energy, and knowledge makes this talk as entertaining as it is informative. Tune in to gain valuable insights into the evolving field of resuscitative medicine and explore the complexities of pharmacological interventions during cardiac arrest. If you're interested in joining us at FAST24 for more talks like this, visit https://lnkd.in/gapSbEwd. You can listen to this episode and more on your favorite podcast app, or listen on our website at: https://lnkd.in/g5xVmKUm. Thanks for listening, and we hope you enjoy this episode!

The final episode (#8) of the COA in PROgress podcast is out! This one is a bit more forward looking, offering the fabulous John Fox and Olivier Wong an opportunity to reflect on how the HTA and healthcare systems are ready to embrace DHT, CAT and other novel ways of understanding treatment effects. https://lnkd.in/egA2wwMt; https://lnkd.in/esTPNdW6 Now that all 8 episodes have launched, I wanted to briefly reflect on my 5 key learnings: (1) The regulatory framework for COA offers clear opportunities for broad use of COA trial data in understanding patients, diseases, and treatments to inform regulatory decision-making. Payers are still catching up, in terms of defining evidentiary standards and structures for COA-derived insights/value; but COAs collected as part of routine care are now starting to be incorporated into clinical decision-making in some therapeutic areas. (2) For COA data to be considered as robust, insightful and interpretable, they must be informed by a carefully considered and detailed strategy including a solid hypothesis, an empirically informed measurement approach, and careful endpoint specification. (3) A strategy must include consideration around data collection (i.e. implementation of COAs) - selecting the right COA instrument to measure the relevant concept(s) is important; but it can easily be undermined if engagement with the instrument is poor and missing data is significant. This renders the data hard to interpret. (4) There is plenty more that can and should be done to make use of COA to help inform intervention development and the management of disease. Some of this pertains to further developing the measurement (e.g. briefer, adaptive instruments, global scales), some of this pertains to implementation (e.g. reactive COAs, passive monitoring), and some of it pertains to data interpretation, use and sharing (e.g. real-time analysis of intensive longitudinal data, dashboarding to inform clinical consultations). (5) It is harder to say "Boehringer Ingelheim" than you may think! I recorded 5 versions for the editors to choose from. But even with the one they chose many of you have taken delight at telling me how funny I sound trying to say it at the start of each episode! Thanks again to the guests Chad Gwaltney, Daniel O'Connor, Paul Miller, Olivier Wong, John Powers, Sonya Eremenco, David Cella, Michael Brundage, Cheryl Coon, John Powers, Melanie Calvert, Hilary Jones, Ethan Basch, Norah L Crossnohere, and John Fox; and thanks to Maarten Voorhaar for putting this together. It was a blast. Hoping that series 2 will be forthcoming, and if anyone has thoughts on topics for that series please feel free to share them!

Just a minute! Why can’t I see FeNO results instantly? It’s an exact science so it’s crucial the technology you choose gets it right – and that takes a minute. Listen to our latest podcast today to find out why: https://lnkd.in/euzVHw-P

Just a minute! Why can’t I see FeNO results instantly? It’s an exact science so it’s crucial the technology you choose gets it right – and that takes a minute. Listen to our latest podcast today to find out why: https://lnkd.in/euzVHw-P

New Episode Alert: HeadWise Podcast featuring Dr. Susan Hutchinson! 🎉 Our Medical Director, Dr. Susan Hutchinson, joins HeadWise to discuss the latest breakthroughs in migraine research. Tune in to learn about: • Pediatric migraine treatment preferences• • How aura affects daily functioning • New insights on cluster headaches • And much more! Whether you're a migraine warrior or a healthcare provider, this episode is packed with valuable insights. Don't miss out on this opportunity to stay at the forefront of headache medicine. Watch the full episode now and join the conversation. What topic interests you most? Let us know in the comments! #HeadWisePodcast #MigraineResearch #DrSusanHutchinson #HeadacheMedicine

WEBINAR OCT 23 - Delve into the compelling interviews from “The Desperate for a Diagnosis Podcast,” hosted by Laura Nozicka, where patient and physician guests share their perspectives on the challenges of navigating the healthcare system, particularly in situations when getting to a diagnosis is nothing but a revolving door of doctors, hospitals and tests. https://lnkd.in/eFEJFuA7 #intellusWW #WeAreIntellusWW #intellusYP #mrx #insights #HCinsights #IntellusMemberNews