Congratulations Dave! you led the informed patient revolution back in late 2000 years, your vast expertise can now help patients understand what they can do with AI.
It's true that AI offers many opportunities. The question is if patients are able and ready to use them. As far as I can say the majority of cancer patients in Europe, are not ready for this type of innovations, patients and people lack that level of digital literacy and above all they trust their doctors, even if they consult too Dr. Google.
There are indeed a few patients, mostly rare or metastatic cancer patients and rare diseases patients who already try all kind of means to get access to specialized care and to more information.
As it happened earlier in the 2000 years, it is the ones who will try to use the new tools, connect with other patients everywhere, with similar symptoms/disease, to exchange information.
If in 1990, I dared to get appointments with five highly respected professors of surgery in Athens to show them the info I had found on google about the then brand new breast cancer tumor excision, the "lumpectomy", for which there was then not even a suitable greek word to translate it, and ask them if they knew and could perform it for me, I know very well how I will be treated now, if I visit my doctor (well known professor of pathology) and tell her look what ChatGPT suggests as differential diagnosis for me! The issue is she and other top physicians in her hospital could not find for more than two years a diagnosis nor suggest what I can do.
Did I use ChatGPT? Indeed as a person with cancer history, I cannot sit and wait when my physician will have an inspiration about what my tests mean. So I tried google and AI. Is AI easy to use? yes for simple questions. But for complex medical issues, it looks like patients need to learn how to build a meaningful query, and learn more about possible diagnoses for their symptoms for a first evaluation of the results. Even then, the collaboration with a physician is necessary to check the accuracy of the info provided by the AI tool, under the condition that the physician accepts to even look to the patient's ChatGPT printout!
So yes, AI will slowly replace Dr. Google. Sharing the efforts with AI of patients like Hugo Campos and others, as you do, will encourage more patients and carers to try it too. Would like though to hear how American doctors react when a patient brings in his appointment an AI tool printout about his symptoms for discussion!
Even if AI is present in almost all European cancer research projects, doctors will not easily accept in their practice to go through their patient's AI tools printouts.
Hope the organizers will allow livestreaming, otherwise we will wait that you share your presentation. Wish you success!
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💓 𝐖𝐞 𝐭𝐡𝐞 𝐏𝐚𝐭𝐢𝐞𝐧𝐭𝐬. As our conference chairman, Roberto Ascione, often says: "Every one of us will be a patient one day." This simple truth carries a profound meaning when working in the life sciences: it evokes a sense of responsibility, an awareness of our fragility, and an ancient hope for healing.
But beyond hope comes commitment—the promise to improve the patient journey and their experience throughout the healthcare process.
At Frontiers Health, we’ve made it a priority to place patients at the heart of our foundational pillars because, alongside healthcare professionals, they play a crucial role in designing healthcare solutions. For years, we’ve amplified patient voices. We remember Lynna Chandra's powerful testimony at FH22 about rediscovering humanity through equal access to care, especially for the most vulnerable. Or the unwavering energy of Silvia Cerolini at FH23, a mother fighting for a treatment for her daughter’s rare and currently untreatable disease, advocating for greater collaboration between the healthcare industry and #patients.
Continuing this tradition, we’re honored to welcome Dave deBronkart, also known online as e-Patient Dave, to #FH24. Dave will deliver a keynote titled "𝐓𝐡𝐞 𝐃𝐚𝐰𝐧 𝐨𝐟 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐀𝐮𝐭𝐨𝐧𝐨𝐦𝐲". His talk will explore how pioneering patients are achieving extraordinary outcomes using generic LLMs, even though these models aren’t yet fully optimized for #healthcare. While patient autonomy has long been a goal, this talk will reveal how we’re finally entering a new era where it's becoming a reality. https://lnkd.in/dKWPX3Hb
Prof. deBronkart is a leading patient engagement advocate, author, and cancer survivor. He co-founded the Society for Participatory Medicine and has been featured in Time, Wired, and MIT Technology Review. His blog is archived by the National Library of Medicine, and he was the Mayo Clinic’s 2015 Visiting Professor in Internal Medicine. https://lnkd.in/d-AsZUiE
🎟️ Join us at #FH24 to hear straight from e-Patient Dave about The Dawn of Patient Autonomy https://lnkd.in/dmdSEa3Q
#PatientsUseAI #AI #healthinnovation #healthcare #patientempowerment #patientengagement Roberto Ascione Kristin Milburn Elena Pirofalo Antonietta Pannella Luigi Pavia Giovanna D'Urso
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Experienced Healthcare Manager | Patient-Centric Leadership | Strategic Program Management | Health Administration Masters Graduate | Model Poise, Accountability, Compassion #MPAC
8moBrad Beauvais MBA, PhD, FACHE Congratulations, Dr. B! Well earned!