Since his #ALS diagnosis in August 2022, Rick Zwiep passionately advocates for those living with #ALS. Rick serves on the board of ALS Action Canada. ALS Action Canada, a patient-led non-profit, shares strategic goals and collaborates on research funding with ALS Society of Canada. Together with other dedicated members, Rick helps ensure equitable access to #ALS therapies.
Rick built a powerful coalition of people living with #ALS, their families and supporters- all united to #EndALS. Rick raises #ALSMND awareness by highlighting the needs of patients and caregivers.
#ALSMNDWithoutBorders#BetterTogether
Great work Rick fighting the good fight with the rest of the ALS Action Team. The network has been so valuable to me and my family as we navigate this terrible disease!
There’s almost a guarantee you’ll never regret this one thing…
Helping others.
Think about every time you’ve helped someone in need.
Didn’t you feel good knowing you were making a difference?
At DSA, this is at the root of our mission…
Helping researchers by providing them with the critical biospecimens they need to conduct studies in DS.
Helping parents by making it easy for them to participate in research.
And helping the DS community by advocating for people with DS to achieve the fullest quality of life possible.
Continued funding is necessary to help us succeed.
Join our community of monthly givers so we can help get treatments faster to the families who need them the most.
Your monthly gift of $21 or more will make a lasting difference in the development of treatments and therapies that can absolutely transform the lives of individuals with Down syndrome and their families.
Donate Monthly: https://lnkd.in/grFBAWmW#nonprofit#research#downsyndrome#downsyndromeresearch
Founder CEO, Caregiver Saathi: Ecosystem for well-being of family caregivers | Founder CEO, Sambhaavana: OD & Business Impact | Independent Director | Speaker | Gender Equity advocate | Motorcyclist | Limca record holder
Have you contributed to building the Care Infrastructure?
We need a Directory for validated Care services that the services providers cannot buy
With the rising demands on us for caregiving and that we will all be caregivers and need caregivers, we need to skill and upskill on providing care - need resources like learning programs, guides, handbooks, video tutorials etc.
#Caregiversupport#CareTech#CaringWorkplaces#WeAreAllCaregivers#publicGoods#DigitalpublicGoods
Support Caregivers This Daan Utsav: Build a Lifeline Through Our Care Directory .
By donating INR 5,000, you can help us expand our curated Care Directory—a vital resource offering family caregivers free access to trusted services, including medical supplies, home care, and more.
Your contribution ensures that caregivers have the support they need to continue their essential work.
https://lnkd.in/dhZiej2S
Let’s make a real impact together.
#DaanUtsav#CareForCaregivers#SupportCaregivers#HealthcareResources#SocialImpact
Professor of Practice, Nationally Recognized Expert in Health Care and Life Sciences, Regulatory Consultant, Patient Access Advocate, Independent Director, and Retired Sidley Austin Partner
Rural Referral Centers Make My Head Explode, Too, Adam Fein
I feel Adam’s pain.
You can’t make this stuff up.
#340b discounts go to “rural referral centers”, but RRCs don’t actually have to be located in “rural” counties—or receive any significant referrals from rural areas.
Adam points out the absurdity of this by noting that Brigham&Women’s, Boston’s grand dame, had a whopping “97% of 2021 patients resid[ing] in urban areas”—I’ll just also add that it had $18.8 billion in revenues in 2023.
In life, you get what you pay for. In the law, you get what you set as the standard.
The Standard: The relevant regulation assesses referrals by analyzing the % of “Medicare patients…referred from other hospitals or from physicians not on…staff” and the % of the “hospital's Medicare patients [who] live more than 25 miles from the hospital”.
Can you see the problem? It’s right there—hard-wired into the “Rural” Referral Center definition.
The regulatory standard just requires referrals. It doesn’t require ANY referrals FROM a RURAL area.
Worse yet is the idea of judging relevant referrals based on a 25 mile radius. The Medicare definition of ANY hospital’s CORE service area for determining provider-based status is 35 miles.
So, in other words, a “rural” referral center that is actually an urban facility can meet the “rural” referral criteria by securing ALL of its referrals from WITHIN its OWN service area.
Even More Absurd: The same hospital can SIMULTANEOUSLY be a RRC for 340B purposes and an URBAN hospital for Medicare wage index purposes.
Because THAT makes sense.
Reasons for Concern: And it’s not just Brigham, of course. The BRG study ihughlights that there was about an 80% increase in RRC 340B purchases, each year, from the end of 2017 to 2022.
That rate of growth was TWICE the already outrageous rate of growth of the program as a whole.
So, here’s a novel idea, how about we rewrite the RRC definition to actually require a substantial number of referrals from the 80% of the US actually classified as being “rural”?
Or is that too rational for this program?
#340b#ruralheathcare#rrcBerkeley Research GroupBrigham and Women's Hospital
Support Caregivers This Daan Utsav: Build a Lifeline Through Our Care Directory .
By donating INR 5,000, you can help us expand our curated Care Directory—a vital resource offering family caregivers free access to trusted services, including medical supplies, home care, and more.
Your contribution ensures that caregivers have the support they need to continue their essential work.
https://lnkd.in/dhZiej2S
Let’s make a real impact together.
#DaanUtsav#CareForCaregivers#SupportCaregivers#HealthcareResources#SocialImpact
Team Abseil for Northern Ireland Chest Heart And Stroke 🧗
On May 19th, some members of our Tarasis Enterprises team – Amy, Amie, Catherine, Danielle, and Mary – are taking on an incredible challenge: abseiling down the iconic Europa building to raise funds for Northern Ireland Chest Heart and Stroke (NICHS).
Why Abseil for NICHS? In NI, chest, heart, and stroke illnesses affect countless lives. Did you know they're the #1 cause of death in NI? With 14 deaths per day or 5,268 per year, this is a stark reality that drives us to make a difference.
Every penny raised will fund vital research, provide essential services, and support those affected by these health challenges.
How You Can Help:
👉 Donate, big or small, here: https://lnkd.in/ej5aAvbe
Your generosity means the world to us and makes a real difference in creating a healthier, happier community.
#AbseilForNICHS#TarasisEnterprises#CommunitySupport#MakeADifference#TarasisHealthcare#CSR
Voices of Hope is dedicated to meeting the essential requirements during the early stages of recovery. 🌟 They understand that seemingly minor setbacks can have a major impact. From doctor's appointments to family reunification and court cases, their peer recovery specialists work tirelessly to support individuals in overcoming barriers to long-term recovery. Your support helps them provide vital funding for urgent needs like food and assistance, making a real difference in someone's journey. Together, let's break down barriers and build a stronger community. 💙🤝
Join us today for a FREE workshop in partnership with Voices of Hope. Seats are limited, so please register here in advance.
RSVP here: https://lnkd.in/gKhe63u4
*𝑊ℎ𝑒𝑛 𝑦𝑜𝑢 𝑏𝑢𝑦 𝑜𝑟 𝑠𝑒𝑙𝑙 𝑎 ℎ𝑜𝑚𝑒, 25% 𝑜𝑓 𝑡ℎ𝑒 𝑐𝑜𝑚𝑚𝑖𝑠𝑠𝑖𝑜𝑛 ($2,500 𝑓𝑜𝑟 𝑡ℎ𝑒 𝑎𝑣𝑒𝑟𝑎𝑔𝑒 𝑀𝑎𝑟𝑦𝑙𝑎𝑛𝑑 ℎ𝑜𝑚𝑒) 𝑐𝑎𝑛 𝑏𝑒 𝑑𝑜𝑛𝑎𝑡𝑒𝑑 𝑡𝑜 𝑉𝑜𝑖𝑐𝑒𝑠 𝑜𝑓 𝐻𝑜𝑝𝑒. 𝑊ℎ𝑎𝑡 𝑎 𝑔𝑟𝑒𝑎𝑡 𝑤𝑎𝑦 𝑡𝑜 ℎ𝑒𝑙𝑝 𝑠𝑢𝑐ℎ 𝑎𝑛 𝑖𝑚𝑝𝑜𝑟𝑡𝑎𝑛𝑡 𝑛𝑜𝑛-𝑝𝑟𝑜𝑓𝑖𝑡 𝑜𝑟𝑔𝑎𝑛𝑖𝑧𝑎𝑡𝑖𝑜𝑛.
#VoicesofHope#VoH#RecoveryCommunity#recovery#drugaddiction#drugaddictionawareness#betterlife#nonprofitorganization#nonprofit#YourHomeSoldGuaranteedRealty#YHSGR#GoServeBig
Screenwriter, Owner and co-founder of Creative Services Firm
4moYou're always a leader, no matter what the situation! You warm my heart.