Byers Eye Institute at Stanford’s Post

We are looking for participants with Thyroid Eye Disease to join this important clinical trial. Travel costs may be paid for those who live out of the area. Learn more here: https://buff.ly/4azIsmv #Ophthalmology #ClinicalTrial #ClinicalStudy #Research #TED #ThyroidEyeDisease #GravesDisease

Learn about PEMF for Parkinson’s disease by studying its proposed action mechanisms, clinical trial data, limitations, and future directions. https://lnkd.in/dpDNQaaw #parksinsonsdisease #antiaging #longevity #PEMF

Early engagement with subject matter experts and collaboration with rare disease patient communities is essential to preparing for successful precision medicine trials. In our therapeutic spotlight, ICON experts outline a framework of critical front-end considerations to optimise rare disease development strategies including the unique requirements for ALS trials. Read more. https://ow.ly/67Yn50TFljF #RareDisease #ALS #PrecisionMedicine #ClinicalTrials

Unmet Needs in Rare Diseases: A Call for Action Continuing our Rare Disease Day (Feb 29th) series, ZoomRx delves into unmet needs identified by 100 MDs treating these conditions. Key findings:  ➡️Improved treatment efficacy is the top unmet need, highlighting the crucial need for effective treatments.  ➡️Investment in research for new therapeutic targets and modalities is strongly emphasized by MDs.  ➡️Clinical decision support tools and educational programs are seen as crucial resources for improved care. These findings underscore the need for continued research, collaboration, and targeted resources to address the unique challenges of rare diseases. Read more in detail: https://bit.ly/49S00tm Stay tuned for our next post on patient challenges! #RareDiseaseDay #UnmetNeeds #MedicalResearch #Healthcare 

Big changes in rare disease clinical trial planning are afoot! Under the new FDA Diversity Action Plan guidelines, even rare diseases & small study programs must submit plans to ensure diversity in clinical studies! No matter how “rare” or “small”, Tea Leaf Health's Health Equity AI helps find why a patient might not quickly/easily want to join a trial & then creates custom videos that speak to their unique lived experience & helps address their fears and concerns. Ping us for a free case study of this in the rare kidney disease space #rarediseases #CKD #kidneydisease #iganephropathy #polycystickidneydisease #SDOH #healthequity #clinicaltrialrecruitment #FDA

We sit down with Kim Moran, SVP & Head of U.S. Rare Diseases at UCB, to discuss the vital role of patient collaboration in driving innovation for the care and support of Myasthenia Gravis (MG) patients. Inspired by patients and driven by science, UCB is dedicated to exploring the patient journey to uncover uncertainties and develop new advancements for MG patients. Watch the full story on TheBalancingAct.com/rare #BehindTheMystery #MyastheniaGravis #MyastheniaGravisAwareness #MGAwareness #RareDisease #UCB #RareDiseaseAwareness

🔍 𝐒𝐡𝐞𝐝𝐝𝐢𝐧𝐠 𝐋𝐢𝐠𝐡𝐭 𝐨𝐧 𝐅𝐚𝐜𝐭𝐨𝐫 𝐗 𝐃𝐞𝐟𝐢𝐜𝐢𝐞𝐧𝐜𝐲: 𝐈𝐧𝐬𝐢𝐠𝐡𝐭𝐬 𝐟𝐫𝐨𝐦 𝐏𝐫𝐨𝐟. 𝐑𝐨𝐛𝐞𝐫𝐭 𝐊𝐥𝐚𝐦𝐫𝐨𝐭𝐡 "𝐹𝑎𝑐𝑡𝑜𝑟 𝑋 𝐷𝑒𝑓𝑖𝑐𝑖𝑒𝑛𝑐𝑦 𝑖𝑠 𝑎 𝑟𝑎𝑟𝑒 𝑏𝑙𝑒𝑒𝑑𝑖𝑛𝑔 𝑑𝑖𝑠𝑜𝑟𝑑𝑒𝑟 𝑡ℎ𝑎𝑡 𝑜𝑓𝑡𝑒𝑛 𝑔𝑜𝑒𝑠 𝑢𝑛𝑑𝑖𝑎𝑔𝑛𝑜𝑠𝑒𝑑. 𝐵𝑦 𝑖𝑛𝑐𝑟𝑒𝑎𝑠𝑖𝑛𝑔 𝑎𝑤𝑎𝑟𝑒𝑛𝑒𝑠𝑠, 𝑑𝑢𝑟𝑖𝑛𝑔 𝑖𝑛𝑡𝑒𝑟𝑛𝑎𝑡𝑖𝑜𝑛𝑎𝑙 𝑚𝑒𝑑𝑖𝑐𝑎𝑙 𝑎𝑛𝑑 𝑠𝑐𝑖𝑒𝑛𝑡𝑖𝑓𝑖𝑐 𝑐𝑜𝑛𝑔𝑟𝑒𝑠𝑠𝑒𝑠, 𝑤𝑒 𝑐𝑎𝑛 𝑒𝑚𝑝𝑜𝑤𝑒𝑟 𝑝𝑎𝑡𝑖𝑒𝑛𝑡𝑠 𝑡𝑜 𝑔𝑒𝑡 𝑡𝑖𝑚𝑒𝑙𝑦 𝑑𝑖𝑎𝑔𝑛𝑜𝑠𝑖𝑠 𝑎𝑛𝑑 𝑡𝑟𝑒𝑎𝑡𝑚𝑒𝑛𝑡, 𝑤𝑖𝑡ℎ 𝑡ℎ𝑒 𝑢𝑙𝑡𝑖𝑚𝑎𝑡𝑒 𝑔𝑜𝑎𝑙 𝑜𝑓 𝑖𝑚𝑝𝑟𝑜𝑣𝑖𝑛𝑔 𝑡ℎ𝑒𝑖𝑟 𝑙𝑖𝑣𝑒𝑠.” At this year’s 𝐖𝐨𝐫𝐥𝐝 𝐅𝐞𝐝𝐞𝐫𝐚𝐭𝐢𝐨𝐧 𝐨𝐟 𝐇𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬, we were joined for our sponsored presentation by Robert Klamroth, Chief Physician at Vivantes, as he shared the latest updates on 𝐇𝐞𝐫𝐞𝐝𝐢𝐭𝐚𝐫𝐲 𝐅𝐚𝐜𝐭𝐨𝐫 𝐗 𝐃𝐞𝐟𝐢𝐜𝐢𝐞𝐧𝐜𝐲, including how to identify patient needs to improve their disease management. ⤵️ Watch the full interview. #WFHCongress2024 #TreatmentForAll #GlobalHealth #BleedingDisorder #FactorXDeficiency #RareDiseaseAwareness #Healthcare World Federation of Hemophilia / Fédération mondiale de l'hémophilie

🔬 Dive into the convergence of clinical trials and real-world data within the realm of diabetic kidney disease research! 👩🔬 This study, conducted by experts, uncovers notable differences and promising synergies between these datasets. From demographic nuances to vital signs, witness how merging these sources enhances comprehension and treatment strategies. Read more: https://bit.ly/43xNCNj for more information on how we can help visit (www.bioviser.com) #diabetickidneydisease #researchinsights #clinicaltrials #realworlddata #healthtech #medicalresearch

This #MyelomaActionMonth we are recognizing the importance of scientific progress to advance treatment options for #multiplemyeloma. We are continuing to invest in innovative treatment modalities and identifying effective research approaches so that we can work towards progress for patients around the world. Learn more about how we’re committed to helping patients with this disease: https://bit.ly/3T30DJw

We sit down with Kim Moran, SVP & Head of U.S. Rare Diseases at UCB, to discuss the vital role of patient collaboration in driving innovation for the care and support of Myasthenia Gravis (MG) patients. Inspired by patients and driven by science, UCB is dedicated to exploring the patient journey to uncover uncertainties and develop new advancements for MG patients. Watch the full story on TheBalancingAct.com/rare #BehindTheMystery #MyastheniaGravis #MyastheniaGravisAwareness #MGAwareness #RareDisease #UCB #RareDiseaseAwareness