CCLG: The Children & Young People’s Cancer Association’s Post

September is #ChildhoodCancerAwarenessMonth!    Most childhood cancers cannot be prevented, it is therefore paramount for the healthcare providers or parents to recognize early signs and symptoms for timely diagnosis and treatment.    This reminds us that early detection helps save children's lives. In the Eastern Mediterranean Region,     🔵About 36,000 children aged 0-19 years are diagnosed with cancer every year  🔵Over 70% of children with a cancer diagnosis died in 2022    Let’s work together to improve survival rates and provide better care. In low- and middle-income countries, survival rates of children with cancer can drop to as low as 20%. Those who survive may live with a disability.    Every child deserves treatment and access to comprehensive childhood cancer care without financial burden. This will help improve survival rates. #ChildhoodCancer

"Your child has cancer." Each day, 47 families in the U.S. endure the trauma of learning that their child has cancer. These families and households are flipped completely upside down. ⁠ Thousands of parents/caregivers have to watch their child go through traumatic medical care. ⁠ ⁠ Thousands of parents/caregivers hold onto hope for years that their child will escape from this life-threatening illness.⁠ ⁠ Over 15,000 kids under 19 are diagnosed with cancer in the U.S. each year. It's hard to estimate, but this mean that approximately 40-70,000 kids are in some form of active treatment each year, suffering through this disease, while continuing to light up their family's world. 💛⁠ Approximately 500,000 survivors of childhood cancer are alive in the U.S. today and 2/3 of those survivors face life-limiting late-effects of the treatments that saved their lives. Yet childhood cancer continues to be the #1 disease killer of kids in this country. ⁠1 in 5 kids diagnosed will not survive. ⁠ All families could benefit from focused, personalized, quality of life care as part of their child's care roadmaps in both treatment and survivorship, and yet this is not a part of most plans. ⁠ We hope you will join us this month and use your voice and platform to advocate in support kids and families in their quest to THRIVE with cancer. 🙏 💛 #childhoodcancer #childhoodcancerawarenessmonth #maxloveproject

Building Resilience in Breast Cancer Patients – A Journey Through Pain and Survival You see, our dear people, There are many women who have to go through breast cancer all by themselves encircled by tears and forgetfulness. And what goes through your mind when you diagnose a lump? The lump has a sort of a fear pressure that goes above but no one knows where to go. People say that it is a shame, and handle breast cancer in secrecy. As the mothers say, this is very bad luck, a bad dream. And instead of seeking help, the women keep the pain in for long. As time stretches on and months are counting, the cancer staggers and any hopes left decreases further and deeper. When a woman finally gathers the courage to seek treatment, she’s often faced with another harsh reality: First the financial burden is unbearable. Surgery whether it's a mastectomy, lumpectomy, or other procedures is costly. And beyond the physical loss, there is the emotional toll. Imagine looking in the mirror and no longer recognizing your own body. The scars left behind are more than skin deep. In many cases, these women are left to bear the brunt of their suffering alone. In small towns and villages, the stigma attached to breast cancer can be devastating. Husbands leave, neighbors gossip, and friends withdraw. The woman who once held her head high now finds herself battling shame, fear, and the deep-seated pain of being judged by her community. The emotional toll is often too much to carry. The CDC (2021) reminds us that resilience and emotional strength are crucial for survival, but in many of our communities, mental health support is either unavailable or overlooked. How do we expect these women to stay strong when they’re fighting not only the disease but also the harsh realities of their world? 💡 Cancer takes so much from these women, but with resilience, they can take back their lives. Let’s stand with them. Let’s help them find the strength to keep going, even when it feels like all hope is lost. #ResilienceInCancer #MentalStrength #PBOHICares #BreastCancerSupport #NoWomanLeftBehind #FightWithHope #CommunityHealing

Over 8 in 10 children now survive cancer, making it more important than ever to focus on improving life after treatment. We’re thrilled to announce two vital new projects to support patients and their families after childhood cancer treatment ends 🎗️💛 Susie Aldiss, at the University of Surrey, is improving communication during the crucial end-of-treatment phase. She said: “When a child finishes treatment, it is vital that the family is given information about the child’s cancer and treatment, possible late effects, and plans for follow-up. There are many long-term side effects of cancer and treatment; families need to know what to look out for and how to get help if they need it.” Dr Raoul Reulen, at the University of Birmingham, is tackling long-term health challenges like mental health and chronic pain by creating a database of health data after childhood cancer to guide future care. These projects are a big step toward ensuring children and families thrive after cancer. Read more at https://bit.ly/4gbNnfR #CCLG #ChildhoodCancer #ChildhoodCancerResearch #LifeAfterCancer

Discover how to offer invaluable support to loved ones battling cancer with this all-encompassing caregiver's guide. 🎗️ From comprehending the disease to providing practical aid and emotional comfort, empower yourself to navigate the journey with grace and compassion. #CancerCare #CaregiverSupport #CompassionateCare 🌟 https://lnkd.in/dDuPrfrr

Breast Cancer Awareness Month Unfortunately, statistics show that Cancer is on the increase. The best thing You can do for Yourself and those that are Financially dependent (children, parents, family, etc.) on You - *Ensure that You go for regular check-ups (as much fun as this may be) as prevention is key *Have your yearly portfolio review with Your financial planner to see if You need anymore additional Dread Disease (Chronic illness) cover *Medical aid is great, but You need additional cover in place, as Cancer is, unfortunately Expensive My mom and dad are part of these Statistics I talk of, and medical aid did assist, but there were additional expenses that medical aid did not cover. So where do you find these additional funds to cover these expenses, on top of your daily / monthly expenses? If you want to know more, or you want to put some additional security in place, send me a message. Partnering With You In Securing Your Family's Financial Future Think Financial Advice - Think MVT #stayblessed #thankyoulord #noregrets #mvt #cancer #awareness #month

Such an important post, please take a minute to read

Our book, "HER2: The Diagnosed, The Caregiver, and Their Son," is officially out today! This is the book I needed to make and wished I had when I was diagnosed 7 years ago. It is launching during Breast Cancer Awareness Month, which can be a hard time of year for so many. That is part of why I feel our book is needed - to address some of the long term impacts of illness that are not often discussed and rarely shown in visuals. I wanted to make a book that showed how much I am still grieving while also shows how much joy I feel in simple pleasures. I wanted to show how my husband and I got through it all together, while at the same time found distance forming between us with so much we were afraid to say out loud to eachother that ultimately burdened us. And I want to focus on solutions that can help bring real support to the diagnosed and their loved ones, while also reminding others out there about the importance of early detection. By sharing our journey--the good, the hard, and everything in between--we hope to offer an authentic perspective that helps others feel a little less alone. Available on Amazon now:   https://lnkd.in/eVtEtqUb #HER2Book #BreastCancerAwareness #CancerCommunity #Caregivers #MentalHealth #FinancialToxicity #YouAreNotAlone #BreastCancerAwareness #CancerResearch #StorytellingMatters #breastcancerawarenessmonth #CancerSupport #EmpoweredVoices

Cancer treatment involves many new and scary experiences for children and young people, including numerous x-rays and scans, sometimes between 5 and 100 during treatment and care. This can be especially difficult for those with autism or learning difficulties, who may struggle to understand or control what's happening. Claire, whose son James was diagnosed with leukaemia in 2014, explained: “My child has Down syndrome and associated learning difficulties, so if the radiographer gives multiple instructions like come in, go over there, sit on the couch and take your top off, he’s lost and confused immediately.” CCLG Chief Nurse, Jeanette Hawkins, is leading a project as part of the NHS Cancer Experience of Care Improvement Collaborative that aims to improve the experiences of children and young people with autism and/or learning difficulties during cancer treatment. She said: "The program enables healthcare professionals and people with lived experience of cancer to work together in order to improve the NHS cancer service. "The project is ongoing. We have developed a tool to assist with improving the experience of having an X-ray, and we hope to start testing in the next few months." You can find out more about the project at https://bit.ly/49tW4P3 #CCLG #ChildhoodCancer #ChildhoodCancerSupport

Childhood cancer is the #1 disease killer of kids in the U.S. ⁠We created this image 12 years ago and this fact has not changed. Did you know? ⁠ 🎗️ 1 in 5 kids diagnosed with cancer do not survive due to either the progression of the diagnosis itself, the treatments, or both. ⁠ ⁠ 🎗️ 3 of 5 kids diagnosed with cancer face significant late-effects of treatment, including secondary cancers and and a multitude of debilitating diseases. ⁠ ⁠ 🎗️ Approximately 10,000 kids under the age of 15 will be diagnosed with cancer in the U.S. in 2024.⁠ ⁠ There has been significant progress over the past ten years thanks to investments in science and a growing awareness of the power of integrative modalities for quality of life, but much of this progress is privately funded led by hurting families, all while childhood cancer rates are increasing.⁠ ⁠ Help us make a dent in the stats. Together we can move the needle. Please don't forget about our kids and our cause. We need your voice, advocacy, and support! ⁠ Oh! And grab one of our classic Childhood Cancer Awareness Month tees in our merch shop here: https://lnkd.in/edC-ddxc 💛⁠ ⁠ ⁠ ⁠ #childhoodcancer #pediatriccancer #thriverevolution #thriveagainstcancer #qualityoflife #qualityoflifematters #childhoodcancerawareness #childhoodcancerawarenessmonth⁠ #maxloveproject