CCLG: The Children & Young People’s Cancer Association’s Post

When someone you know receives a #GynaecologicalCancer diagnosis, you want to help. But you may not know how. Here are a few ways to help someone during #CancerTreatment, 1. Deliver meals. Organize friends and family to take turns preparing and bringing meals while the patient recovers. Or you could take care of the grocery shopping, or order groceries online and have them delivered. 2. Help keep their household running. Cook, clean, do the laundry, wash dishes, make sure the bills get paid, get the kids dressed for school, walk the dog, and do all the things that the person in cancer treatment would normally do to keep life going for the rest of the family. 3. Give the primary caregiver a break. Go to doctor’s appointments in the caregiver’s place, help with the kids or pets, organize medications, or send the patient’s spouse, parent, or child off for a massage or a night or weekend to unwind. This can ease the caregiver’s stress and give them the energy to keep going. 4. Take care of their children. Take them to school or sports practice, help with homework, or have them over for a slumber party or playdate. This can help take the kids’ minds off of cancer and ease their parents’ stress. 5. Stay connected. Text, call, email, etc. One idea is to coordinate a phone chain among friends. Each day at a specific time, a friend calls and checks in with the patient. This is a great way to let the patient know you are thinking of them. For consultation with a #GynaecologicOncologist, please call at ph +91 9820458696 or visit the website by clicking on the link https://buff.ly/3rXKU51

During #ALSAwarenessMonth, we come together to shine a light on people living with #ALS. People like Jim, who shares his insights on how people in the ALS community can live a life of meaning and purpose even as the face the disease, as he is. https://bit.ly/jim-plews

Speaking about bowel screening to younger audiences, like primary school kids, is crucial in spreading awareness about the importance of early detection and prevention of colorectal cancer. By educating them early on about the significance of regular screenings, we in still healthy habits and empower them to take charge of their health as they grow older. Addressing them at events like Polyfest not only raises awareness among the children themselves but also among their families and communities. It's about breaking down the stigma surrounding discussions about bowel health and promoting a culture of openness and proactive health care. Engaging with young minds about bowel screening lays the foundation for a future where preventative health measures are embraced and practiced from an early age, potentially saving countless lives. #BowelCancer #BowelScreeningProgramme #Polyfest2024 #Bowelcancerawareness #Savelives

Getting a diagnosis and undergoing treatment for a serious illness like cancer is incredibly stressful. While we’ve made significant strides in addressing patients' emotional health, caregivers often remain overlooked. A recent study reveals that only 16% of community cancer clinics routinely screen caregivers for distress, compared to over 90% for patients. This disparity leaves many caregivers without the mental health support they need. Dr. Chandylen Nightingale of Wake Forest University explains, “Caregiver well-being impacts the ability of people to provide care for their loved ones. It can affect the emotional state and even the hospital visits of the person with cancer.” This is one of the reasons we extend our support systems to caregivers, ensuring they receive the help they need. Together, we can make a difference. 💖 #CancerCare #CaregiverSupport #MentalHealth #EmotionalWellBeing #OsaraHealth #SupportCaregivers

🎗️ January is Cervical Cancer Awareness Month 🎗️ This month, we’re highlighting the importance of cervical cancer prevention and early detection. 💜 Early intervention can save lives, so stay informed and make screenings a priority. Here at SPD Financial, we understand that health challenges can be overwhelming. That’s where income protection and critical illness cover come in: 🔑 Income Protection: Replaces a portion of your income if you’re unable to work due to illness, giving you peace of mind while you recover. 💼 Critical Illness Cover: Pays out a lump sum if you’re diagnosed with a serious illness, helping with treatment costs and time off work. Having the right coverage in place can help ease financial stress during difficult times, so you can focus on what matters most – your health. 💖 Take a moment this month to review your policies and ensure you're fully protected. 📲 sam@spdfinancial.co.uk 🌐 www.spdfinancial.co.uk (Please note we don't charge a fee for our service as we receive commission from the product provider)

🩸💙 World Hemophilia Day 💙🩸 Today, on World Hemophilia Day, MeCare stands in solidarity with the global community to raise awareness about hemophilia and other inherited bleeding disorders. This day is dedicated to increasing understanding, advocating for better access to care, and supporting the millions of individuals and families affected worldwide. Hemophilia is a rare disorder in which blood doesn't clot normally due to the lack of sufficient blood-clotting proteins. Despite the challenges posed by the condition, advances in medical research and treatment have significantly improved the quality of life for those affected. Yet, the journey towards equity in care and the eradication of treatment disparities continues. At MeCare, we are committed to this cause, working tirelessly to ensure that individuals with hemophilia and bleeding disorders have access to the care and support they need. We build connections with healthcare providers and organizations specializing in hemophilia care to offer comprehensive resources and assistance to our community. 🔹 Connecting to Specialized Care: We leverage our network to connect individuals with hemophilia to healthcare providers experienced in their management and treatment, ensuring access to knowledgeable care. 🔹 Advocacy for Access: Understanding the critical need for comprehensive care, MeCare advocates for increased access to treatments and services that can transform the quality of life for those with bleeding disorders. 🔹 Support and Guidance: While we are growing our resources, MeCare is here to offer guidance and support, helping navigate the healthcare landscape to find the assistance needed. This World Hemophilia Day, let's unite in our efforts to shine a light on hemophilia, push for advancements in treatment, and advocate for equitable access to care for all. Together, we can make a difference in the lives of those affected by bleeding disorders. Join us in marking this important day and spreading awareness about hemophilia and the need for equity in care. #WorldHemophiliaDay #BleedingDisorders #EquityInCare #MeCare #Solidarity

Palliative care for children with cancer is not just an ethical responsibility—it’s a critical need that can improve quality of life and ease suffering for both patients and their families. Yet, as Dr. Jorge Ramos and Dr. Michael J. McNeil discuss in their latest Re:solve op-ed, significant disparities exist in pediatric palliative care, especially in low- and middle-income countries. Over 60% of countries worldwide lack formal pediatric palliative care services, leaving millions of children without the care they need. In Mexico, despite a strong legal framework, nearly half of the pediatric population has little to no access to palliative care services, underscoring the urgent need for tailored solutions. Read the full piece on how we can bridge the gap in palliative care for children: https://lnkd.in/eY2pbFFu #PalliativeCare #ResolveChildhoodCancer #HealthcareEquity #GlobalHealth #ResolveGlobalHealth

Only two more days to sign up for our free online event to learn more about ASSIST-IBD and how teens and parents can take part in our research. ASSIST-IBD has been designed with young people with IBD to help others follow their treatment plan. The programme contains activities and podcasts tackling tricky topics such as 💊Taking medication 👩⚕️Talking to healthcare professionals 🚶♀️Following lifestyle advice 💬Telling others about your IBD We are now looking for young people to try out ASSIST-IBD for 6-12 weeks and tell us what it is like to use. We are also interested in parents/guardians’ views of our parent resources. To explain this project in more detail we are hosting an online information evening on Thursday 12th September 2024 at 6-7pm. During the event you will be able to ask the research team questions about the project. This event is free to attend and open to young people (aged 13-17) who have been diagnosed with IBD and live in the UK as well as parents/guardians of young people (aged 13-17) who have been diagnosed with IBD and live in the UK To register for this event use the link below: https://lnkd.in/esy2kZ_H ASSIST-IBD, co-designed by young people with IBD, for young people with IBD! #crohnsandcolitisuk #crohns #colitis #inflammatoryboweldisease

You won’t leave FGH's Annual "Keep SEALing in Hope" Sickle Cell Disease Awareness Banquet the same. Our ultimate goal is to get attendees more informed and ready to do their part/ encourage others to do the same. We educated those near and far about SCD in memory of RJ McKnight, one of the hearts in “Four” Giving Hearts, and ALL warriors. “Sickle cell disease (SCD) is a common inherited blood disorder in the United States, affecting an estimated 90,000 to 100,000 Americans. SCD can lead to lifelong disabilities and reduce average life expectancy” (cdc.gov). “About CDC’s Work on Sickle Cell Disease” https://lnkd.in/eki8jrdN. Learn more about FGH and sickle cell disease- www.fourgivinghearts.org. Event Sponsored by Pfizer Learn more at www.TogetherForRare.com www.sicklecellspeaks.com Event Sponsored by AYS Media special thanks to the Spears family and the Leatherman Senior Center Note- As always, please consult your medical provider before making any changes to your health plan. We don’t own this music. Focusing on 1. Health 2. Family 3. Education and 4. Community! We foster “for” giving hearts and responsible citizenship. #FGH #fourgivinghearts #RJ #science #sicklecell #sicklecellwarrior #sicklecellawareness #sicklecellanemia #sicklecellawareness #SickleCellSucks #sicklecelldisease #sicklecellstrong #sicklecellmatters #sicklecellfighter #SickleCellAnemia #sicklecelllifestyle #sicklecelltrait #sicklecellwarriors #sicklecelltreatment #nationalblooddonormonth

Cervical Cancer is Preventable. While Cervical Health Awareness Month is coming to a close—it's never too late to highlight the importance of prevention and screenings. Early detection saves lives. This is your sign to encourage the women in your life to schedule their screenings and prioritize their health. A simple test could make all the difference! Let’s Spread the Word. Share this post to support others in keeping their health at the top of their to-do list.