CHARGE Syndrome Australasia’s Post

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Speech Pathologist and Deafblind Consultant

Madelene Rich opened one morning with a quick poll about access to early intervention. A healthy number of parents confirming having access to support that included language modelling, play and sharing experiences. But what was more startling; the age of those ‘children’ was at least 25 years old and many older … What support and access to early intervention are today’s parents of children with CHARGE syndrome getting? 

  • A woman in a pink floral shirt addressing the audience from a lectern. A woman dressed in black stands to her right and is sign language interpreting.

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