Earlier this month, CHA hosted our annual Family Advocacy Day in Washington, DC. This year, we were proud to welcome over 300 attendees including over 180 children and their families to champion pediatric care and amplify the needs of patients and caregivers across the country. Throughout the event, families shared their personal experiences with federal lawmakers, underscoring the critical importance of Medicaid and the need for continued support and access to life-saving care. A highlight of the week was a special “Kids and Congress” advocacy event with members of the Ways and Means Committee, where pediatric patients shared their stories. From over 130 meetings on Capitol Hill to a celebration dinner, there were many memories made. Thank you to all the families who took the time to travel to D.C and raise their voices, and to our event partners who helped make #FAD2024 a success! Together, we are making a difference and paving the way toward a brighter, healthier future for children. #TeamCHA Watch our short recap video:
Children’s Hospital Association’s Post
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"My goal is to bring the Blythedale type of model, even for long term care, out to different sections of the United States, because every child deserves that." President & CEO Larry Levine explains why its vitally important to have dedicated pediatric facilities for medically complex children like The Steven & Alexandra Cohen Foundation Pediatric Long Term Care Pavilion. Learn more about his advocacy work by watching The Visionaries here: https://lnkd.in/dtbtBgQg #ThoughtLeadershipThursday #medicallycomplex #raredisease #childrenwithdisabilities
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What is the ADEAR Center (Alzheimer's and related Dementia's Education and Referral Center) and how does it help people who are affected by dementia? In this video, I discuss this free resource. For virtual elder advocacy and consultations, visit AgeWellAdvocacy.com!
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Watch our #webinar recording, Building the Business Case for State #PaidFamilyLeave: Lessons from Advocacy and Implementation, where panelists discuss business concerns around the adoption of statewide paid family and medical leave (#PFML) programs: https://bit.ly/3J6dYMI
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Stroke = TIME!!! When you feel any of these: inbalance, blurred vision, face assymetry, arms or legs weakness, speech difficulty, call an ambulance. It is a matter of minutes. Stroke can manifest even if are have healthy BMI, blood pressure, are a non-smoker, and young. After missing the first symptom, just thinking it’s something temporary, you can lose your ability to move your hands, talk, see the next day. And also be aware of your loved ones if they show any of these. Share this to your network and spread stroke awareness.
We stand with all of our members and remain committed to continuous awareness, education, and advocacy for those affected by #stroke. #ABrainCoProud #WorldStrokeDay American Heart Association International Alliance for Pediatric Stroke
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We need to hear from you! #ALSFocus surveys bring the perspectives of people with #ALS and caregivers to the forefront of research, care, and advocacy. Our latest survey focuses on clinical trials and treatment needs. Respond today: alsfocus.org!
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AAP is looking back at the some of the most significant moments in our long history of advocacy. The passage of the Affordable Care Act (ACA) in 2010 was a significant step forward for children and pediatricians. As one of our central priorities, AAP spent years advocating for inclusive healthcare policies benefiting both children and pediatricians. The ACA made a crucial difference in children's healthcare coverage, decreasing the percentage of uninsured children from 9.7% in 2009 to 4.7% in 2016. Learn more at https://lnkd.in/dudS9xRK. #MovingPediatricsForward
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Assistant Dean Student Affairs, University of Arizona College of Medicine, Director of Inflammatory and Aging Skin Research Program
National Eczema Association The Eczema Expo is my favorite conference hands down. Such a great mix of patients, providers, advocacy groups and industry. Can tell… this is how progress happens for eczema patients. We talked: itch, aging, 7 types of eczema, and how to optimize your appointments.
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We need to hear from you! hashtag #ALSFocus surveys bring the perspectives of people with hashtag #ALS and caregivers to the forefront of research, care, and advocacy. Our latest survey focuses on clinical trials and treatment needs. Respond today: alsfocus.org!
We need to hear from you! #ALSFocus surveys bring the perspectives of people with #ALS and caregivers to the forefront of research, care, and advocacy. Our latest survey focuses on clinical trials and treatment needs. Respond today: alsfocus.org!
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By disseminating this public form, RCAW will connect with underserved population advocacy entities we may not have known about and who might not know about RCAW. We want to make contact, build relationships, and share education and resources. To learn more about RCAW's Policy for Underserved Populations (determined from First Principles: Cross-Cutting Considerations for Family Caregiver Support, Developed by The Recognize, Assist, Include, Support, and Engage (RAISE) Act) and to connect with us, visit https://lnkd.in/gFKfjgqV
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Tune in to Episode 16 to chat with Caryn Isaacs about patient advocacy and all that entails. What is a patient advocate? What is "private" patient advocacy? How does a family benefit from this type of resource? Listen to the new episode here! 👉 https://loom.ly/bQ5LBjY #eldercare #patientadvocate #patientadvocacy #seniorcare #caringforlovedones
A Conversation about a Patient Advocate and an Aging Icon. Plus Stories of Care - Caring in America
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