Life with cystic fibrosis can be expensive. But nobody should have to choose between getting the healthcare they need and putting food on the table.
CF Foundation staff, Cristen Clemm, MSW, and Kim Reno, ACSW, LISW-S, MSW, co-authored a recent article published by Wiley, highlighting the challenges faced by people with CF and the need for better support and intervention. Read the article: https://lnkd.in/epcMvZVq
Director of Audit and Compliance, Office of Chemical Safety and Pollution Prevention at US Environmental Protection Agency and Board Member of Cystic Fibrosis Foundation, Metro DC Chapter
The medical expenses of people with cystic fibrosis are absolutely staggering, even for people are employed and have good health insurance. No one should have to struggle to properly nourish themselves or their families. Needy people may be your coworkers and you may not even realize it. Raising two children with CF has been the greatest challenge of my life, and revealed to me what an extraordinary privilege it is to enjoy good health.
It is extremely challenging to have CF, or be a caretaker of someone with CF. I hope that the study participants were paid well for their time and insights.
This breaks my heart. We have to do better for these kids and keep their mind free of this duress because now they have a future.
Thank you to my mom and dad for seeing me through this and getting me to where I am today!
What is Integrative Medicine?💭 Dr. Rebecca Fishman, Director of Integrative/Anti-Aging Medicine at Catholic Health, sums it up with one question: How do we get to the 'why' of your health condition, and what underlying causes can we change to reverse or prevent it from worsening?
Hear more in the latest episode of Stronger Together with Dr. Dave 👉 https://bit.ly/3Z05Wht
Thank to Francesco S. and IVAN J NÚÑEZ GIL for including me in this nice project on long term prognosis of COVID-19 hospitalized patients.
HOPE-2 clinical score is able to classify patients into three risk categories with increasing MACE rates.
Risk prediction of major cardiac adverse events and all-cause death following covid-19 hospitalization at one year follow-up: The HOPE-2 score
Francesco Santoro, Ivan J. Núñez-Gil, Maria Viana Llamas, Emilio Alfonso-Rodríguez, Aitor Uribarri, Victor Manuel Becerra-Muñoz, Gisela Feltes Guzman, Nicola Di Nunno, Javier López Pais, Enrico Cerrato, Gianfranco Sinagra, Massimo Mapelli, Riccardo M. Inciardi, Claudia Specchia, Chiara Oriecuia, Natale Daniele Brunetti
Abstract
Background
Long-term consequences of COVID-19 are still partly known.
Aim of the study
To derive a clinical score for risk prediction of long-term major cardiac adverse events (MACE) and all cause death in COVID-19 hospitalized patients.
Methods
2573 consecutive patients were enrolled in a multicenter, international registry (HOPE-2) from January 2020 to April 2021 and identified as the derivation cohort. Five hundred and twenty-six patients from the Cardio-Covid-Italy registry were considered as external validation cohort. A long-term prognostic risk score for MACE and all cause death was derived from a multivariable regression model.
Results
Out of 2573 patients enrolled in the HOPE-2 registry, 1481 (58 %) were male, with mean age of 60±16 years. At long-term follow-up, the overall rate of patients affected by MACE and/or all cause death was 7.8 %. After multivariable regression analysis, independent predictors of MACE and all cause death were identified. The HOPE-2 prognostic score was therefore calculated by giving: 1–4 points for age class (<65 years, 65–74, 75–84, ≥85), 3 points for history of cardiovascular disease, 1 point for hypertension, 3 points for increased troponin serum levels at admission and 2 points for acute renal failure during hospitalization. Score accuracy at ROC curve analysis was 0.79 (0.74 at external validation).
Stratification into 3 risk groups (<3, 3–6, >6 points) classified patients into low, intermediate and high risk. The observed MACE and all-cause death rates were 1.9 %, 9.4 % and 26.3 % for low- intermediate and high-risk patients, respectively (Log-rank test p < 0.01).
Conclusions
The HOPE-2 prognostic score may be useful for long-term risk stratification in patients with previous COVID-19 hospitalization. High-risk patients may require a strict follow-up.
Centro Cardiologico Monzino
MD, PhD, Consultant in Cardiology/Electrophysiology at Policlinico Riuniti, Foggia; Social Media Associate Editor #Europace
📢 Do you know that 7.8% of patients after COVID-19 hospitalization experienced MACE at one year Follow-up !!
HOPE-2 Score can stratify long-term risk in this subset of patients!!
Our new manuscript now free availabe on European Journal of Internal Medicine !! An international collaboration with 2573 patients enrolled! Natale Daniele BrunettiMassimo MapelliEnrico CerratoIVAN J NÚÑEZ GILhttps://lnkd.in/e-rK2M2U
A paper just published on the 2023 National Food is Medicine Summit, in which ACLM participated, emphasized the crucial role of Food as Medicine interventions in healthcare, focusing on health equity, chronic disease management, and innovative cross-sector partnerships.
For over 20 years, ACLM has championed food as medicine, helping to bridge the gap in medical education on FAM for improved health outcomes.
Learn more about the Summit's key takeaways here: https://bit.ly/488hUIK
Thrilled to announce the publication of a paper I co-authored: Outcomes in cirrhosis-related refractory ascites with emphasis on palliative care: single centre experience and literature review
This paper aims to explore palliative care input in those with refractory ascites.
RA is associated with high mortality but despite this, few patients are referred to the palliative care team.
Key conclusions:
- ‘RA is associated with high mortality with only a minority being eligible for curative options’
- ‘There needs to be a multifaceted approach to improve the end-of-life experience of patients and their caregivers with advanced cirrhosis including those with RA’
The full paper can be found here: https://lnkd.in/e53QkFtD
On March 7, clinicians, researchers, patients, MEPs and civil servants will gather in the European Parliament to showcase the importance of placing the brain as a top health and research priority in the EU, in an event hosted by EBC and Colm Markey (EPP Group in the European Parliament).
Key policy asks will be presented by the brain community and showcase the importance of placing the brain as a top health and research priority in the EU.
💡 An individualised, progressive walking and education intervention significantly reduced low back pain recurrence. This accessible, scalable, and safe intervention could affect how low back pain is managed.
👉🏻 This is from the new paper "Effectiveness and cost-effectiveness of an individualised, progressive walking and education intervention for the prevention of low back pain recurrence in Australia (WalkBack): a randomised controlled trial" by Pocovi et al 2024
📚 Do you struggle to stay on top of new research?
😫 You're not alone!
✅ Physio Network’s Research Reviews make it easy for you to keep up to date and provide better care for your patients. Try it for free for 7 days now.
🔗 https://lnkd.in/dx9zHWdA
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Disclaimer: Sharing a study is NOT an endorsement. You should read the original research yourself and be critical.
It is interesting to see how medicine, over the years, has set its sights on a future based on prevention, a term from yesteryear but which is now the pillar of what will be the medicine of the future, which is why thinking about medicine precision, a term that was introduced to talk about the personalization of treatments and reducing adverse effects. It is now perhaps the bastion of the medicine of the future, being a broader term that will allow us to see our patients not only as diseases but as their collective roots in societies, integrating all aspects of hospital medicine and public health.
We have a new study released this week in the Canadian Media Association Journal titled, "Leaving emergency departments without completing treatment among First Nations and non–First Nations patients in Alberta: a mixed-methods study."
May the findings in this study empower First Nations communities to advocate for better policies and systems in the Emergency Departments in our treaty areas.
To quote the paper: "Understanding whether and how anti-Indigenous racism in health care contributes to First Nations patients leaving without being seen or against medical advice is important to inform efforts to retain First Nations patients in care."
You can read the entire study here: https://lnkd.in/gvJyi2kR
🌍 Health Equity: A Critical Need in East Yorkshire and Hull 🌍
In regions like East Yorkshire and Hull, health equity isn’t just a goal—it’s a necessity. Addressing the unique health challenges in these communities is crucial to ensuring everyone has access to the quality care they deserve, regardless of socioeconomic status, geography, or background.
👩⚕️ Why it matters:
Hull and surrounding areas face significant disparities in health outcomes, from life expectancy to the prevalence of chronic conditions. Factors like access to healthcare, education, housing, and income levels play a huge role in shaping health trajectories. For many, these social determinants of health create barriers that are hard to overcome.
💡 What we can do:
1. Increase access to care: Improve availability of local healthcare services and outreach programs, particularly in under-resourced areas.
2. Focus on prevention: Invest in community health initiatives that tackle root causes—like diet, smoking cessation, and mental health support.
3. Collaboration across sectors: Build partnerships between healthcare, education, housing, and local government to create holistic solutions.
4. Strengthen diversity and inclusion in healthcare teams: Ensuring the workforce reflects the communities they serve helps build trust and more culturally responsive care.
Achieving health equity means every person, no matter where they live or their circumstances, has the opportunity to live a healthy life. Together, we can create more resilient, healthier communities in East Yorkshire and beyond.
#HealthEquity#EastYorkshire#Hull#HealthcareForAll#CommunityHealth#PublicHealthNHS Humber Health Partnership
Social Media, Knowledge Translation, #SciComm, & Thought Leadership Expert
What's health equity? How can we ensure it's central to every Cochrane review?
🤓 Find out in our upcoming web clinic with Jennifer Petkovic and Jordi Pardo Pardo from the Cochrane Health Equity Thematic Group. They'll introduce #HealthEquity and explain how to incorporate and report on it in the new Cochrane review format.
📅 Date: Thursday, 14th November
⏰ Time: 14.00 UTC, see link to check in your time zone
💻 Free for all!
Sign up here: https://lnkd.in/gAipCxZx
Who gives a sheet about linen optimization?
Join me for a live webinar on Thursday, June 27th at 12pm CST and let's examine the connection between linen layers, microclimate management, and pressure injury from a scientific and clinical perspective:
-The importance of linen layers in maintaining optimal microclimates
-The relationship between linen layers, microclimate management and pressure injuries
-Practical strategies and solutions for linen layer optimization to enhance therapeutic outcomes
https://lnkd.in/g5vsX8s8
Director of Audit and Compliance, Office of Chemical Safety and Pollution Prevention at US Environmental Protection Agency and Board Member of Cystic Fibrosis Foundation, Metro DC Chapter
2moThe medical expenses of people with cystic fibrosis are absolutely staggering, even for people are employed and have good health insurance. No one should have to struggle to properly nourish themselves or their families. Needy people may be your coworkers and you may not even realize it. Raising two children with CF has been the greatest challenge of my life, and revealed to me what an extraordinary privilege it is to enjoy good health.