Cystic Fibrosis Foundation’s Post

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Life with cystic fibrosis can be expensive. But nobody should have to choose between getting the healthcare they need and putting food on the table. CF Foundation staff, Cristen Clemm, MSW, and Kim Reno, ACSW, LISW-S, MSW, co-authored a recent article published by Wiley, highlighting the challenges faced by people with CF and the need for better support and intervention. Read the article: https://lnkd.in/epcMvZVq

Janet Weiner

Director of Audit and Compliance, Office of Chemical Safety and Pollution Prevention at US Environmental Protection Agency and Board Member of Cystic Fibrosis Foundation, Metro DC Chapter

2mo

The medical expenses of people with cystic fibrosis are absolutely staggering, even for people are employed and have good health insurance. No one should have to struggle to properly nourish themselves or their families. Needy people may be your coworkers and you may not even realize it. Raising two children with CF has been the greatest challenge of my life, and revealed to me what an extraordinary privilege it is to enjoy good health.

Amanda Boone

Rare Disease Patient Advocate- Paralegal, Co-Founder of CF United

2mo

It is extremely challenging to have CF, or be a caretaker of someone with CF. I hope that the study participants were paid well for their time and insights.

Meg Heneberry

Principal Quality Engineer at Bose Corporation

3mo

This breaks my heart. We have to do better for these kids and keep their mind free of this duress because now they have a future. Thank you to my mom and dad for seeing me through this and getting me to where I am today!

Kay Keller

Realtor at Keller Williams Realty, Inc.

3mo

Real issues

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