Here is the direct link to this patient story from FOXG1 foundation treating this rare disease:
Getting to Know FOXG1 Research Foundation - A parent-led, global rare disease patient organization driving research to find successful and precise treatments, and ultimately a cure, for every individual in the world with FOXG1 syndrome. Nasha Fitter explores the patient story and FOXG1’s shared mission to bring life-changing treatments to patients, faster: https://okt.to/tH93x4 #CGTSummit #cellandgenetherapy #advancedtherapies #concepttocure #raredisease