Diana Kwast-Hoekstra, MScN. RN.’s Post

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PhD Candidate-Nurse Scientist (UMCG) - International Patientadvocate (VSOP/Eurordis) - IRDiRC-TSC member. EUPATI FELLOW (it). President of the Board Founding (Un)limited Forward! Horse coaching and instruction

Important Webinar for everyone involved in the care for People with Rare Diseases! Please take your time to read the EURORDIS-Rare Diseases Europe message and join the Webinar!! VSOP

The new EURORDIS Position Paper on Mental Health and Wellbeing details the significant mental health challenges faced by people living with rare diseases and their families and, crucially, what we can do to remedy them! The paper emphasises the need for specific actions across all policy areas to address these unique needs. The document highlights the connection between physical and mental health and calls for implementing effective programmes, as supported by the United Nations General Assembly Resolution. It advocates for the inclusion of people living with rare diseases in European mental health policies and urges EU Member States to develop national strategies that integrate psychosocial support into standard medical care. Join our upcoming webinar for more information where Matt Bolz-Johnson, our Mental Health & Wellbeing Lead, will present this blueprint for developing psychosocial programmes to meet the mental health needs of people living with rare diseases and their families. Register now 👉 https://lnkd.in/embvg_79 #Europe #RareDiseases #MentalHealth #MentalWellbeing #webinar #policy

  • Webinar on the publication of EURORDIS Outline Position Paper on Mental Health and Wellbeing
10 July 2024
4:30pm CEST

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