Natasha Punia PhD, MBA’s Post

Disability Pride Month has just started, and I’m thrilled to celebrate by sharing my recent podcast episode with Dr Natasha Punia on Invisible Insights by InflamMed! In this episode, you’ll get to know what led me to patient advocacy, how I manage my well-being while being involved in this field, and other important topics. Thank you, Natasha, for inviting me and for our engaging discussion on topics that are crucial not just to me but to our entire community. Tune in and listen on the link below! #DisabilityAdvocacy #PatientAdvocacy

❓️ Did you know that congenital hyperinsulinism has its own Wikipedia page? ✍️ In August 2023, Team CHI met with experts in the HI field and Wikipedia authors to edit and compile a comprehensive article detailing the symptoms, causes, diagnoses, and history of HI, as well as the many patient advocacy groups and Centers of Excellence working to support patients! 🔗 You can find the full Wikipedia article here: https://lnkd.in/eAFFjU_m ⁠ ⁠ #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia ⁠

❓️ Did you know that congenital hyperinsulinism has its own Wikipedia page? ✍️ In August 2023, Team CHI met with experts in the HI field and Wikipedia authors to edit and compile a comprehensive article detailing the symptoms, causes, diagnoses, and history of HI, as well as the many patient advocacy groups and Centers of Excellence working to support patients! 🔗 You can find the full Wikipedia article here: https://lnkd.in/eAFFjU_m ⁠ ⁠ #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia ⁠

Australia has one of the highest rates of mesothelioma in the world, with 900 people diagnosed each year. The global impact of mesothelioma underscores the need for international collaboration among researchers, clinicians, and patient advocacy groups to share knowledge, accelerate research progress and improve patient outcomes worldwide. Together, we can make a real difference in the lives of those affected by mesothelioma. Click here to find out more: https://lnkd.in/g3qPkYTr #mesotheliomasafety #asbestos #publichealth

What happens when patients become true partners in research? Joyce Kullman reveals how integrating the patient voice from day one of clinical studies leads to better trial designs, greater recruitment success, and improved outcomes. Her leadership in the Vasculitis Foundation shows the transformative power of patient-centered care in rare disease advocacy. Read her full story: https://hubs.li/Q0343NQ10 #RareDiseaseAwareness #PatientFirst #ClinicalResearch #AdvocacyMatters

We’re excited to present a Community Conversation focused on the findings of our 2024 The State of Steatotic (Fatty) Liver Care in America survey, highlighting the real experiences of adults living with steatotic liver disease. Let’s discuss the challenges they face and how their insights can drive change in care and advocacy. Register here ➡️ https://lnkd.in/ejKiZnun #liverlinkedin #liverhealth #HealthAwareness

What happens when patients become true partners in research? Joyce Kullman reveals how integrating the patient voice from day one of clinical studies leads to better trial designs, greater recruitment success, and improved outcomes. Her leadership in the Vasculitis Foundation shows the transformative power of patient-centered care in rare disease advocacy. Read her full story: https://hubs.li/Q0343Lw_0 #RareDiseaseAwareness #PatientFirst #ClinicalResearch #AdvocacyMatters

💊 Struggling to afford your asthma medications? We've got tips to help! Elizabeth Johnson from the National Association of Medication Access & Patient Advocacy (NAMAPA) shares some tips to help save money on medications. We all know how essential it is to keep asthma under control, but sometimes the cost of medications—whether it’s an inhaler, a pill, or something else—can be overwhelming. 🏥💰 Visit https://lnkd.in/e7HJGB6E for more helpful information about ways to save! Thank you to Amgen for sponsoring this awareness campaign. #AsthmaAwareness #AffordableCare #MedicationHelp #HealthTips #PatientAdvocacy

The IFPA Conference 2024 unites clinical experts, allied health professionals, advocacy organizations, and patient organizations to share the latest research and updates on Psoriasis and Psoriatic Arthritis (Psoriatic Disease). #IFPAConference2024

2 minutes of your time to save and change lives! Show your support of the Special Diabetes Program by following the link below!