Our grant for Barncancerfonden's project of integrating data with AI to simplify access to childhood cancer health data has secured further funding from the Ministry of Social Affairs, Sweden, allowing BCF to build their first prototype for their research. A big thank you to the 30 researchers who have worked together with EQT Foundation to test the feasibility of the project so that it is now ready to scale up. This progress in health data also brings forward obstacles that must be addressed to further research and develop efficient healthcare. 34 signatories, including Barncancerfonden, outlined the following: 1. The fragmented clinical research system hinders progress in healthcare; propose a national function to coordinate research infrastructures, enhancing research and healthcare involvement in new knowledge. 2. Unclear health data guidelines hinder regional data management, resulting in inconsistent patient benefits. A national framework with ethical, secure guidelines is needed to standardize data collection, use, and sharing, supporting the European health data regulation. 3. Today's ineffective knowledge management hampers quality care. Propose national governance to create a knowledge base and guidelines for implementation and follow-up, ensuring high-quality, efficient, and equitable care. Read the full report here (Swedish): https://lnkd.in/exQwwWGe Regeringskansliet, Socialdepartementet
Nu stärks barncancerforskningen! Regeringen satsar 10 miljoner kronor på helgenomsekvensering av alla barn i Sverige och Barncancerfondens innovationsprojekt Brainchild.⭐ "Det här visar på regeringens ambition att stärka cancervården. Tack vare finansieringen kan vi gå vidare med nästa steg i arbetet för att stärka tillgång till och användning av både insamlade och nya data för både forskning och vård. Genom projektet svarar vi upp på behov som lyfts fram av såväl forskarsamhället som kliniker på Sveriges sex barncancercentrum. Vi på Barncancerfonden är glada över att kunna driva på den här typen av unika innovationsprojekt", säger Ola Mattsson, generalsekreterare på Barncancerfonden. Läs mer om satsningen här: https://lnkd.in/dJeUzJSW På bild sjukvårdsminister Acko Ankarberg Johansson med vår generalsekreterare Ola Mattsson. #GMSbarncancer #Brainchild #barncancerfonden #barncancer #presicionsmedicin Genomic Medicine Sweden
Great work! 👏
Global Head of EQT Digital
5moEQT Foundation's impact is profound! This is so cool!