The 8️⃣th edition of the Skills Training Course for Young Patients (#STYPA2024) meeting has come to an end! 🎉 During the training on 4th-7th July, young participants delved into critical discussions on Antimicrobial Resistance (AMR), sharing their insights and experiences. Some key takeaways included: 💡 The impact of AMR on patient communities. 💡 Strategies to raise awareness about AMR. 💡 Planning effective advocacy campaigns. In the coming months, participants will take part in workshops and webinars to follow up on their projects. Read more about this initiative 👉 https://bit.ly/3VRKKXN #AntimicrobialResistance #AMR #PatientAdvocacy #YouthEmpowerment
European Patients' Forum’s Post
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A huge thank you to European Patients' Forum for organizing such an impactful training, where young participants engaged in critical discussions on Antimicrobial Resistance (AMR), sharing their insights and experiences. It was an honor to hear from incredible speakers like Gavin S. who emphasized the importance of involving patients in every stage of developing digital tools to ensure they meet real patient needs. Also, Vanessa Carter, an AMR Patient Survivor, shared her powerful story of resilience and activism, inspiring us to act now and create change. The interactive sessions, including an insightful agora with experts, deepened our understanding of AMR and equipped us with valuable knowledge. Antimicrobial Resistance is a silent pandemic that needs urgent attention. It is imperative that all countries develop and implement national action plans now because this is an emergency that affects us all. 🌍💪 #AMR #STYPA2024 #EuropeanPatientsForum #PatientAdvocacy #Healthcare #SilentPandemic #NationalActionPlans
The 8️⃣th edition of the Skills Training Course for Young Patients (#STYPA2024) meeting has come to an end! 🎉 During the training on 4th-7th July, young participants delved into critical discussions on Antimicrobial Resistance (AMR), sharing their insights and experiences. Some key takeaways included: 💡 The impact of AMR on patient communities. 💡 Strategies to raise awareness about AMR. 💡 Planning effective advocacy campaigns. In the coming months, participants will take part in workshops and webinars to follow up on their projects. Read more about this initiative 👉 https://bit.ly/3VRKKXN #AntimicrobialResistance #AMR #PatientAdvocacy #YouthEmpowerment
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Antimicrobial Resistance (AMR) is often described as a “silent” pandemic, even though the impact it has is far from silent. AMR is real and is a serious threat to medicine, surgery, and life as we know it today. Improving education, raising awareness, and implementing national action plans regarding AMR should be a priority, both on a personal, national and international level. A belated thank you to European Patients' Forum for organising such an impactful training, engaging young patients in critical discussions regarding Antimicrobial Resistance (AMR). From insightful discussions with experts in the field, to inspiring strategy training, STYPA 2024 has deepened our understanding of AMR and equipped us with the necessary skills to advocate for this cause. The EPF Youth Group #AMR #STYPA2024 #EuropeanPatientsForum #PatientAdvocacy #Healthcare #SilentPandemic #NationalActionPlans
The 8️⃣th edition of the Skills Training Course for Young Patients (#STYPA2024) meeting has come to an end! 🎉 During the training on 4th-7th July, young participants delved into critical discussions on Antimicrobial Resistance (AMR), sharing their insights and experiences. Some key takeaways included: 💡 The impact of AMR on patient communities. 💡 Strategies to raise awareness about AMR. 💡 Planning effective advocacy campaigns. In the coming months, participants will take part in workshops and webinars to follow up on their projects. Read more about this initiative 👉 https://bit.ly/3VRKKXN #AntimicrobialResistance #AMR #PatientAdvocacy #YouthEmpowerment
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Regional Adviser Control of Antimicrobial Resistance at World Health Organization Regional Office for Europe
Super important discussion on patient advocay on #AMR!
Antimicrobial Resistance Patient Survivor and Advocate • Founder: The AMR Narrative • Chair: WHO Taskforce of AMR Survivors
As a patient advocate for AMR during the past 11 years, I always find myself asking this question: "How can we empower patients and boost advocacy towards Antimicrobial Resistance (AMR)?" On the 20th of June 2024, between 3pm - 4pm CEST, the European Patients' Forum (EPF) and The AMR Narrative will jointly host a webinar titled, “Patient Advocacy for AMR in the EU: where do we begin?”. Working together, this will be the first of a series of 3 webinars on the impact of AMR in terms of various patient groups in the EU and will serve as a platform for dialogues driven by patient organisations to support advocacy efforts. Join our discussion around: - How are patient communities impacted by AMR? - What interventions or ideas could be used to boost patient advocacy on AMR? - What are the biggest challenges towards improving advocacy and understanding of AMR? The webinar will be held in English and is open to everyone both in the EU and globally. Register for the webinar here: https://lnkd.in/eyW35HWy #theAMRnarrative #AMR #AntimicrobialResistance #PatientAdvocacy
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What happens when patients become true partners in research? Joyce Kullman reveals how integrating the patient voice from day one of clinical studies leads to better trial designs, greater recruitment success, and improved outcomes. Her leadership in the Vasculitis Foundation shows the transformative power of patient-centered care in rare disease advocacy. Read her full story: https://hubs.li/Q0343NQ10 #RareDiseaseAwareness #PatientFirst #ClinicalResearch #AdvocacyMatters
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Antimicrobial Resistance Patient Survivor and Advocate • Founder: The AMR Narrative • Chair: WHO Taskforce of AMR Survivors
As a patient advocate for AMR during the past 11 years, I always find myself asking this question: "How can we empower patients and boost advocacy towards Antimicrobial Resistance (AMR)?" On the 20th of June 2024, between 3pm - 4pm CEST, the European Patients' Forum (EPF) and The AMR Narrative will jointly host a webinar titled, “Patient Advocacy for AMR in the EU: where do we begin?”. Working together, this will be the first of a series of 3 webinars on the impact of AMR in terms of various patient groups in the EU and will serve as a platform for dialogues driven by patient organisations to support advocacy efforts. Join our discussion around: - How are patient communities impacted by AMR? - What interventions or ideas could be used to boost patient advocacy on AMR? - What are the biggest challenges towards improving advocacy and understanding of AMR? The webinar will be held in English and is open to everyone both in the EU and globally. Register for the webinar here: https://lnkd.in/eyW35HWy #theAMRnarrative #AMR #AntimicrobialResistance #PatientAdvocacy
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What happens when patients become true partners in research? Joyce Kullman reveals how integrating the patient voice from day one of clinical studies leads to better trial designs, greater recruitment success, and improved outcomes. Her leadership in the Vasculitis Foundation shows the transformative power of patient-centered care in rare disease advocacy. Read her full story: https://hubs.li/Q0343Lw_0 #RareDiseaseAwareness #PatientFirst #ClinicalResearch #AdvocacyMatters
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In case any companies are looking to get involved.
Calling all companies looking to advance their advocacy for the rare disease community! We are holding a webinar on Tuesday 12 November at 3PM (CET, UT+2) to introduce companies in the healthcare industry to our upcoming campaign resources. It will be a 90-minute webinar that provides to those looking to recognise the needs of the rare disease community and improve the support and care offered to them, an insight into how best to engage with the campaign. We encourage you to invite colleagues who would benefit from a better understanding of the campaign as Rare Disease Day 2025 approaches. If you are interested in our introductory webinar, please register through the following link: https://lnkd.in/eQmsQJsm We look forward to seeing you there.
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How can we empower patients and boost advocacy towards Antimicrobial Resistance (AMR)? On the 20th of June 2024, between 3pm - 4pm CEST, the European Patients' Forum (EPF) and The AMR Narrative will jointly host a webinar titled, “Patient Advocacy for AMR in the EU: where do we begin?”. This will be the first of a series of 3 webinars on the impact of AMR in terms of various patient groups in the EU and will serve as a platform for dialogues driven by patient organisations to support advocacy efforts. Join our discussion around: - How are patient communities impacted by AMR? - What interventions or ideas could be used to boost patient advocacy on AMR? - What are the biggest challenges towards improving advocacy and understanding of AMR? The webinar will be held in English and is open to everyone both in the EU and globally. Register for the webinar here: https://lnkd.in/eBa6ZvDD #theAMRnarrative #AMR #AntimicrobialResistance #PatientAdvocacy
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How can we empower patients and boost patient advocacy towards Antimicrobial Resistance (AMR)? 🏥💊 🗓 On 20 June 2024 (3 - 4pm CEST), the European Patients’ Forum (EPF) and The AMR Narrative will host the webinar “Patient Advocacy on AMR in the EU: where do we begin?”. This will be the first of a series of 3️⃣ webinars on the impact of AMR on various patient groups in the EU and will serve as a platform for dialogue driven by patient organisations to support advocacy efforts. 💬 Join the discussion on: 👉 How are patient communities impacted by AMR? 👉 What interventions or ideas could be used to boost patient advocacy on AMR? 👉 What are the biggest challenges towards improving advocacy and understanding of AMR? The webinar will be held in English and is open to everyone. Register here ➡ https://bit.ly/4bPAAxn
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Looking to streamline your collaborations in the Patient Advocacy Group-Industry space? Dive into our Resource Repository where you'll find over a hundred curated resources, including essential templates like a Master Services Agreement and more. Save time and kickstart your collaborations with confidence! Learn more here: https://lnkd.in/eYhvgNPD
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