EURORDIS-Rare Diseases Europe’s Post

In health systems, a ‘care pathway’ is a detailed care plan, charting each step for a specific patient population to make sure they safely and efficiently reach the best outcomes and quality of life. They are the foundation of our healthcare systems. They put clinical guidelines into action. The European Reference Networks (ERNs) are collaborating with national authorities under the new EU Joint Action for Integration (JARDIN) to develop ERN care pathways, that can be tailored and adopted locally in national healthcare systems. But what is the role of patients and their representatives in the design and development of rare disease care pathways? This webinar will provide an introduction to care pathways and share the best practice methodology for care pathway development based on real world experiences! Find out more ➡️ https://lnkd.in/eDPMRfkJ #EuropeanReferenceNetworks #ERNs #RareDiseases #healthcare #JointAction

  • "EURORDIS Event, Healthcare Webinar, Added Value of Patient Involvement in the Design of Care Pathways, Register now. Date: 17 July 2024. Time: 12:30pm - 2pm CET."
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