EURORDIS-Rare Diseases Europe’s Post

There is still time left to register for our upcoming webinar on the role of patients in the design of rare disease care pathways. In healthcare systems, a 'care pathway' is a comprehensive care plan that outlines each step for a specific patient population to ensure they achieve the best outcomes and quality of life safely and efficiently. These pathways form the foundation of our healthcare systems by translating clinical guidelines into practical actions! By sharing best practices from real-world case studies, this webinar will discuss the best ways that patients and their representatives can get involved in the design and development of these pathways. Register now! ➡️ https://lnkd.in/eDPMRfkJ #EuropeanReferenceNetworks #ERNs #RareDiseases #healthcare #JointAction

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