EURORDIS-Rare Diseases Europe’s Post

Do you want to showcase an example of patient-clinician collaboration in your European Reference Network (ERN)? Are you aware of any innovative approaches to implementing patient partnership in your expert centres? 🙋 To help foster peer learning on patient partnership in the ERNs, we are excited to be launching a contest to select six patient partnership good practice case studies to take part in our Patient Partnership Webinar series in 2025. All the practices will be presented in a dedicated webinar and the three receiving the highest scores be awarded with the chance to have their printable material(s) created by a professional graphic designer! A Selection Committee will be established to review the good practices and score them against the Patient Partnership Good Practices Criteria (available on our website). Entries should be submitted by 31 October, 2024, as per the instructions. Only properly formatted applications can be considered. 👉 https://lnkd.in/dnvgVJxx #PatientEngagement #PatientPartnership #RareDiseases #ePAG #ERNs

  • "Patient Partnership Webinars 2025 Submit your Application"
Lyndsey Walsh

Raising awareness of rare diseases & conditions #2q24.2 Advocating for my daughter MA Archaeology UCC Opinions my own

3mo

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