Global Director Patient Engagement | Enthusiastic of Patient-Centered Research to elevate the patient communities' voice
The power to think globally and act locally! How a global strategy and project can be activated locally in different ways to move the needle for patients in different healthcare systems. Also, but definately not less important, patients leading a multistakeholder discussion to raise their voices about their unmet needs and being able to “co-create” solutions or next steps with health authorities. #globalhearthub #institutoladoalado #patientledresearch #patientengagement #advocacy #multistakeholderdiscussion
Global Heart Hub’s Executive Director, Neil Johnson, is delighted to be in Brazil to meet with our Affiliate Instituto Lado a Lado pela Vida for a special multi-stakeholder roundtable on #cholesterol. Global Heart Hub will share country-level findings from our Insights from Patients living with Elevated Cholesterol (IPEC) study with a key audience. IPEC, a qualitative, multi-national study, was designed to better understand the experiences, opinions and needs of individuals whose cholesterol levels are not at target, including those who have been hospitalised for an atherosclerotic cardiovascular disease (ASCVD) event. IPEC is led by Global Heart Hub, with to date, the support of Lado A Lado Pela Vida, Brazil; WomenHeart, USA; hearts4heart, Australia and the wider cardiovascular patient organisation community. Fernanda de Carvalho, Instituto Lado A Lado Pela Vida, Brazil said: “We need to put even more focus on elevated cholesterol and ASCVD. In Brazil, there are 300,000 premature deaths per year, and we know that 80% of these are related to ASCVD. Considering these numbers and reality, it is important to participate in a task force to reduce cardiovascular deaths.” Learn more about #IPEC here: https://lnkd.in/emFmEhAD #PatientInsights #LDLCholesterol
Flavia Perna 🇧🇷 🇨🇭 🇺🇸 de fato o evento foi incrível! Parabéns ao Instituto Lado a Lado, ao Global Heart Hub e a todo o time envolvido no planejamento e execução desse estudo! 👏👏👏 Marlene Oliveira
Welcome to Latam Neil Johnson
It was an honor to have Neil Johnson and Global Heart Hub in Brazil, contributing with us to develop an Action Plan to prevent and control Cholesterol in our country, and in others. ❤️