“Our family felt called to make Jansen’s Journey to both spread awareness of SYNGAP1-Related Disorder (SYNGAP1) and shed light on our lengthy diagnostic journey. In doing so, we hoped that sharing our story when hosting a local SRF fundraising gala would be impactful as we tried to rally our community around our own fundraising efforts.” - Suzanne Jones, director 🎥 Following our RAREly Told Stories Workshop in February, we’re excited to start sharing with you some of the incredible short films that have been submitted! Join Jansen and her family to learn more about SYNGAP1, and like + share with your friends to raise awareness for Jansen and others who battle this rare disease. Watch below! ⬇️ https://lnkd.in/g3eiE8hw #CareAboutRare #RareDisease #RareDiseaseAwareness #GlobalGenes #RARElyToldStories #ShareYourStory #SYNGAP1Awareness #SYNGAP1
Global Genes’ Post
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You can make a real difference in the fight against ALS by supporting our team with a donation. Every dollar brings us closer to breakthroughs and, ultimately, a world without ALS. Join us in this important cause by donating here: https://lnkd.in/gyxCqR-B. Together, we can help defeat ALS! #EndALS #WalkToDefeatALS #DonateNow #Paradromics #ALSResearch
🔴 Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. That’s why we are participating in the Walk to Defeat ALS. To learn more about the event and to help the Paradromics team reach our fundraising goal, visit our team page here: https://lnkd.in/gyxCqR-B The Walk to Defeat ALS Austin is Saturday, October 19, 2024, at Concordia University. Help us take steps toward a world without ALS! #WalktoDefeatALS
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February is Heart Research Month. Did you know that in Australia, someone suffers a heart attack every 10 minutes? This February, join us in wearing RED for someone close to your heart. Heart disease remains Australia’s leading cause of death, impacting families and communities nationwide. Getting involved is easy! Just wear red throughout February and consider making a donation to support heart research. Every contribution brings us one step closer to breakthroughs that can save lives. Let's spread awareness, show support, and make a meaningful impact. Together, we can create a healthier, heart-strong Australia! #HeartResearchMonth #HeartHealth #WearRedForACause Source: Heart Research Australia
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February is Heart Research Month. Did you know that in Australia, someone suffers a heart attack every 10 minutes? This February, join us in wearing RED for someone close to your heart. Heart disease remains Australia’s leading cause of death, impacting families and communities nationwide. Getting involved is easy! Just wear red throughout February and consider making a donation to support heart research. Every contribution brings us one step closer to breakthroughs that can save lives. Let's spread awareness, show support, and make a meaningful impact. Together, we can create a healthier, heart-strong Australia! #HeartResearchMonth #HeartHealth #WearRedForACause Source: Heart Research Australia
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🌟 Help us raise awareness for NF2 this Rare Disease Day! 🌟 Did you know that NF2 can be challenging to diagnose, especially in adults? Diagnosis criteria for NF2 in adults are included in the picture. Early diagnosis is crucial for better management and treatment of NF2. By raising awareness, we can help ensure that individuals receive the support and care they need. Join us in spreading the word about NF2 this Rare Disease Day. Join us in making a difference by donating here: https://buff.ly/4c35L9w https://buff.ly/3SWE6OD 💙 #RareDiseaseDay #NF2Awareness
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Show your support for the 3rd Annual Stepping Up with Sickle Cell Challenge to help raise money and awareness! SCD is a rare disease that happens in 1 out of 365 black births. Together we can build a community and improve the outcomes. Visit the link in my bio to learn more about how you can get involved! #SickleCellAwareness #RareDisease #AdvocateHealth #KaysKorner #BloodHealth
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Congenital Heart Disease(CHD) Awareness Week starts today. CHD is more than a medical term; it’s a journey of courage and resilience, that affects entire families. Here’s how you can observe CHD week with us: ✅Share informative posts about CHD ✅Tag #WomenHeart and #CHDAwareness ✅Provide support by donating to WomenHeart: https://lnkd.in/gATSFbKr
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Join in our 10,000 steps a day challenge for National Cholesterol Month! You can start your four week challenge of walking 10,000 steps a day on any day in October to mark National Cholesterol Month. Set yourself a small fundraising target of £200 or more to help to achieve it and help reduce preventable disease from high cholesterol: https://lnkd.in/eD3TW239 #NationalCholesterolMonth
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To help support awareness during National Kidney Month, National Donate Life Month, and all year long, we are sharing insights from AAKP Ambassadors on the statement: “I am more than my kidney disease…” Be inspired by their passion for living well with kidney disease and learn how you can support kidney disease education and awareness. Read this article in our most recent issue of aakpRENALIFE: https://bit.ly/3JhMdAO
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Awareness is essential….
Every October, our incredible employees show up to support #BreastCancerAwarenessMonth by honoring co-workers and customers impacted by the disease. Join us to raise funds through the #BreastCancerResearchStamp by getting yours here b.link/558fu5cm https://bit.ly/3zZXC7A
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FTD fact of the day: FTD is not Alzheimer’s. It differs in 3 main ways: 1. Different Symptoms 2. FTD typically strikes younger 3. FTD is less common and far less known Please follow along and share as I continue to post facts and stories of my experience with Frontotemporal Degeneration to help raise money, awareness and put an end to this terrible disease! https://lnkd.in/eCN-PYtX
