It's moments like these that make me proud of the direction our rare disease healthcare ecosystem is headed. At the World Orphan Drug Congress Europe, I had the privilege of speaking with leaders from the public and private sector on our shared responsibility to create viable and sustainable solutions for patients in the EU.
Our dialogue has me reflecting today, on what it takes to deliver better care for rare:
1. Increase centrality of the patient experience by supporting the pursuit of innovative solutions
2. Broaden our approach to generate data and deliver care
3. Enhance public private partnerships focused on actively engaging patients and stakeholders across research, development, and commercialization
Thanks to Dr. Arjon Van Hengel, Martine Zimmermann Gemma Mayman Sophie Schmitz Adrien Samson for the fruitful discussion and thank you to those who came together to share, learn, and listen. Side by side, we are building the foundation that will support better policies, programs, and treatments to meaningfully transform the lives of people living with a rare disease and their families.
Lead Manager at Tesco
1moHighl..hy recommended