HiRO - Harvest Integrated Research Organization’s Post

REPORT NOW AVAILABLE: Learn more about the virtual public meeting, “Mitigating Clinical Study Disruptions During Disasters and Public Health Emergencies (PHEs),” convened by the FDA and Clinical Trials Transformation Initiative (CTTI), which was held Oct. 18 and 19 with 720 global attendees, in this new report. The meeting discussed recommendations provided by the FDA during the COVID-19 public health emergency to mitigate disruption of clinical studies, and featured speakers and panelists from across the #clinicaltrials industry, including representatives from Medtronic, the National Cancer Institute (NCI), the The National Institutes of Health, Johnson & Johnson, Roche and more. https://bit.ly/3RSYn7i  

The Impact of Rare Diseases on Patients and Healthcare Systems (IDeaS) study, led by NCATS, estimates the direct annual medical costs of #RareDiseases in the United States at ~$400 billion. This cost is on par with common diseases like cancer, heart failure and Alzheimer’s disease. Learn more about what the IDeaS study uncovered on the impact of rare diseases: https://go.nih.gov/E5mP0eo

Rare diseases are not rare after all.

🆕 REPORT 📖 "Action Guide For Efficient Cancer Care" by our Affiliated Organisation, All.Can International! This guide aims to offer actionable insights and practical guidance for the implementation of cancer care efficiency metrics across health systems. Efficiency in cancer care should deliver the best possible health outcomes by optimising the use of available resources - including human, financial, infrastructural and technological resources - rather than aiming to solely cut costs. All.Can defines efficiency as care that prioritises what truly matters to patients and society. To deliver this, we also need to broaden the data collected in routine practice, to include cancer-specific indicators and patient-reported outcomes. 💡 This approach is in line with value-based healthcare principles, and will support the delivery of high-quality efficient care for the future! Read the full report here 👉 https://lnkd.in/eKbFqDJZ Eduardo Pisani Ana Sofia Carvalho Pais Silva  Damir Ivanković  Erica Barbazza Óscar Brito Fernandes Niek Klazinga Dionne Sofia Kringos - Pereira Martins #Valuebasedhealthcare #Valueinhealth #Healthcare #HealthcareCommunications #Cancercare

As the global cancer burden is expected to increase to 23.6 million cases by 2030, the need for authoritative, evidence-based recommendations on how to reduce risk becomes more and more critical. The Third Expert Report gives medical professionals, researchers, policymakers and communities the resources and information they need to take a proactive approach in the fight against cancer. This comprehensive collection of information and evidence can be used to drive stronger public health policies, advance public education and improve the public’s overall health. Read the report here: https://bit.ly/2DYwp7C

As the global cancer burden is expected to increase to over 28 million cases by 2040, the need for authoritative, evidence-based recommendations on how to reduce risk becomes more and more critical. The Third Expert Report gives medical professionals, researchers, policymakers and communities the resources and information they need to take a proactive approach in the fight against cancer. This comprehensive collection of information and evidence can be used to drive stronger public health policies, advance public education and improve the public’s overall health. Read the report here: https://bit.ly/2DYwp7C

Really looking forward to speaking at the European Health Forum Gastein next Tuesday on how to improve the #EuropeanSemester to achieve better #health outcomes and #healthequity in Europe. 🎈Let's work together for a #HealthyEurope4All #EHFG #CancerPatientsEurope #EuropeanOncologyGroup

As the global cancer burden is expected to increase to over 28 million cases by 2040, the need for authoritative, evidence-based recommendations on how to reduce risk becomes more and more critical. The Third Expert Report gives medical professionals, researchers, policymakers and communities the resources and information they need to take a proactive approach in the fight against cancer. This comprehensive collection of information and evidence can be used to drive stronger public health policies, advance public education and improve the public’s overall health. Read the report here: https://bit.ly/2DYwp7C

Looking very much forward to our discussion re inequalities of #CancerCare in Europe