Today is World Duchenne Awareness Day. This year’s theme is breaking down barriers in DMD. There are several ways that barriers are starting to be broken down for DMD, from accessing care to education. But barriers still need to be broken down there further, and there are some places where the barriers are still very much up. Share your experience of either how you have faced or broken down DMD barriers this World Duchenne Awareness Day #DMDBreakingBarriers #WDAD2023!
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On World Mental Health Day, let’s all come together to talk about mental health and show everyone that mental health matters. Talking about our mental health can help us cope better with life’s ups and downs. So, on World Mental Health Day and beyond it, why not check in with your friends, family, peers, or colleagues? World Mental Health Day is celebrated every year on 10 October. This year’s theme set by the World Federation of Mental Health is workplace mental health. The theme highlights the importance of addressing mental health and wellbeing in the workplace, for the benefit of people, organisations, and communities.
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Today is PFIC Awareness Day. Every year on 5th October we recognise, share and support our PFIC community. For more information click the link https://lnkd.in/eA2cd4_V
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We are pleased to share our October article on HIV. Beyond the cure: Assessing the long-term gains of Curative Therapies. A review of our modelling approach to the long term health and cost outcomes of HIV. https://lnkd.in/ez7nD6p8 #HIV #curativetherapies #PrimeHCD #Prime
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Today we celebrate International Gaucher day 🎉 Gaucher disease is a rare inherited (genetic), enzyme deficiency disorder. Symptoms range from mild to severe and can appear at any time, from infancy to old age. They may include anaemia, tiredness, easy bruising and a tendency to bleed. People with Gaucher diease lack sufficient activity of an enzyme called glucocerebrosidase. For more information - https://lnkd.in/dRA8iEM9 #gaucherdisease #raredisease #PrimeHCD #Prime
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Limb-Girdle Muscular Dystrophy Awareness Day is an annual collaborative effort to globally raise awareness of individuals living with limb-girdle muscular dystrophy (LGMD). The tenth annual Global “LGMD Awareness Day” will be today September 30, 2024. For far too long, limb-girdle muscular dystrophy has been an orphaned rare disease that has not gotten the attention of researchers, health care providers, or the general public that it deserves. Even many patients living with LGMD have limited knowledge of their LGMD diagnosis and progressive disease process. Click the link for more information on how to get involved https://lnkd.in/g34pFgsC
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September is National Sickle Cell Awareness Month, and we welcome the opportunity to highlight the global health challenge posed by SCD. Our recently shared article raises the need for collaboration between high & low income countries to improve access to care and address the social and economic challenges faced by individuals with SCD. https://lnkd.in/e9grh_ks #sicklecelldisease #scd #rarediseases #PrimeHCD #Prime
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