There is too much fragmentation in the health system.
Fragmented patient information, pockets of innovation, poor interoperability - all resulting in multiple overlapping systems and places where useful data can be held.
That’s why a federated data platform is a great idea in principle, however we need the equivalent for patients.
The article below relates to an endometriosis app. Basically, it’s a tracking and management app. There are thousands of them, for all different conditions. Diabetes, Kidney disease, Parkinson’s, ME/ CFS, etc etc.
People rarely have one chronic health issue, especially as they get older. Which means they may need to use multiple apps to effectively manage them. That can’t be the answer.
We need one patient facing record that provides generic tracking and management capabilities (like Patients Know Best ) that then facilitates plug and play with specialist modules such as one for endometriosis. It shouldn’t look to provide everything itself (as many #EPR providers try to do). It should be truly open but with safeguards for patients, their core record and their data. It should be linked to the NHS app and nationally backed.
Patients need this. In fact they deserve it. Why can’t we make it happen?
Mohammad Al-Ubaydli , Patient Safety Learning , Helen Hughes , Liz Ashall-Payne , ORCHA , Science & Engineering Health Technologies Alliance (SEHTA) , Picker , Mark Duman MRPharmS , Michael Watts , Hassan Chaudhury HonFAPM , Vijay K. Luthra , Dr Saif Abed , NHS England, Dr. Zhong Wei Khor, Alf Collins , Stella Vig Vin Diwakar
It's impressive to see how Hinge Health Global is enabling multinational employers to provide personalized digital care through a single platform.