Ipsen’s Post

Someone who has cardiovascular disease diagnosis has so much to share with the world! Sharing your story can be scary, but so many people can learn and gain insight from it. Join one of our upcoming European Advocacy Skills Practice Sessions to learn how to best advocate and tell stories for yourself and others! Join our session on November 13. For more information and to register please visit https://loom.ly/ZVXJseQ #arrhythmiaalliance #patientadvocacy

Someone who has cardiovascular disease diagnosis has so much to share with the world! Sharing your story can be scary, but so many people can learn and gain insight from it. Join one of our upcoming European Advocacy Skills Practice Sessions to learn how to best advocate and tell stories for yourself and others! Join our session on November 13. For more information and to register please visit https://loom.ly/ZVXJseQ #arrhythmiaalliance #patientadvocacy

June is Migaine awareness month!! Why does that matter?? 40 million Americans in the US suffer from migraines A migraine is not just a headache even though many think so Many employers think so, many friends think so, many family members think so…..many people think so A migraine is a debilitating condition that effects employers, friends and family members each and every day!! Thankfully we have science driven medications to prevent and treat migraines!!! Thankfully we have organizations like NHF, AMF, AHS, AMD, and many others that support migraine patients and health care providers treating patients with migraine!!! #NHF, #AMF,#AHS,#AMD,#Migraine,#Migraine Awareness

Someone who has cardiovascular disease diagnosis has so much to share with the world! Sharing your story can be scary, but so many people can learn and gain insight from it. Join one of our upcoming European Advocacy Skills Practice Sessions to learn how to best advocate and tell stories for yourself and others! Join our session on November 13. For more information and to register please visit https://loom.ly/ZVXJseQ #arrhythmiaalliance #patientadvocacy

🌍✨ 𝐓𝐨𝐝𝐚𝐲 𝐢𝐬 𝐖𝐨𝐫𝐥𝐝 𝐈𝐧𝐟𝐥𝐚𝐦𝐦𝐚𝐭𝐨𝐫𝐲 𝐁𝐨𝐰𝐞𝐥 𝐃𝐢𝐬𝐞𝐚𝐬𝐞 𝐃𝐚𝐲! ✨🌍 On this important day, we come together to raise awareness about Inflammatory Bowel Disease (IBD), which affects millions of people worldwide. IBD encompasses Crohn's disease and ulcerative colitis, chronic conditions that significantly impact the daily lives of those affected. Let's use this day to: 🔹 Educate ourselves and others about IBD. 🔹 Show support and solidarity with those living with IBD. 🔹 Advocate for better research, treatments, and resources. Every story shared and every voice raised brings us one step closer to a world where IBD is better understood and managed. If you or someone you know is affected by IBD, know that you are not alone. Together, we can make a difference. #WorldIBDDay #IBDAwareness #CrohnsDisease #UlcerativeColitis #ChronicIllness #Healthcare #Support #Awareness #Advocacy #Trials360

✨ For the first time since 2020, the United States has witnessed a significant decline in overdose deaths, with a 10.6% decrease reported between April 2023 and April 2024, according to the Centers for Disease Control and Prevention (CDC). This decline was projected to save approximately 20,000 lives by the end of 2024, marking a hopeful turn in the fight against the opioid crisis.  💜 By providing advocacy, prevention, counseling, and training, CFLR promotes wellness and transforms lives, reinforcing the message that “when there’s help, there’s hope.” CFLR empowers participants to be proactive in taking action, fostering a greater awareness, and response to overdose situations. Read more here: https://lnkd.in/erc3aqRH   🤝 Your generosity can light the way to recovery and help support the creation of a community where anyone and everyone has access to support. Make your gift today: https://lnkd.in/eCarZv9Q  #CFLRYearEndGiving2024 #MakeADifference #WhenTheresHelpTheresHope #PreventionMatters #RecoveryWorks #BeTheChange #GiveTheGiftOfHope

Chronic Disease Awareness Day 🐝 🐝 Did you know? Chronic diseases account for 7 of the top 10 causes of death in the USA. What is today? Chronic Disease Day is led by the national nonprofit advocacy organization Good Days to promote: - chronic disease prevention and treatment - engage public supporters through virtual events and social media campaigns - advocate for Congressional funding for disease prevention and health promotion - and educate policymakers about legislative opportunities to enhance care access, reduce preventable diseases, and achieve broader healthcare equity. Learn more: https://www.chronicdiseaseday/ #ChronicDiseaseDay #wellness #healthequity #datadrivendecisions

Advocating for Prevention and Support for Lyme Disease As Lyme Disease Awareness Month concludes, the focus shifts to prevention and the importance of community support. Preventative measures like using repellents, wearing protective clothing, and performing regular tick checks are essential. Proper tick removal and managing your environment can reduce the risk of Lyme disease. Advocacy groups play a crucial role in supporting affected individuals and pushing for advancements in Lyme disease prevention and treatment. We encourage everyone to get involved in local awareness events and educational programs to help spread the word and support those affected by Lyme disease. #AllSeasonsHealing #IntegrativeHealthSolutions #NaturalWellnessJourney #WholeBodyBalance #ChiropracticCareForAll #HealNaturallyWithAllSeasons #EmpowerYourHealth #LiveYourFullPotential #BeyondPainRelief #HolisticHealingApproach #MultifacetedApproach #AllSeasonsIntegrativeHealth #LymeDisease #LymeAwareness #LymePrevention #DrPaulBekkum #DrVictoriaLau #DrCarlyDropik

Advocating for Prevention and Support for Lyme Disease As Lyme Disease Awareness Month concludes, the focus shifts to prevention and the importance of community support. Preventative measures like using repellents, wearing protective clothing, and performing regular tick checks are essential. Proper tick removal and managing your environment can reduce the risk of Lyme disease. Advocacy groups play a crucial role in supporting affected individuals and pushing for advancements in Lyme disease prevention and treatment. We encourage everyone to get involved in local awareness events and educational programs to help spread the word and support those affected by Lyme disease. #AllSeasonsHealing #IntegrativeHealthSolutions #NaturalWellnessJourney #WholeBodyBalance #ChiropracticCareForAll #HealNaturallyWithAllSeasons #EmpowerYourHealth #LiveYourFullPotential #BeyondPainRelief #HolisticHealingApproach #MultifacetedApproach #AllSeasonsIntegrativeHealth #LymeDisease #LymeAwareness #LymePrevention #DrPaulBekkum #DrVictoriaLau #DrCarlyDropik

Happy Mother’s Day to all of you incredible rare disease moms out there. And that’s whether you’re a mom of someone with a rare disease, or you have a rare disease yourself and you’re also a mom… Last Tuesday I released an episode of my podcast called “When Are You Going To Treat My Child?” It’s about the mother of the first child treated for PKU… and her fierce advocacy for her daughter. I intentionally released it a few days before Mother’s Day. Because as far as I’m concerned, Mary Jones became a mother to the entire PKU community, even though she never knew it. And she paved the way for future developments in newborn screening and rare diseases. So, I’m sharing this episode again this Mother’s Day to remind you… Whether you’re fighting for a diagnosis for your child’s rare disease… Or you’re fighting for treatment… Or you’re fighting for access to treatment… Or you’re a mom who has a rare disease, and you’re trying to balance caring for yourself and for your family… You are making a difference and changing history… for someone. This story is about one determined mother who did not remain silent, spoke up for her child, and changed the world. “When Are You Going To Treat My Child?”: https://lnkd.in/gtmC_Ztw #raredisease #metabolicdisorder #newbornscreening #newbornscreeningsaveslives #phenylketonuria #pku #pkuawareness #lowproteindiet