Isaac Health’s Post

Why do patients and caregivers find value in online patient communities? One reason: In a shared online forum dedicated to discussing health-related topics with real people who are experiencing similar journeys, they provide a safe and "important space for discussing issues that are sometimes too conflictual for face-to-face interactions" (Paul et al, 2024) Patient communities offer other aspects of value, that Paul et al (2024) describe as "navigational capital": •Platforms for seeking orientation in a confusing, complex or fragmented system •Forums offer space for sharing, collecting, and evaluating different forms of expertise—lay and credentialed •Support deliberation on future or past health-related decisions, including individual risks and benefits  My add to this research: Ensuring online patient communities have expertise and resources to support evidence-based real-world dialogues is critical. Check out the paper by Paul et al who explored navigational capital in the context of online forums on vaccination in Europe: https://lnkd.in/gdqzcWWr #CPD #MedSoc #PatientEducation

Data bias in drug development is still a problem. Critical underrepresentation of certain gender and ethnically-defined patient populations is due to myriad of factors, including patient distrust, language and cultural differences, and lack of healthcare access.    For women, specifically, combatting the unintended consequences of anticipatory motherhood is still a work in progress. In 1977, the FDA banned women of childbearing potential from participating in clinical trials. By 1985, the NIH and FDA had both issued guidelines to reassess this ban. By 1993, the FDA formally rescinded the 1977 policy, and so began the catch-up to more equal representation over subsequent decades, which despite, massive strides, is still lagging. At LOUD, we are proud to support founders building viable solutions to health disparities, by addressing data bias, healthcare infrastructure, and delivery model gaps. As we look forward at the 2024 landscape, we anticipate regulatory tailwinds; the development of culturally competent care platforms and pathways; and creative recruitment sourcing through platforms that capture community health centers, independent disease registries, and DTC patient recruitment, to continue to improve outcomes for all patients. If you’re passionate about redefining the data and healthcare landscape, we want to talk to you! #venturecapital  #healthcare #womenshealth

Reach more patients... on a global scale. 🌏 The traditional #ClinicalTrial model continues to shift. Patient population, diversity, engagement, and retention are at the forefront of study designs. Firma’s model allows sponsors to overcome #logistical challenges and reach the right patients at the right place and the right time. #GuidingClinicalTrialsHome 📲 https://bit.ly/3FDChQs

👨⚕️ What societal problem is ADLIFE Project addressing? As advances in #medical science quicken the pace of population ageing, challenges rise in sustaining the care and quality of living for ageing populations with #chronicillness. According to the World Health Organization, by 2050, the world’s population of people aged >60 is predicted to double, and of those aged >80 to triple. This underlines the urgent need for solutions to address the societal and medical challenges of caring for individuals as they live increasingly longer. Read more: https://lnkd.in/dqkhv9R7 #eufunded #HorizonEurope #ADLIFE #agedcare

#HighlyAccessedPaper 🔍New study explores an #EHR tool for predicting retention in #HIVcare. 91% of providers are on board! Discover the potential to improve outcomes for PLWH. #HealthcareInnovation #clinicalinformatics 🌐Access more: https://brnw.ch/21wL7vn

Patient recruitment is crucial for clinical trial success. Here are key strategies to overcome common challenges: Understand the Patient Population: Identify characteristics of likely participants, including medical conditions and demographics like age and race. This enhances safety and efficacy. Patient-Centered Approach: Design trials with the patient's needs in mind. Offer remote participation, flexible scheduling, and transportation assistance to create a more patient-friendly study. Build Trust and Adhere to Ethics: Clearly explain the trial process, potential risks, benefits, and participant rights. Provide educational materials to help patients understand the trial and their condition. Ensure all activities follow ethical guidelines and regulations. These strategies can improve patient recruitment and ensure your clinical trials succeed. #ClinicalTrials #PatientRecruitment #Haltha 🩺

Not 1 but 2 new health coalitions emerged on Monday! Over 20 patient groups united among 40+ diverse members to form: 𝗧𝗼𝗴𝗲𝘁𝗵𝗲𝗿 𝗳𝗼𝗿 𝗦𝘂𝗽𝗽𝗼𝗿𝘁𝗶𝘃𝗲 𝗖𝗮𝗻𝗰𝗲𝗿 𝗖𝗮𝗿𝗲 and the 𝗬𝗼𝘂𝘁𝗵 𝗔𝗱𝘃𝗼𝗰𝗮𝗰𝘆 𝗖𝗼𝗮𝗹𝗶𝘁𝗶𝗼𝗻. Their goal? To amplify voices and drive change. For Together for Supportive Cancer Care, their aim is to make supportive cancer care a national standard. And for the Youth Advocacy Coalition? Their mission is to elevate youth perspectives in mental health policy. Why should patient engagement professionals be aware of new coalitions? There’s at least 3 reasons: ↳𝗔𝗻𝘁𝗶𝗰𝗶𝗽𝗮𝘁𝗲 𝗣𝗼𝗹𝗶𝗰𝘆 𝗖𝗵𝗮𝗻𝗴𝗲𝘀:  Coalitions push for changes in regulations that can affect drug approvals and access to treatments. ↳ 𝗙𝗶𝗻𝗱 𝗡𝗲𝘄 𝗖𝗼𝗹𝗹𝗮𝗯𝗼𝗿𝗮𝘁𝗶𝗼𝗻 𝗢𝗽𝗽𝗼𝗿𝘁𝘂𝗻𝗶𝘁𝗶𝗲𝘀: Partner with diverse stakeholders to address unmet medical needs. ↳ 𝗜𝗺𝗽𝗮𝗰𝘁 𝗛𝗲𝗮𝗹𝘁𝗵 𝗘𝗾𝘂𝗶𝘁𝘆: Coalitions often focus on expanding access to care, contributing to reducing health disparities. What would you add to the list? #healthequity #patientcoalitions #healthpolicy #patientengagement ______________________ Hi 🤩 I’m Anne-Marie, founder of Zebricks. Our mission is to scale the impact of patient advocacy market research through technology. Is it challenging to keep up with the ever evolving patient group landscape and initiatives? Lets chat and identify your blindspots.

The importance of building connections with our community to integrate care and ensure seamless coordination. I Targeting our patients needs. #targetedcasemanagement#evidencedbasedreferrals#intagratingcare#seamesscoordination#builidngconnectionsthroughcomminitycollaboration.

Introducing Citeline PatientMatch, a game-changer in clinical research that will uncover the right patients and boost clinical trial enrollment. The advanced algorithms and real-world data match patients with trials based on their medical history, demographics, and preferences. We provide comprehensive trial information, eligibility criteria, and personalized recommendations to empower patients and accelerate research. Want to learn more? - Press release: https://ow.ly/wbRT50Rom39. - Product page: https://ow.ly/RBVp50Rom3a. #CitelinePatientMatch hashtag#Citeline hashtag#PatientMatch hashtag#CitelineClinical hashtag#ClinicalTrials hashtag#PatientEngagement