Isabella Santos Foundation’s Post

As an organization deeply involved in the rare disease community, ISF understands the complexities of the title "Rare." In a recent Patient Worthy article, our Executive Director and Isabella's mother, Erin Santos-Primis, shares insights on navigating the "messy middle" as a growing non-profit and the power of collaboration within rare disease groups. With Pediatric Cancer Awareness Month just around the corner, we encourage you to read the article and join us in raising awareness for children battling rare cancers by sharing it with your network. Thank you to Patient Worthy for amplifying our mission. 🎗 https://lnkd.in/eNgi8eKi

Challenges of Rare Pediatric Cancer Fundraising - Patient Worthy

Challenges of Rare Pediatric Cancer Fundraising - Patient Worthy

patientworthy.com

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