Jennifer Bright’s Post

Ah-mazing dialogue with Suzanne Schrandt and Catherine A. At the Patient-Centered Outcomes Research Institute (PCORI) meeting. The takeaways: - no more word salad - all lived experience and patient voices are valid and essential - young people are literate and see through the noise: lift their voices and include them - who is missing? Make that your constant question. - Like Ted Lasso: Be Curious (I added the Lasso reference) - emphasize accountability. Journals should demand attestation of whether patients are co creators (or even involved) - emphasize and find open access so patient communities can benefit from the research about them! - remember to fill your cup so that you can keep pushing for change and also so you have the energy to reach back and bring others “onto the on ramp” of advocacy and leadership in research. I look forward to living these truths with my colleagues and partners at International Consortium for Health Outcomes Measurement (ICHOM). Thank you for an amazing conversation!!!!