Jesse Cohn, PhD’s Post

Rare Disease Day may have passed, but at TrialHub, we're dedicated to improving recruitment and retention in Rare Disease studies every day. Watch this short video where Bioncle Emas explains how TrialHub helps identify the right countries, sites, and patient for these studies. #patientinsights #TrialHub #raredisease #patientrecruitment

The countdown to Rare Disease Day 2024 is happening! Join us at https://lnkd.in/eshHF7Qc all month long to stay connected and to join in on the conversation! Worldwide Clinical Trials #ShowYourStripes #RareDiseaseDay #RareDisease

We didn't have a Super Bowl commercial last night, but if we could have, it would go something like this. Did you know that millions of people worldwide are living with a rare disease? These conditions often go unnoticed, leaving individuals and families grappling in the dark. Today we share an informational video on Medscape Education to shed light on the significance of early diagnosis and the crucial role of caregivers. #RareDiseaseAwareness #CaregiverSupport #DiagnosisMatters #Empowerment #CommunityStrength

Medscape Education‘s Rare Disease Learning Center has featured over 280 accredited activities and reached almost 1.3 million learners; think of the patients whose lives have been improved thanks to better clinician knowledge and understanding of rare diseases. Check out this moving video to highlight how an earlier diagnosis is life-changing for those struggling for answers. #educationtransformation #patientcentricity #medicaleducation #continuingmedicaleducation

Yesterday was a big day as our segment on generalized pustular psoriasis (#GPP) was featured on GMA3. This important coverage helps raise awareness for this disease and sheds light on the challenges faced by those impacted by it. Watch the full segment here: https://lnkd.in/eXUe_cDm

I'm heading to Washington, DC on May 18 - 21 for @Digestive Disease Week 2024. If you're pursuing a potential solution in differentiated MOAs with potential for gut barrier restoration, patient stratification for use in combination regimes, or orals for clinically validated targets, comment below & let's connect during the meeting. #DDW2024|

Kawasaki disease (KD) is a rare but potentially serious disease that mainly affects children under the age of five. This inflammatory condition, first identified by Dr. Tomisaku Kawasaki in 1967, is characterized by a constellation of symptoms, making it a diagnostic challenge for doctors. In this blog post, we delve into the complexities of Kawasaki disease, exploring its symptoms, potential causes, diagnosis, and the importance of early intervention. https://lnkd.in/gmP_b8ek #BhaloTheko

“I love the words Mayah shared: “The disease lives with me, I don’t live with the disease” 💪🏽. It’s a good reminder that patients are not just subjects in a clinical trial, but rather partners with unique experiences and insights that can greatly inform the research process 🤝. Active engagement with patients, incorporating their perspectives, aids in the design of more operationally efficient trials supporting patient engagement and retention 📈. In turn, this can lead to more successful studies that reach their end stage on time and within budget 🕒. This is just one piece of the puzzle to help develop a more financially sustainable and efficient trial model and a necessity for continued innovation and our role in serving patients 💡. #PatientEngagement #ClinicalTrials #PatientCenteredCare #PartnersInResearch #InnovationInHealthcare #SustainableTrials #PatientRetention #OperationalEfficiency

AL #amyloidosis is a rare, progressive, and often fatal disease. There is an urgent unmet need for therapies that address both the toxic, circulating amyloid and the amyloid deposited in vital organs for those living with AL amyloidosis. Learn more about our work in this area by visiting our pipeline: https://bit.ly/3x06KXT #AmyloidosisAwarenessMonth